pressure pain

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after shingles head, brow and eye. horrible pain, my gp did not relate strange feeling of pressure on side of nose and upper teeth to the virus. new doc after a year said straight away that is what I was suffering from. no treatment in that year.  I then had another bout of shingles on my neck. This problem does not go away despite various drugs. Too late was the cry I think. Any suggestions anyone? Thanks 

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  • Posted

    Hi madge I too have phn in my head brow and eye lid ,its very pain ful I could  dig my eye out some times as it stings and hot .

    like you two doctors didnt know what it was , apparently if you have an injection within 36hours you dont get this pain.

    I have had it for four years and it really gets you down so I really know how you feel.

    I take gabapentin and tramadol when its really bad.

    didnt realize so many people had this, as you say its nerve damage and it never goes away.

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    • Posted

      I am sorry to hear that you too suffer, but, it confirms that I really was not going mad or imaging things. This problem seems to be so ongoing that you would think gps would automatically think of treating potential phn every time
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  • Posted

    Very sorry to hear.  I have had for over 7 years on torso front and back so I know what it is like.  I also know location makes a huge difference and I have total empathy for indivdiuals like yourself that have PHN in more sensitive areas.  One continues to try different medical interventions and personal approaches to managing the pain.  I am currently looking at the cyrogenic method and my doctor things the procedure can be reproduced here in Canada by a dermatologist.  Biological plausibility is lacking for the procedure but I will try (almost) anything.  Years ago an elderly doctor hugged me and said he was so sorry but also said after 5 years he has seen some improvement. Just recently I have noticed some - the pain (duration, intensity and type) has just changed.  The number of hours of 8/10 intensity has gone down but the number of hours of 4 or so has gone up.  An improvement given I have learned how to live with the lower level numbers.  Hoping it will continue to migrate away from the 8 plus hours.  Take care and this site is the only one I know where we can exchange info and remain hopefull.   jim
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  • Posted

    I forgot to add for me given the location on the torso/abdomen I found weight loss/gain impacts the pain.  I think from the simple perspective of skin stretching.  I have recently lost 20 to 30 lbs.  I think that is perhaps why my pain intensity profile has changed for the better as I just noted in my last response to you.  A reason I say personal experimentation is important - particuarly re things like clothing.  In your case I dont know how you deal with issues like wind or even breezes from fans.  I know I cant expose my self to winds in the summer without pain.  (sorry for a few typos but understandable in any case)
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    • Posted

      hi, the sensation i have on my head is one of, yes pain at times, but most of all as it someone has one side of my face and upper teeth in a vice. the lady doctor who diagnosed phn said it was because the pain or sensation can travel to nerve endings. after a year though of mis diagnosis i fear the damage was done.
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