Primary progressive or relapse remittant
Posted , 3 users are following.
Last year in August I was diagnosed with ms, looking back on it I was showing signs for about 3-4 years before that.
I haven't been able to walk distances without an aid (I look drunk), i havent had a good day for about a year and half, my legs feel dead, my hand shakes uncontrollablyand I have optic neuritis in my right eye which recently gotten worse.
My specialist wasn't sure and is torn between rrms and ppms he's is now unsure as my neuritis has gotten worse but I still have issues walking and with my bowels and bladder.
I am sorry for the long post, I would like some input from people who have lived with it or had more experience with the condition.
Thank you for your time
0 likes, 5 replies
Pj887
Posted
FaithInHim Pj887
Posted
Hi Pj (((huggs)))
First let's be positive ~ At least "We" have a diagnosis. I have RRMS too. So many are suffering and not getting
any answers and not knowing if they do or do not have MS. I too walk off balance and at my worst attack I could not walk a straight line if I had to. Can I put your mind at ease by saying that no matter where the progression is,
what stage it is, at the end of the day, it's still MS. I was diagnosed on May 3rd, 2017 but I too had symptoms for at least the last 5 years. I have other medical conditions unfortunately that prohibits me from taking any medications to slow down the progression. I guess that's why I said "Its MS" It is my belief that a strong positive attitude along with a sense of humor definitely helps. You have to find what works for you and then commit to it.
Sit in a chair and do leg lifts to strengthen muscles. Get as much sleep as you need. Do something that you really enjoy, listening to your favorite music, online games, and having support is important. So glad you came to this site as there are a lot of good people here willing to share their experiences. May I suggest keeping a daily
personal journal. Write the day, date, time and what you are experiencing. List any new symptoms, and when you see your Dr bring it with you to discuss. My right eye bothers me as well with sharp pains, blurred vision and most recently when I close my eyes I see a bright white spot as if someone took a flash picture. Well this is long enough for now, but am more than willing to share more with you., Keep in touch and Best Wishes to You
Pj887 FaithInHim
Posted
FaithInHim Pj887
Posted
PJ please ask more questions, vent, yell, rant, ramble on ..... We are here for you and please do post more
and keep in touch.. Anytime come back and talk with us. ((((( huggs))))))
NatKS Pj887
Posted
Have you tried changing your diet? Bo meat, no white flours, no sugar, no dairy. Only eating organic fruits and vegetables and maybe seeing holistic practitioner.
While I worked and was having optical neuritis I used an eye match on the eye that was affected and had any lights over my head removed and had glare screens on my computer. I was pregnant and that was my second time having optical neuritis, it was not safe for me to do any medications at that time for my baby to be born healthy. The first time I had optical neuritis I took prednisone after being on a 5 day solumedral IV treatment.
I pray you get well soon. Lastly I believe in Jesus Christ and that He is my healer and Savior and I have other believers praying for me.