Problems diagnosed as Osteoarthritis CAN be cured in some cases.
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If you're a proactive individual that's been diagnosed with incurable Osteoarthritis it's *possible* that you can in fact beat the diagnosis and get back to full fitness and functionality. It happened to me.
I should add that I was diagnosed at age 42 and was very fit and active at the time. I think it might be very different for older individuals, people who's condition is advanced, or people that don't enjoy exercise.
Here's my story. I can't make any promises that it'll be the same for you. But I will if people are interested share some of the resources that helped me to beat what I considered to be a life shattering diagnosis, for which I was assured there was no possibility of a cure. I don't know whether to believe I was misdiagnosed and never actually had Osteoarthritis, or whether they're wrong when they say Osteoarthritis is incurable. What I can say is that I was told my symptoms were 'classic' and that the diagnosis was certain - that my symptoms couldn't be explained by anything else. The whole area is so poorly defined and slap-dash that it's impossible to tell. Either way, it means there's at least hope of beating it if that's what you want to try and do.
I've spent 8 years battling against the people that were hell bent on brow beating me into believing I had Hip Osteoarthritis when I knew I didn't. My real problems were ignored - I was essentially left to rot. I was treated like an idiot. Told I researched too much. That I was in denial. Told that I was making my problems worse by training to keep myself fit, strong and active. Told I should swim and cycle and give up all other sports. I was asked repeatedly "You've had numerous experts try to help you - don't you think one of them would have succeeded if this really was curable?".
Finally I've been vindicated. I figured it out for myself. A simple, treatable muscle imbalance causing all of my problems. Obviously I wanted to let the people know that have tried to help over the years. I expected them to be amazed - a breakthrough that could help lots of people. These cases that we think are incurable can in fact be fixed!!
My excitement was met with apathy: [paraphrasing]. "The reality is that most people are inactive and unwilling to put in the work needed to address muscle imbalances like this. Even if the correct diagnosis was made, for most people the end result would be the same. People who are willing to put in the work necessary to reverse the condition are so few and far between that they aren't statistically significant to make it worth the cost of training and research. We were unable to solve your problem because we've not been adequately trained to do so. But well done for hanging in and figuring it out yourself."
Why wasn't I told this BEFORE I discovered the solution for myself? Why did they try to convince me I had incurable OA when they knew how determined I was to beat it?
Here's the reality as I now understand it (as it's been explained to me). This may not reflect every health professionals view, but it is a summary of what I've been told by various health professionals:
GP's are responsible for diagnosing OA. Yet they know very little about bio mechanics (unless they've got an interest and educate themselves).
They don't understand the condition in great detail, but they don't need to. They're working to a script. It seems not to be widely known who writes that script (so who to go to with questions or doubts)...which is a little bit of a worry.
Some know that often it's a misdiagnosis - more forward thinking GP's are aware that it's frequently a treatable soft tissue issue. But like the physios, think it doesn't matter too much as for most patients it makes no difference. They lead inactive lifestyles and any attempts to restore them to full functionality will fail. There is little point in wasting resources trying to give an accurate diagnosis when the end result will usually be the same regardless. So OA is the 'catch all' category you put them in. There is no cure - you manage with drugs and operate if and when necessary.
Even when someone is in great shape, keen to be proactive in their treatment and has an active lifestyle worth preserving there's nothing to be gained in finding the correct diagnosis as there is no one to refer them to to get it fixed. People worth bothering with (because they can be restored to a good, active life) aren't statistically significant enough to be worth the research and training needed to put systems in place to help them.
So, the GP's make the OA diagnosis despite not necessarily knowing much about OA. Who are the specialists then if you're determined to find the real cause of your joint stiffness or pain? Well, there's a bit of an oversight there. There is no one.
Orthopedic surgeons know about surgery. If your problem is an easily curable soft tissue issue they probably won't know enough to detect it. They may well put you under the knife unnecessarily. Or tell you that you have an incurable problem that will deteriorate over time - that your active life is over (that's what happened to me). But this is more a case of them forcing your problem into something that fits their specialist knowledge. Not a proper diagnosis.
