Primary Addisons Disease ignorance
Posted , 3 users are following.
I just got the realisation of how I have been fighting my diagnosis of Addisons disease for 8 years. Maybe going to a therapist that worked on massaging my adrenals didnt help, when she told me that my adrenals were still working afer the massage I couldnt sleep till 4am even though I didnt take my evening dose I had only 10mg in the morning. So I actually thought she was right. However after 8 years I now have had a reality check and just got an app on the front of my phone that shows who I am and everything I need in an emergency and am ordering my ID tag for my wrist, hate being labelled I have to say, but heyho i have to get used to it.First time of putting my injection kit in my bag. Wow this is big stuff for me to do. I have been so lucky after breaking my foot and illness's without double dosing luckily I was fine..I refused to believe I couldnt get better with eating right etc what a fool I was I could have killed myself I only take a low dose of Hydrocortisone of 12.5mg a day and 0.25 mcg of Fludrocortisone because of high BP. but recently started having headaches after coming down on Fludro but once I took Hydrocortisone the headache went, reality then took place. However hard it is to take on such an illness within your life and I found it very hard and however hard you fight the diagnosis the fact is I have it and I have to get over the grief of it. My day 1 starts as an Addisonian..
0 likes, 2 replies
rosie34970 kenzii92818
Posted
It is a big thing to accept isn't it, but it is great that you've been able to sort things to look after yourself now. There seems to be some really good support organisations out there - I spoke to a really nice woman from pituitary uk and hope to join some support groups with others in same boat. Hope you're feeling better now you've come to accept things :-)
ScattyFairy kenzii92818
Posted
Through grief, denial and acceptance that makes you one very wise person 😊