Prednisone side effect or PMR symptom

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Have been on prednisone since July for PMR. Since middle of August I have had a constant (24/7) burning sensation in the upper arms, shoulders and neck. Has anyone else had this type of occurance. I can't figure if it's the meds or the PMR. Would welcome input. Thank you.

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6 Replies

  • Posted

    Hi there. That's funny you said you got a burning sensation on your shoulders, neck, and back. I've been on prednisone since April of this year,, and just recently (about 2 weeks ago) during dinner.. my lower back was starting to ache then the pain went to the upper back of my back. Fast forward to when we got home.. he was going to rub my back because of the pain and that's when I noticed my back, shoulders, and even chest was burning. It lasted up until the end of the next day.

    Told my doctor about it, he said it has nothing to do with arthritis but keep an eye on it. So I'm completely lost at what it could be.

    Please keep me updated on any info you might have! Thank you!

    Take care!

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    • Posted

      Hi there. Will do. I've been repeatedly asking my specialist to no avail.  Have an MRI coming up in Jan. however and he thinks there may be an underlying issue that is causing this. Sadly, I am at his mercy right now so it's wait and see.  It's possible your's might have be a flare up or maybe a reaction to something you ate. I actually had a severe painful flare last week when I decided for the first time this year...I swear.... to eat chocolate.  Within an hour I was in agony and it took about 8 hours and 6 Tylenol 3 for the pain to go away.  The burning sensation however remained.  Hope you have a pain free Christmas.

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  • Posted

    Hi, I have dry burning in my hands and feet that is caused by high levels of inflammation. I was on Predislonone, MTX and Hydroxycloroquine but still showed inflammation in blood tests as high. They sent me for a whole body bone scan with dye that showed it pooling in those areas. I am now on Cimzia injections, the burning is still present but not so bad and the levels have dropped a little. they are thinking of trying another biologic to help it further. Hope you get it sorted soon but look at your inflammation levels as it may help you in finding a solution.
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    • Posted

      Thank you!! Right now my levels have been normal but that is not uncommon . The one thing I have learned in the past 6 months is that PMR is not always easily managed and answers can be slow in coming. Glad to hear that you have found some relief. Again thankyou for your time.
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  • Posted

    Burning sensation in neck, shoulders and upper arms are more likely to be related to poor neck and thoracic spine posture due to increased inactivity. Try to avoid sitting with your head in front of your shoulders at all times and stand regularly and roll shoulders back as often as possible. When you adopt a slumped, forward poking chin posture it puts stress and strain on the nerves as they leave the neck. When sitting always support the lower back, in a car as well, with a rolled towel, cushion or pillow then you can relax back and your head will naturally fall into a good posture. 
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