Then there's physios. They aren't trained to detect and treat curable soft tissue problems that lead to joint wear and might otherwise be diagnosed as OA. However, some are better than others. Some might actually be very capable. It's pot luck. I think it's unlikely to find someone with these skills working for the NHS, but I may be wrong. I have been told (by a physio) that the failure rate in these cases is 99% within the NHS.
There are people out there that do know how to diagnose and treat these soft tissue problems. And there's plenty of info on this on the internet that you can use to help yourself. It's down to the individual to separate the wheat from the chaff. Contrary to what we are led to believe, OA isn't an incurable degenerative disease. Strictly speaking it doesn't exist. It's a 'catch all' diagnosis used to put people with joint problems in when there aren't resources and training to find out and fix what's really wrong with them. Contrary to what we're led to believe, there is no category of the medical profession with expertise in the multitude of conditions commonly labeled as OA. If you think you've seen an expert and had a reliable diagnosis of OA - think again.
There is no easy fix - that's true. There is no way of knowing if yours is a curable soft tissue problem without trying to fix it. I'm led to believe that official research into OA is centered around keeping this 99% of people that are deemed incurable (because they are perceived to be inactive and unwilling or unable to adhere to the required rehab plan), as pain free and independent as possible at minimum cost. It's simply not cost effective to put time and effort into finding the cause, the cure, or training people to make diagnosis and cure soft tissue problems in the cases where how to do so is already known by some.
But there are people out there that have figured out how to diagnose and cure at least some of these cases. Some speculate that all OA is initially a soft tissue dysfunction. However, this is mainly in the private sector - or perhaps in the NHS, but on an unofficial level. You're faced with the dilemma of separating the fakes from the real deal. Most will claim to be able to help - and many will diagnose incurable OA when they fail. That doesn't necessarily mean you can't be helped. Many tried and failed with me before I figured it out for myself.
But if you're willing to work at it yourself - or maybe even find the right person (which is very difficult) then it is quite possible that what you have is very curable.
31 likes, 607 replies
clea28600 susan67756
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I'm also on this hip journey and indeed it's turning into an adventure for sure! My story is very similar to your. I was also very active and trained as a yoga teacher but had to also do alot of sitting due to rehearsing with my dance'theatre company. Groin pain lasted 3 years and gradually got worse with pain shifting from front (groin) to back (sacrum) and the same- after sitting and now so bad I am walking- not very far- with a stick ! Once I'm on the floor I'm fine and have started Hanna Somatic training= which is something I know you would find very interesting. It's hard to get your brain into at first but there is definately something there- if nothing else, increased sensitivity to listening to you body. I have the trigger point book and have good results -- though, as you say fleetingly. Once I stay walking again the pain reurns. Realise my pelvis is stuck and not floating from side to side when walking- through Somatics I also realised this can be due or exagerated by problems in the opposite part of the body- eg left hip and right shoulder. I would love to read your blog and your book when you get roubd to it - I think you have a talent for understanding your body which somehow is taking me years! Also- hips area is very complex- so many muscles come into play. Somatics works alot with the torsoe and lateral / side muscles. If you have time look up Martha Paterson's blog on Hanna Somaics - google her and it will come up. Am wondering where to turn with physio's etc... will try McTimmony chiropracter who work very gently on spine and plevis. Please keep me posted and thanks for sharing your quest!
susan67756 clea28600
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I think the way our bodies moved is based around gait. When you have twisting in the pelvis gait is thrown out. With every step you take you re-enforce the problem. Yet you need to walk and stay active for health - and to keep the joints nourished. It's a catch 22 situation.
You are so right that the problem is caused by the 'good' side as much as the symptomatic side. In fact, the problem is caused by imbalances throughout the whole body - from shoulders to feet.
There are lots of ways to address the muscle imbalances - somantic training is one of them. Also massage, stretching, strengthening, movement re-training. That's the easy bit!
The key to sucess is understanding exactly what is wrong. You can't correct muscle imbalances until you know exactly what is out of balance.
