Prinzmetal angina
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I have Prinzmetal angina. My first attack was when I was 44 but not diagnosed until I was 51. I just recently found out i have eNOS T786C mutation which most likely is causing the vasospams. I'm curious if anyone else has been diagnosed with this mutation. A doctor that is doing research on Prinzmetal patients recommends taking L-arginine. Anyone else take this supplement? If so has it helped? I have never had an EKG during an attack and was wondring if ST segment elevation is ALWAYS present on an EKG during spasm?
1 like, 64 replies
priscilla04738 Sheri54949
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I have microvascular angina (MVA) which is spasms of the micro arteries. I'm not sure about the mutation, but I am currently taking a cardio cleanse which a naturopath has given me and are trialling it, which does include L-arginine and other amino acids. I didn't take them last night and found my angina was worse today, but have not taken it long enough to test it out. I am only half way thru the bottle, so will be interesting when I'm finished them. Can get some more if I want, but I want to see what happens. EKG's don't always show up anything, I normally have ST depression when I get a bad attack, but usually normal for milder ones. I have had MVA for a year and am 50.
Sheri54949 priscilla04738
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priscilla04738 Sheri54949
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samuels Sheri54949
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Technically there is a difference but a lot of cariologists put them both in the same basket, Prinzmetal Angina and MVD as we call it here are the type of Angina that differs from the other Angina,Prinzmetal Angina and MVD comes on while at rest usually between the hours of 8pm through to 8am, it's unpredictable where as the other Angina is predictable ( exercise etc induced) ...I think for better words Stable Angina ...activity induced and predictable, in this case cardiologists recommend you take one spray before going out in the garden or mowing the lawns, etc etc then you have unstable Angina...Prinzmetal Angina, occurs at rest, can come on during activity but mainly while at rest and totally unpredictable. Depends on the cardiologist they use different terms, stable, unstable variant angina, maybe a couple of others that I have forgotten about. If GTN doesn't help I dare say that it's not your heart acting up in the sense of having angina or MVD..unless you have like me built up a tolerance to it...after 16 sprays GTN only works for me for 5-10 minutes if I have a bad attack, Nicorandil has helped my night time spasms so no more late night visits to our emergency departmentfor me since I've been on them, however I still get a bad attack once a week , usually the GTN clears up my Prinzmetal Angina after about 2-4 sprays, the only thing that settles down my big once a week attacks is morphine or endone, because it's summer time here where I am I'm expecting less attacks as warmer weather seems to help,I still will get the occassional attacks but the GTN clears it up unless it's a real stinking hot day as really hot days and cold days can trigger Prinzmetal Angina/Vasospasms.
andrew22534 samuels
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samuels andrew22534
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I thought the same
bt have been digging around lots about this Prinzmetal Angina and found that extreme heat could well trigger spasms as well, Australia is well know at times for getting exreme heat in the summers. I'm not to fussed about our summer I'll just sit inside and adjust air conditioning accordingly...not to cold though
cher42845 priscilla04738
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samuels cher42845
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If that 12% is worldwide I'd be in it , very rarely is ST elevation found in my Prinzmetal attacks, sometimes but not very often I have an ST elevation, sometimes ECG by paramedics have shown some PVC ( I can't remember what is meant by that ) also occassionally they have picked up bundle branching as well.
My cardiologist told me that you may not ever see any ECG changes at all during an attack.
cher42845 samuels
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samuels cher42845
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Mind you this is only 2 cardiologists, some ER doctors and other Cardiologists seem to think ST elevations need to be seen to make a diagnosis.
I had a run in with an emergency doctor here about 2 momnths ago, he carried on like a pork chop and was going to send me straight back home as soon as I was bought in by ambulance, He also said there's no need to do a blood test, my reply to him was I think you better check my records before you go sending me home without having a look at me, he looked at my records, a blood test was ordered. Cardiology has put a note in my file that one blood test must be carried out before giving me the all clear to go home.....I swear some of them only read what they want to read on our files.
cher42845 samuels
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samuels cher42845
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Sheri54949 cher42845
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Guest Sheri54949
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samuels Sheri54949
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Dr Google is your friend
One of my cardiologists has told me the same thing as well, Prinzmetal Angina will not always show up on an ECG, usually, according to studies you get ST elevations in a Prinzmetal Angina attack but I have since learnt this is not always the case, if they can't pick up an NSTEMI on an ECG how can they pick up Prinzmetal Angina on an ECG.....that's my train of thought anyrate
Don't always rely on an ECG especially when it comes to Prinzmetal Angina.
bronniep samuels
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16 sprays of GTN?? How come your hed doesn't blow off your neck with the headache that would bring on in the majority of people Samuel? You must be highly tolerant to it!
samuels bronniep
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andrew22534 samuels
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how true that is... i had the advice from an A&E consultant that if three pairs of sprays in 20 minutes doesnt work then to come in..... i said if tha twere the case i would bein every day virtually and certainly would be a regular... he took a while to think about it and said well... er.... maybe you should cos you can be doing heart damage by not having it checked... another one was cross and said why od i keep coming in when i know whats going on... i said well i dont really know and so when it is bad enough that the lack or blood is making me faint.... the grumpy one didnt know what to say and just waved his hands... so i go even less frequently now i phone and try and sneak a few momenst of cardilogist time on the phone...... he is, luckily for me, very good.... but it is a challeneg to know what and when is enough and yer should go get more help...
jaydeez Sheri54949
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A doctor at the hospital explained to me that the reason nothing shows up on a ECG or Scan is because the arterie's randomly spasm causing pain/discomfort etc, but this doesnt last very long and usually by the time you get to hospital to have an ECG the spasm's and symptoms have stopped because the arteries are no longer spasming therefore they look completly normal and healthy. The doctors did about 10 ECG's and scans over about 1-2 month's of being in and out of hospital and they all came back completly normal. but then they one day the spasm's and symptoms started while already in hospital and they managed to do an ECG while it was happening and they could clearly see that it was Prinzmental Angina
alex_38985 cher42845
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Hello there. I think I may be experiencing the same thing. How and where were u diagnosed? I'm from California. And I've had a bunch of cardio work up. All within normal range. I'm also 19 years old