Problems diagnosed as Osteoarthritis CAN be cured in some cases.
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If you're a proactive individual that's been diagnosed with incurable Osteoarthritis it's *possible* that you can in fact beat the diagnosis and get back to full fitness and functionality. It happened to me.
I should add that I was diagnosed at age 42 and was very fit and active at the time. I think it might be very different for older individuals, people who's condition is advanced, or people that don't enjoy exercise.
Here's my story. I can't make any promises that it'll be the same for you. But I will if people are interested share some of the resources that helped me to beat what I considered to be a life shattering diagnosis, for which I was assured there was no possibility of a cure. I don't know whether to believe I was misdiagnosed and never actually had Osteoarthritis, or whether they're wrong when they say Osteoarthritis is incurable. What I can say is that I was told my symptoms were 'classic' and that the diagnosis was certain - that my symptoms couldn't be explained by anything else. The whole area is so poorly defined and slap-dash that it's impossible to tell. Either way, it means there's at least hope of beating it if that's what you want to try and do.
I've spent 8 years battling against the people that were hell bent on brow beating me into believing I had Hip Osteoarthritis when I knew I didn't. My real problems were ignored - I was essentially left to rot. I was treated like an idiot. Told I researched too much. That I was in denial. Told that I was making my problems worse by training to keep myself fit, strong and active. Told I should swim and cycle and give up all other sports. I was asked repeatedly "You've had numerous experts try to help you - don't you think one of them would have succeeded if this really was curable?".
Finally I've been vindicated. I figured it out for myself. A simple, treatable muscle imbalance causing all of my problems. Obviously I wanted to let the people know that have tried to help over the years. I expected them to be amazed - a breakthrough that could help lots of people. These cases that we think are incurable can in fact be fixed!!
My excitement was met with apathy: [paraphrasing]. "The reality is that most people are inactive and unwilling to put in the work needed to address muscle imbalances like this. Even if the correct diagnosis was made, for most people the end result would be the same. People who are willing to put in the work necessary to reverse the condition are so few and far between that they aren't statistically significant to make it worth the cost of training and research. We were unable to solve your problem because we've not been adequately trained to do so. But well done for hanging in and figuring it out yourself."
Why wasn't I told this BEFORE I discovered the solution for myself? Why did they try to convince me I had incurable OA when they knew how determined I was to beat it?
Here's the reality as I now understand it (as it's been explained to me). This may not reflect every health professionals view, but it is a summary of what I've been told by various health professionals:
GP's are responsible for diagnosing OA. Yet they know very little about bio mechanics (unless they've got an interest and educate themselves).
They don't understand the condition in great detail, but they don't need to. They're working to a script. It seems not to be widely known who writes that script (so who to go to with questions or doubts)...which is a little bit of a worry.
Some know that often it's a misdiagnosis - more forward thinking GP's are aware that it's frequently a treatable soft tissue issue. But like the physios, think it doesn't matter too much as for most patients it makes no difference. They lead inactive lifestyles and any attempts to restore them to full functionality will fail. There is little point in wasting resources trying to give an accurate diagnosis when the end result will usually be the same regardless. So OA is the 'catch all' category you put them in. There is no cure - you manage with drugs and operate if and when necessary.
Even when someone is in great shape, keen to be proactive in their treatment and has an active lifestyle worth preserving there's nothing to be gained in finding the correct diagnosis as there is no one to refer them to to get it fixed. People worth bothering with (because they can be restored to a good, active life) aren't statistically significant enough to be worth the research and training needed to put systems in place to help them.
So, the GP's make the OA diagnosis despite not necessarily knowing much about OA. Who are the specialists then if you're determined to find the real cause of your joint stiffness or pain? Well, there's a bit of an oversight there. There is no one.
Orthopedic surgeons know about surgery. If your problem is an easily curable soft tissue issue they probably won't know enough to detect it. They may well put you under the knife unnecessarily. Or tell you that you have an incurable problem that will deteriorate over time - that your active life is over (that's what happened to me). But this is more a case of them forcing your problem into something that fits their specialist knowledge. Not a proper diagnosis.