That's what I think I've figured out - the exact details of what happens when you get twisting in your pelvis. It will vary from person to person according to a variety of factors but the basics will be the same for all. I'm working hard to explain it all clearly in a book. It's a complex problem and difficult to explain clearly. I'm having to do lots of diagrams. But it should be ready by the end of the year.
It's not a simple fix - as I said, it's re-enforced with every step you take - every movement you make. Every muscle in your body is trying hard to hold onto the bad patterns - your brain thinks the bad patterns are keeping you safe! But for anyone that's happy working consistently at improving I think a thorough understanding of the imbalance will help them massively improve symptoms and movement and in many cases complete cure should be possible.
I spent about £4000 on various health pros - none got results. It's a long haul fix and most of these guys aren't geared up to help people find a resolution. It's a constantly moving target so you can't give someone an exercise sheet and leave them to it - you need to keep monitoring and adjusting. When a hip siezes up to the point where it's diagnosed as OA you have a kind of deadlock situation and you have to progress in tiny steps - constanly adjusting what you do as the body improves it's alignment. Who can afford that level of treatment- especially when there are no guarantees it will work?
With these complex imbalances I think it's best to try and understand the imbalances for yourself - once you know what's wrong (which is actually very predictable when you look at it from the right perspective) it's just common sense and a little bit of basic understanding of treating muscle imbalances......and patience and hard work!
A bit like opening a stuck draw - wiggle a bit here, a bit there and very, very gradually it comes loose. Use stretching, strengthening, massage, somaics - whatever seems most appropriate at the time. When you know exactly what is wrong you can inteligently select your tools and ensure that you're always taking the most appropriate steps to get your body 'unstuck'. If you just use brute force and tug it sticks fast.
Thanks for the details on hanna somaics - I'll take a look!
clea28600 susan67756
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you are absolutley right - the therapies would work much better if one knew
where imbalances were- otherwise it's also possible to "overdo" things in desperation!
I'm gradually learning to hold back - also have the problem of being hypermobile so the body is used to going to far !
I hope you can let everyone know about your book- that's a wondeful gift to those of us on the search. Did anyone evr suggest to you you have a labral reat? That was another diagnosis I was given by a physio. However the penny dropped when I read your posts that all these names are just labels - our obsession to label and then put into a drawer ! I think the best advice an NHS doctor gave me was "learn to live with it". Sounds funny but it clearly closed the door to me on the conventional approuch which always seems to boil down to Xrays (normal) and doing the "clam" excersie! The amount of times I've been told to do that one !!
Anyways- really look forward to your book. Gait is the thing- every step re-enforces the pain. Thanks again !
clea28600
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susan67756 clea28600
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The clamshell was actually part of my cure, but when you have a twisted pelvis the hip that the pelvis is rotating away from is 'stuck' in external rotation and the hip that the pevlis is rotating towards is 'stuck' in internal rotation. Whilst that hip is internally rotated and the other externally rotated the gap between sacrum and femur (attachment points for glute max) are too far apart. Amongst other things, the overly tight glute max on the externally rotated hip is pulling the sacrum over to it's side. In a way it's a tug of war between a powerful glute max on one side and a weak, damaged glute max on the other side. Strengthening the weak glute can't happen until the pelvis is aligned a little better.
There are umpteen 'battles' going on like this. They all need to be gradually unravelled.
Lets assume your pelvis is rotated to the right. Your right hip is jammed in internal rotation and your left hip in external rotation. Your right foot *should* land with hip externally rotated, pelvis rotated forwards on the right and knee pointing directly forwards. However, because your left hip is jammed in external rotation the pelvis can't rotate forwards on the right side as the right leg swings forwards. Right foot lands with pelviis rotated back on right, right hip in INTERNAL rotation and knee pointing inwards. As the right foot tries to push off into extension the pelvis is supposed to rotate forwards on the left - this would require the right hip to go into internal rotation - yet it's already jammed in internal rotation so there's no place to go.
I'm not sure if that will make sense to you. But in short, when walking think about what your good leg is doing too. Because it doesn't hurt you assume it's doing the right thing but logic dictates that with a twisted pelvis both sides must be equally wrong but in a mirror image way.
