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I have quite a cardiac history - rheumatic fever; malignant hyperpyraxia and recently breathlessness. I have sort of got used to the symptoms such as not being able to breathe in properly, extreme fatigue, jaw, neck and left arm pain etc. I should say that I also have autism, arthritis, drug induced haemophilia spina bifida, snapping hips etc etc. Well anyway my balance is iffy so most time now I use a mobility buggy although 3 weeks ago I was out without my buggy (my chest was too bad to enable me to lift the rechid thing into the car) when I got the breathlessness, went grey, clammy, felt nauseous and lost feeling in my left leg.
I was out at a charity event and the completely incompetant first aider put it down as a panic attack without troubling to get any medical history.
The scary thing is I then drove home and it was 2 days before we got seen by our own GP. She dispensed a GTN spray and referred me to the Rapid Access Chest pain clinic. This clinic are refusing to see me and have put me on their general list with a wait of about 6 months despite the fact that I have a learning disabled care plan in place that specifies every consultation be treated as a emergency because of my anxiety and because the autism can mask or muddle the symptoms often not showing their true extent.
I now find that I am regularly getting a "total power switch off" to my left leg causing falls and these take longer and longer to improve. Some days I can be half an hour waiting for my leg to start working enough for me to stand up.
Any advice on what I could do to make the hospital wake up and take this a bit more seriously?
I have already been diagnosed with "Sudden Drop" in January and had both a 24 hour 3 lead and a 12 lead ECG at that time
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