Then there's physios. They aren't trained to detect and treat curable soft tissue problems that lead to joint wear and might otherwise be diagnosed as OA. However, some are better than others. Some might actually be very capable. It's pot luck. I think it's unlikely to find someone with these skills working for the NHS, but I may be wrong. I have been told (by a physio) that the failure rate in these cases is 99% within the NHS.
There are people out there that do know how to diagnose and treat these soft tissue problems. And there's plenty of info on this on the internet that you can use to help yourself. It's down to the individual to separate the wheat from the chaff. Contrary to what we are led to believe, OA isn't an incurable degenerative disease. Strictly speaking it doesn't exist. It's a 'catch all' diagnosis used to put people with joint problems in when there aren't resources and training to find out and fix what's really wrong with them. Contrary to what we're led to believe, there is no category of the medical profession with expertise in the multitude of conditions commonly labeled as OA. If you think you've seen an expert and had a reliable diagnosis of OA - think again.
There is no easy fix - that's true. There is no way of knowing if yours is a curable soft tissue problem without trying to fix it. I'm led to believe that official research into OA is centered around keeping this 99% of people that are deemed incurable (because they are perceived to be inactive and unwilling or unable to adhere to the required rehab plan), as pain free and independent as possible at minimum cost. It's simply not cost effective to put time and effort into finding the cause, the cure, or training people to make diagnosis and cure soft tissue problems in the cases where how to do so is already known by some.
But there are people out there that have figured out how to diagnose and cure at least some of these cases. Some speculate that all OA is initially a soft tissue dysfunction. However, this is mainly in the private sector - or perhaps in the NHS, but on an unofficial level. You're faced with the dilemma of separating the fakes from the real deal. Most will claim to be able to help - and many will diagnose incurable OA when they fail. That doesn't necessarily mean you can't be helped. Many tried and failed with me before I figured it out for myself.
But if you're willing to work at it yourself - or maybe even find the right person (which is very difficult) then it is quite possible that what you have is very curable.
31 likes, 607 replies
Emis_Moderator
Posted
I've put the full link in the post but instead of trying to "trick" the system and post links, as I advised above, just write your post then send the link via the message service if you don't want the delay of moderating.
Regards,
Alan
fran64082
Posted
I found the Osteopedia both mind-blowing and dauntingg. This will take time (perhaps never!) to understand, but I did find several pages that seemed relative to my injury. Not sure about the manipulation techniques described, because they do seem in most cases to require a manipulator. But I am definitely going to try some of the movements. I was originally considering gentle stretching, but I now see this is not recommended if discomfort results.
Not that I expect you to respond to this, but my limitations - movements that cause sharp pain - are as follows:
Lifting the foot (standing or sitting) across the opposite ankle, calf...as in putting on socks. Sharp pain occurs mainly in the groin, and somewhat in the hip. I do tend to put the sock on the floor and wriggle my toes into it first, and then stretch down to pull it on. No doubt a funny sight.
Lifting the knee straight up (standing) is not uncomfortable, although I must lower it very slowly. It's only when I have to lean down at the same time, as in lifting the foot into the left leg of pants.
The main one (and what can be done about that?) is after sitting for a length of time. I must stand up very slowly, place my left foot flat to the floor, heel down simultaneously, and stand up straight slowly. If I forget to do this, my first couple of steps are painful, mostly felt in the groin.
I have been working on stretching my left side, sitting, standing, prone and it feels very good to do. I think I am lop-sided. I normally have very good posture, but now I am really concentrating on sitting very straight, and standing very tall. There is definite improvement all over.
I do get a little swelling in the ankle on the bad side from sitting too long. This is normally not a concern - fluid retention, whatever, but I thought perhaps it's another indicator of the source of the problem.
Last, for now at least, I definitely have this spongey feeling in the groin. Palpating the area (and the hip) reveals nothing to me. I have no idea what I'm feeling for!
