Pressure in head!!!!!!!

Munnakhan..............well thats some real doctoring there......lol...sorry, I walk every morning for 2.5 hours I used to jog but that dont happen anymore, I NEVER nap and never have up until I got this, I was napping from last year June I'm guessing until last Dec. and since I took myself off the acid reflux pill I stopped napping......1 good thing, but still sick and exercise dont work for illness, unless your overweight go for it !

you need new doctor

Shea.......................lol................I think we both do, yours telling u to exercise with a head like that ! I'd die if I was to exercise

Hi Jordan.

I am so sorry to hear this.

I can relate to you to some extent. I'm exhausted with head pressure and ringing in ears. Everyone's fed up of hearing me too, be nice to have someone to listen x

yeah, after so long without a solution people wonder if it's made up

Hi Jordan,

Sounds like you have increased pressure in your head (IIH) idiopathic intracranial hypertension. I was diagnosed by having a lumbar puncture after having an MRI that showed slight flattening of my pituitary gland.

Jordan,

Everything you explained is exactly what I am facing. That’s crazy because you explained my symptoms to the T.  Any update on how you are doing??

do u recall what form of test was did to find histamine problem?

Hi sheasa2,

I went to my son's allergist and asked him for a histamine test.  Here's the thing, though--it came out negative!  This is after I had already gone to the ER three times with a histamine reaction, though, so from all the research, I knew I had a problem in this area.  But, I looked more into the test I had.  They just tested my histamine level.  Apparently, you have to have the test that tests histamine and DAO (this is the substance that your body makes to counteract histamine).  I believe that I'm very low in DAO.  To make matters more confusing, I was going through a period in my life where I was very thirsty and filled up 1-1/2 containers with urine, so I think that diluted the histamine I was actuallly making.  Also, I found out that there is a blood test--maybe it's more accurate.  BUT, the good thing about this situation was that this is what alerted me that my head pressure/neurological problem (after 3 years of going to neurologists, etc.) may be digestion related, which sent me to the digestive doc.  She tested me for SIBO which was sky-high.  She thinks that the SIBO is causing my histamine issue and that once we get the SIBO erradicated, the histamine problem will be solved, too.  BUT, it is very hard to erradicate SIBO in some people as die-off brings on even worse symptoms for awhile (deleting sugars and grains from my diet has helped a lot).  I have tried taking the gentle, natural medicine she advocates and my head pressure is so intense, I think I'm going to die. My feeling, with me at least is that I had IBS first--probably for many years--which lead to SIBO which lead to histamine intolerance.  Any one of these can cause the dead-head feeling in me.  I have been reading that sometimes digestive problems may be related to childhood emotional trauma (in my case--yes) and/or low serotonin (the digestive system produces 95% of the body's serotonin) and how the body handles stress and what it perceives to be "invading" forces.  Stress also slows down the motility (movement) of the digestive system and everything just sits in there and ferments, filling the body with gas--even a little of fermented gas that you may not even notice can wreak havoc in some people.  Oh, she thinks I have Leaky Gut, too.  Also, low Vitamin D can be an issue.  The Catch-22:  Low Vitamin D can cause digestive problems, but if you have digestive problems, you can't absorb enough Vitamin D.  Also, histamine intolerance makes it impossible to sit out in the sun as heat amplifies symptoms.  Even showers are a problem. Also, high histamine can cause horrible, itchy rashes, but I don't have that, thank goodness, but I just want to tell you in case you do.  Anyway, I went low-histamine and now I'm low-SIBO as well, in addition to gluten-free, dairy-free, etc., because all of these can play a role.  But, you have to check each food group for yourself.  My problem is that I have hardly anything left to eat, so now I'm looking at my emotions (emotions and stress can contribute to digestive issues and can actually cause more histamine in the body, without even eating--pollens in the air, too--I'm worse now that it's Spring),  It's been a long road for me.  I think this whole thing had been building up for years and then the stressors of menopause pushed it over the edge (but, not everyone is a woman or menopausal age, so don't let that throw you--others have these issues, too.  Maybe if I had caught it before menopause, I wouldn't have gotten so bad).  Everyone needs to check their own situation because symptoms and possible solutions are different for everyone.  I think the key is to start checking IBS symptoms and see if you have some of these, then SIBO, then histamine.  Also, there's h.pylori (which I tested negative for--yay!) and candida (doc says there's no reliable test for that).  But, what I've learned from all of this is that the gut is what's called the little brain and everything that affects the big brain affects the little brain and everything that affects the little brain affects the big brain.  I've had even more symptoms than I've mentioned here--believe it or not, this is the short version.  If anyone wants to send me a direct e-mail, I would be more than happy to talk about what I've discovered in this "adventure".  I'm still working on it--some things I've tried help; some things make it worse--but I've made progress.  Still a long way to go, though, but it would be nice to talk back and forth to all of you searching for a solution.  BUT, I do want to emphasize that this is MY situation.  Yours may be completely different, but it's something to consider in your quest. I could give you some links that have helped me.  All the best, shesa2--read about your MRI scare, too.  Wow, I guess we're all lucky to still be here.  I thank God every day.  Lots of love, prayers and hugs to all.  