As one leg reaches forwards when you walk the pelvis should rotate forwards on that side. Chances are your 'good' hip isn't letting that happen causing the right hip to get into a disadvantaged position which causes pain and restriction.
Just one possibility but perhaps a clue to help you until I get this book finished!!
Re spelling - wouldn't spot a spelling mistake if I saw one. I'm totally dependant on spell checkers which unfortunately this forum doesn't have!!!
clea28600 susan67756
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I have done some gait work with a physio in Aberdeen and some of the excersises she gave me hurt like hell. I also think that being "loose" makes these pelvis imbalances very easy. I have suffered from them since I was a child and have had oesteopathic treatment since I can remember. Recently, due to our rural location, I have not been able to find a good oesteo in the area. Did you manage to get your pelvis strainghtened out through help of any kind ? From what you say it's not a good idea to do too much strength work without addressing the imbalance first - I can do these clams quite easily and have laid off for a while to see what happens. Your insight is better then anyone I've seen about this problem- have you ever thought of doing this professionally ? Amazing work- thanks so much. It's so empowereing to know your body like this.
clea28600
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susan67756 clea28600
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My feeling is that the most gains - especially if you're considering yourself loose rather than tight - will come from activating and strengthening the weak and lazy muscles.
Reciprocal inhibition is where a muscle shuts down and stops working because it's overpowered by an antagnoist. If this is happening then stretching and relaxing the antagonist can bring the lazy muscle back online.
In someone not prone to tightness the most likely scenario is that a muscle is tightening up to take up the slack for a lazy muscle. Until that lazy muscle starts pulling it's weight the muscles that are compensating (and pulling your skeleton out of alignment) will refuse to stretch and relax.
So for example, assuming your left hip really is externally rotated then your goal would probably be to strengthen and activate the internal hip rotators (reverse clamshells for example). But it's more complex than that as so many muscles and joints will be involved. Also, with the pelvis twisting it's easy to be mistaken over what way your femur/hip is rotating. All the specialists insisted I had LACK of internal rotation in my right hip when in fact it was jammed in internal rotation.
When I get this book finished I think it'll help you a lot to figure out what's happening. I'm currently working on diagrams showing the skeleton and muscles - to give a good visual clue as to what's going on. It's taking me forever though!
clea28600 susan67756
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please keep us updated about your book. I think you will have a great readership with all the in depth work you have done. Let me know your thoughts about the Hanna Somatic training- Martha Paterson has also been diagnosed with OA and labral tear but moves with ease.....I did a workshop with her in the summer and there is something very good about this training- maybe for us, once the main issues have been worked on- it can be used for "maintance" and awareness. Alot of their work is about relaxing - the torsoe muscles to release the hips. Just read the post that Jaquie sent you- it's so telling that AFTER her hip op she still has trouble- the idea of just cutting the problem out and replacing it (is enough) is so dumb - Anyways- will stop now- thanks again for your help- really look forward to the book and good luck with it !
jacquie16342 clea28600
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Yes - I am living proof that even after major surgery of replacement hip I am still riddled with OA - or at lesat this is what my GP says. I have resisted painkillers and exercise as much as I can but at only 63 feel really old some days.
Mind you - I dont really feel sorry for myself - I work in a childrens hospice - I am lucky to have lived for 6t3 years,
It is great to read everyone's story and get help and advice - sadly the NHS dont seem to know what to do with us?
dl28741 susan67756
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Thank you
kerrie240556 susan67756
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thank you
ethel70667 susan67756
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tom23917 susan67756
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applejack susan67756
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he has no pain in hip, only in groin... can't hardly tie shoes, the pain in groin so bad. hard to lift leg sometimes... he is now going to a physical therapist, we have no physio's here. i'm giving him chicken bone broth to build cartalidge, and ginger/tumeric tea drinks for inflamation... he sits for his job and flies in plaines a lot. any suggestions.. what was your x ray findings, what excercises helped you??????? desperately yours cindy