Prednisone and weight gain......

On the PMR diet the sufferers only allow to have two eggs per week. Try to have fruits in between meals. Want to try breakfast and Pred not later than 8am. One banana at 9.30 going out for a slow walk for at lease half hour. Can go as far as you like on a bus ride or so. Walking is my favourite (I always think do it while you can) I took suppliment between Pred, some PMRpro use vitC but I used Goji berries juice to regulate my blood sugar and cholesterol check (I hope) it helps with my eye sight too. I do 80% gluten free diet. Hard to follow but worth it. (I have food intolerance ) if is not too much to ask can you tell me what you eat during the day (not trying to pray your privacy, don't have to tell me if you don't feel comfortable ) I am not an expert but I do use natural diet to control myself, always Trial and Arran. 

The PMR diet? Never heard of it.

I'm just asking, but if you have a gluten intolerance why only 80% - the 20% you are eating is still enough to give you a reaction! Also, Goji berries are a member of the nightshade family and particularly bad for people with autoimmune diseases.

hmm, hard to say what I eat as I have something different every day - variety keeps me interested and also keeps the number of different foods I eat at maximum. But here's an example.

Brekky: a sweet potato and cauliflower fritter with a 'paleo' sausage (or rissole) and some baby spinach and mushrooms

Lunch: greek lamb salad: fillet of lamb with baby spinach or rocket and mint, red onion, figs. Lime juice for dressing.

Lunch: fresh salmon or barramundi with lemon juice, olive oil and fresh herbs. A salad - perhaps carrot and beetroot or I might have lemon roasted zucchini.

Fruit for a snack if I need it.... water, black tea, kombocha.

If you go to website and type in 'diet for PMR' and it shows you all about PMR and you can choose whatever tropic you are interested in. Food to eat and avoid. 

Yes I know sound Hippocrates isn't it. The 20% is when I got no choice and suffered the consequences the next day or even before the day is out. It doesn't kills me just uncomfortable. And I do listen to my body. I can't skipped everything and my body is telling me once a while I need the food I don't normally take. So I been working on it for the last 10 years or more. 

Your diet looks good but do you snacks in-between? 

My breakfast is oat bran porridge 2 tablespoon of oat bran. Banana at 9.30 for potassium, lunch 1/4 cup quinoa with mushroom and veg. Dinner about three tablespoon of cooked rice with grill fish and lots of boiled veg. Sound boring but my stomach feels happy after that. There are food I ate and my body said yeak to it. So is plainer the better. 

I understand losing the energy to shop and cook! When you are constantly fighting the pain and stiffness of PMR who has energy to plan meals much less cook them.  Sorry about the side effects of eating eggs again!, 

Well that won't work for me as I've been eating two fried eggs for breakfast ever since I had to give up my big bowl of cereal!  That and 1/3 cup pumpkin seeds and a cup of tea with milk.  Can't face the thought of having to prepare anything.  Has to be easy.

Hi Anhaga you still can have a bowl of oat bran porridge with milk. Can make it in the microwave in two minutes. And break an egg in if you like and it taste good. (No sugar) 

The thought of an egg in a bowl of oats is rather offputting.  I like oats as an occasional bedtime snack.  I do not have a microwave.

Not really you have to try it to know the taste. Mixed the egg in before it cooked. A milk pan is as easy as 123. Cold water plus two tablespoons of oat bran bring to boil added milk and is done. Sometime I have that with yoghurt or plume 

Sounds like a variation on custard.  The oats I eat are the rolled oats, served with a little milk and a smidgeon of salt, no sweetener.  🍚

Cooked in water and served with cold milk I trust 

Proper scots porage - with salt on them...

Of course!  

HI Lee. Thanks for the encouragement.  PMR does get me down there's no denying that but I don't stay that way for long and just keep moving forward the best I can. Good days, bad days I realize that's just how it is living with this disease. 

Be honest I was rather upset when I was told I had PMR. Active person like me gardening housework shopping and fast walking....and now I am like years old. I thought ooh my God after all these years I really been promoded to earn PMR tittle with 90 years old legs.... Now the Pred has helped me and still waiting to find out the lower dosage in a few weeks time. Ahh maybe I am lucky.? Anyway that still haven't stopped me from walking. Can't do much so I told myself is time to put things down 👍👍👍

Yes, I kept on walking, in fact did a lot more after diagnosis because of terror of getting osteoporosis.  Probably overdid it a bit at first, but have thankfully been able to maintain a good level of activity - I've learned to rest between, though!

I did a lot of walking too. I had osteoporosis and the terror of thinking I might end up in the wheelchair. 

walking is one thing I just can't do - my hips and back are so stiff and painful. I can walk VERY slowly for hours - my daughters love to take me shopping now as I no longer race through the shops like there's no tomorrow! Even better when I have a trolley or a pram to lean on. there were times when I was thinking of buying a walker (Zimmer?) frame. At 51 I thought that was a bit much!

Have you tried Bowen therapy Flip? My hips and back were dreadfully stiff and Bowen kept me moving enough to get to an acqu class in a warm pool - after 45 minutes of that I could move fairly freely. The other perfect hip-freeing exercise was downhill sking! I could barely move to get into the gondola going up but 2 hours later I really was moving almost normally! And that was without pred at all! 

That was eventually decided to be due to myofascial pain syndrome rather than the PMR itself and once my spasmed back muscles were turned into nice soft normal musculature the walking is now OK. In my experience that is best submitted to physiotherapist type people - or an enlightened pain clinic specialist, since orthopaedic specialists tend to look at bones rather than muscles. Rheumies don't want to know unless they think it is part of an arthritis and will say they can't do anything. The physio I saw here was agog at what doctors had suggested previously!

I had my massage therapist give me the once over yesterday and she thinks I might have MPS - but I also think it's the bursitis in my hips which was diagnosed a few years back. At 46 I was told I had the hips of a 65 year old. Gee thanks guys. What would you like me to do about that?

I had both...

I had both...

I've made an appointment with my phsyio for next week (she is/was my running coach, so she knows me well). I've warned her that I am 'broken' and will need a lot of work. lol

Good luck! And enjoy any nice bits she offers...