One more note:  I'm also researching the possibility that I have Low Stomach Acid, which can also add to digestive problems.  So stay tuned . . . 

so basicly interfering with us finding a cure?

Moderators:  Why do you keep deleting my comments?  I am trying to help people.  I have had several comments deleted to several topics in the past few weeks and they are all related to what I am going through--that many seemingly unrelated head problems can be traced back to digestion.  I have suffered terribly for 4 years trying to find out what my problem was and I see others suffering.  I want to help them.  I am just saying what my issue is and what helped me.  I am NOT diagnosing them.  I am just giving them information if they want to check things out for themselves.  Look at sheasa2's comment--she wants the information I am trying to tell her.  If you do not want it printed the way I wrote it on the site, then please tell me how to modify it or please tell me how I can contact her directly so that you're not involved.  I have asked before how to contact people directly and have not received a reply.  At this point, your website is extremely frustrating.  Other websites allow this kind of discussion.  What is the problem?  People on here are looking for help.

Hi Elizabeth,

Your comments were not deleted but went for moderation due to the nature of the content. This is because some users who talk about SIBO etc use these forums to try and sell products or promote dubious websites about these subjects. The posts are approved once checked. The one that was deleted in this thread was because it was a follow up to your longer post so I edited it into the initial post. It is the paragraph starting "Regarding my digestive issue".

If you want to contact people directly then use the private message facility.  If you have had other posts deleted in the past it will be because they breached the T&Cs. I do not read every post in the forums so if you have a question for me then you need to contact me. There is an FAQ section here

http://patient.uservoice.com/knowledgebase/topics/59133-discussion-forums which is linked at the bottom of every page in the forums which has more information about all of this.

Regards,

Alan

Liz, (i hope its ok to call you that)  I am starting hormone blocker today/tmrw and havind ovaries out soon, so i am gonna be even more screwed up, lolol  i have a lot of weird symtoms too, blocked gas every cpl mths, sometimes severe pain when a bowel is moving in place and occasionally almost black out. (happened once) one day loose next stopped up. my gut talks loudly a lot. on and on. i want to thank you spending time of your to help us, you have given me hope of finding an answer.

Thank you, Moderator.  I appreciate your explanation.  So many of us are suffering with mystery illnesses and looking for help.  I only tell my story so that others can look into possibilities.

My prayers are with you!  You're going through a rough time.  I hope my story has helped your situation some.  If you find that this is part of your problem, that's great.  If not, at least it's something to eliminate.  I'll be thinking of you as you go through this journey.  Lots of love.

Hi Elisabeth my mother has been suffering from headache(serious pulling sensation )for last six months.She is Vit D deficient ,hypothyroidic as well as menopausal. She had an operation for removal of ovaries 5 years back.Her thyroid is now normal ,Vit D is now normal But her headache problem is stagnating. Please suggest if u have any solution to this .

Hi Elisabeth,

I am sachal gidwani from vancouver a fit 24 year old and have had this constant head pressure, ear ringing (Tinnitus) and the pressure increases with bloating and every time after i eat it causes the wierdest symptoms including fore head pulling, I have ruled out anxiety as i have been a yoga and meditation practitioner since the last 2 years and exercise regularly and managage a lot of other things. I have had the head pressure for the last 2 years but have some how managed it through yoga and meditation. It became bareable after meditation. It started with constipation with me as well 4 months back and it sent me on a roller coaster ride. I went to see my physician who basically gave up saying he has no idea and the Gastro's appointment is not untill the next 6 months! I have been struggling with the head pressure like anything and gas bloating and some times breathing difficulty as i feel my esophagus is probably affetcted due to the constant gas and GERD. I want to know were you able to find a fix on this? I would be greatful to you if you can tell me how you dealt with this.

God bless us all.

Regards,

Sachal

 Harish,

I have sent you a private message.

Sachal,

I have sent you a private message.

Hello Elisabeth, ive been going thru the same symptoms for about 15 months now and ive done every test out there. Ive been noticing that my pressure changes depending on what i eat so i think you might have a point. Can you update us on what happened with you. I see that the post is a little over a year now so i hope you got better and have some answers.