Posted , 15 users are following.
I'm now off prednisolone but can't remember how long I'm meant to carry the warning cards that show how and when I was weaned down off it. I think it was a year but am not sure can anyone tell me please.
3 likes, 34 replies
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EileenH Porgi
Posted
Yes - they say a year. Doesn't matter if it is longer - and loads of people never got given a card in the first place!!
EileenH
Posted
PS - how rude of me - that is great! Long may it last!!!! Don't go away though - people like to know there is a good chance of getting off pred!
EileenH
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Except - you aren't off pred because PMR has gone away are you I now realise?
margaret89358 Porgi
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Hoping for. Let’s hope the dreaded PMR doesn’t come back. Well done.
Michdonn Porgi
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Good going Porgi, congratulations!
Keep the card I never know I had to carry one. One of these days I may get with some program. Good luck Porgi may you stay off the Devil's Tic Tacs!
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BettyE Porgi
Posted
Really pleased for you and, as Eileen says, do keep in touch.
I was on pred. altogether for eight years in two episodes of PMR and I remember what hope it gave me when I read of success stories. That's all more than four years ago now.
My younger sister has been recently diagnosed so I have an added incentive to read all the latest news,. She has reduced from 20 just before Christmas to 9 without any return of symptoms. Fingers crossed the smooth ride continues but she knows to take nothing for granted.
ClaireJG BettyE
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mary19068 Porgi
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Hi Porgi
I still have my card after a year...i keep it as a souvenier to remind me of the hard work, pain and endurance it took to get off pred....👍😊
mary19068 Porgi
Posted
Hi porgi
Forgot to congrstulate you on getting off pred. I hope the pain doesn't come back. Mine hasn't, but i have osteoarthritis pain and postherpatic pain after getting shingles whilst on pred. A small price to pay rather than being on pred ....
MR._BELLA Porgi
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Anhaga Porgi
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peggy_56092 Porgi
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bjmoen Porgi
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ptolemy bjmoen
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EileenH bjmoen
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In the UK a blue card should be issued to patients taking pred for more than a short course (that means repeated short courses too) as being on pred may impair your body's ability to react to stress such as illness, injury, trauma or even emotional stress. You should list your pred dose and the duration of your treatment on it. The card is to tell healthcare personnel, in particular, that you may require treatment to supplement your adrenal function, especially in case of an accident or being taken ill suddenly when you may be unable to tell them yourself or there is no-one to tell them for you. In the UK your doctor should have them or the pharmacy. I suspect they may not exist in other countries. The NE of England PMRGCA support group also sell an amplified version which was designed especially for PMRGCA patients. A Medicalert bracelet also fulfils the same purpose.
It should be carried the entire time you are taking pred and for a year at least after stopping taking it.
ptolemy bjmoen
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judith90525 ptolemy
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