Pretty upset after seeing ENT today about diagnoses

Thank you for responding.  I haven't really looking at VN, because i was told it was vestibular dysfunction, now could be MAV, it makes no sense. But I will look at the VN info.

Do you know about the VNG test?  I am curious since I got dizzy in the right ear but could't do the left, what does it mean if you get dizzy?  There has to be some reason for it.  If you don't get dizzy it means you have inner ear damage, so if you get dizzy does it mean you have no damage?  I honestly am so cunfused by this, what exactly does this test tell them?  If you have any info I would sure love to hear it about it.  

You said you had the same symptoms as mine.  I have to tell you this constant rocking/swaying stuff is for the birds.  I seem to have more when i"m moving around.  But my anxiety gets me, so I get scared to stand up for long and move.  But I do it anyway.  I go to work everyday, and its stressful so that doesn't help much.  Did you notice you had it worse at certain parts of the day?  Mine seems to be at night, I think its the stress all day make it worse. Did you have anxiety with it, mine is worse in the morning, cuz I worry about how I'm going to feel all day.  

I will continue the VRT, I hope as my head gets used to it, it will not continue to cause dizziness for days.  Did you notice when you would start increasing the VRT, did the dizziness last for hours after the first increase?  Did it go on for days as it slowly settled down?  Sorry to ask so much I think it helps me to know this is all normal.  I thought the dizziness would only happen while doing the exercise itself, but it goes on for hours and days with each increase.

Well thanks for any help and advice you may have.  Hope you doing well and not in the dizzy caos.

Patty

You maybe getting a bit confused. A vestibular dysfunction simply means something in not functioning properly, It's a symptom, not the cause.

The cause could be:

VN - Vestibular Neuronitis

Labs - Labyrynthitis

MAV - Migraine Associated Vertigo

These all cause a vestibular dysfunction.

The VNG test they want to do on you is to check whether or not your ear gubbins which are responsible for balance are working properly. or is one ear doing all the work.

Anxiety is path for the course with this. As horrible as it is, it's perfectly normal, it's just your body's way of protecting you, over protective I would add but perfectly normal.

Both stress and anxiety will exasaperate your dizziness and that is perfectly normal.

Getting dizzy and anxious while standing up is also path for the course. Its horrible but it does get easier. Did you know that standing on the spot is one of the hardest things we do. To keep us anchored, we use our eyes, our balance gubbins (in the ears), our muscles. These things all work together to keep us steady. Now if one of these are comprimised, its a no wonder we're swaying all over the place.

Walking is a nightmare too, I was always swerving off to the right but that'll fix itself in time too.

Our brains are clever things and they just need to recallobrate but it just takes time.

Try not to stress, its not worth it, the only thing that will thrive on it is your anxiety.

I hope you don't mind be jumping in but I have experienced everything that you've described and I promise you, you will feel better. It just takes time.

Thank you so much for explaining things.  I knew the vestibular dysfunction couldn't be a diagnoses, but a put of one of the disorders.  But since I couldn't finish the test, they can't tell me much.  I have noticed one thing about all this, all of the things they do to try to fix it are the same, VRT and meds and time.  So I guess it doesn't much matter what its called.

But anxiety is awful with this.  One day I same okay, and then the next its panic city.  It makes no since.  I have had GAD since 1999, when my thyroid stopped working and I was having anxiety then until finally some doc listened and was able to help me.  The anxiety stopped once I got the meds right.  Then again when the peri meno started in 2008, got that handled, I had dizziness then also and going back thru my records it was the same, rocking/swaying thing, but not as bad and that time I was told it was BPPV and had an eply and did bradt dorf exercises and ti went away.  But this has taken over my life.  Its been going on for 9 months and i"m so tired of it.  I think what I hate most is, its always there in some form, whether it be rocking feeling all day, now I'm having falling sensations, or can't look up and down while working coz it make me feel like I'm moving side to side, or the headache that I get, its not like a full headache,its like one where you feel it coming but it nevers goes full pain, it lives in the top and front of the head, causes the dizzines to be worse, have head pressure with it at times, also neck pain and tension, sometime nausea and at time my vision is kind of a grey like smokey thing, so maybe thats why the ENT wanted to give me topamax, he said could be migaine vertigo,  but I have it daily, is that normal for MAV.  

I won't be trying the topamax, it has some really bad reviews and has so many horrible side effects.  

I thank you so much for the info you gave me and I do hope this gets better.  Right now after doing the VRT with the therapist on tuesday and having first the dizziness so bad that night I could hardly get around, then I had it some yesterday and the falling sensation started again last night and still this morning, it makes me not want to continue thre VRt,but I will it will just be slower so I don't have dizziness for days on end.  I thought it would only be during the exercises, but apparently it goes on after and for days.

Thanks tho for all your info.

Patty

Good luck with your appointment :-)