I've been doing a lot of "talking" (and occasionally cursing) to my pain. Perhaps it's starting to listen to me.
Whatever the outcome of our chats, you have made such a difference to my outlook. For that alone I am indebted to you.
elkio fran64082
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I just bought the book and would like to check other links you had posted.
How can I get them please?
Thank you
susan67756
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What happens if you lie on your back and lift your knee to your chest? To your opposite shoulder? Lift your knee up, but outwards - so if right leg is your bad leg lifting your knee up and to the outside of your right shoulder.
What happens if you relax and (lying on your back as above) let someone else take your leg through these movements. Is there any difference in pain or range of motion with passive movement?
These were the main restricted/painful movements with me too - mine all turned out to be down to the twisted pelvis. Not a hip problem at all.
You say you're lopsided. A twisted pelvis makes you lopsided. I would try and establish if there's a twist in your pelvis if I was you.
A simple test for sacral torsion.
Your sacrum is the bit at the bottom of your spine. There are two little bony 'lumps' on it. Feel them. Does one side feel more prominent than the other? If so, it would indicate that your sacrum is rotating towards that side.
Is one higher than the other? You'd need someone to help you with this bit really. Try testing lying, standing - if one side is higher that's the way the sacrum is leaning.
You see, the sacrum rotates around a diagonal axis. As you walk, it bends and rotates one way then the other. The right side of my sacrum is more prominent - it's rotating RIGHT. The right side of my sacrum is lower than the left - it's leaning RIGHT. This is a condition called RIGHT on RIGHT sacral torsion.
You wouldn't necessary feel it or be aware of it. You'd be more aware of feeling lopsided. As the sacrum rotates and bends one way, the lumber spine rotates and bends the opposite way, and the thoracic the opposite to lumber.
Stand relaxed with feet shoulder width a part. Just as you'd normally stand. Look down - is one foot forward of the other? Is one side of your pelvis forward of the other?
You said you had an injury a while back. Do you know what muscle was injured?
Later on today I'll post up on my website a video animation of what happens to the pelvis during normal gait. This helps you to understand the implications of having a pelvis out of whack. I'll post the link to the website in the next message - all that's on it so far is pretty much my first post on this thread, but I'll start adding some resources.
sedhu susan67756
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I am utterly delighted at having found a resource that contemplates a potential pathway which considers approaches other than the conventional guff that one all too often encounters.
I tomorrow will send you full details of my sotry, but,  in brief, I always thought myself rather fit and well save that over the past couple of months I developed a pain in the groin and back region (you referred in one of your earlier comments to the sacral points and that is where part of my pain was stemming from) as well as the buttock region. I initially thought the groin pain was linked to a nerve problem but I have just had a three part MRI and since Monday am absolutely devastated  by the news that I may have early stage chrondopathy in the left hip and although no symptoms in the right that I also have  the 'pistol grip deformity' in the right side.
I have not slept for two days and my entire world is shattered. I apologise to readers if this seems like making a mountain out of a molehill, but it is extremely worrying to me. But, I would be extremely grateful for any views/thoughts that might help me to resolve this issue and I sincerely hope it is a misdiagnosis. The reason I have stumbled upon this is because I simply googled 'natural ways to treat osteoarthritis' and ended up here. The hour is late but I have found the comments (particularly from Susan) something that resonates with me. I say this because I have previously been incorrectly diagnosed with cataracts on no less than 3 occasions by different experts(which turned out to be congenital blue dot opacities of nil significance), OA of the knees (which turned out to be nothing more than wearing incorrect trainers and resolved completely within a week after six months of incorrect diagnosis by physiotherapists, GP's and even one Consultant at a teaching hospital who insisted it was bursists and not OA) - both those problems resolved completely and seemngly never existed since I have no knee problems whatsoever and vision has for years since the cataract diagnosis remianed far better than 20/20 (at 6/4).Â
I would be extremely grateful Susan if you can kindly channel me in the right diirection to see if I can resolve what I hope is either treatable naturally or better still, a misdiagnosis.Â
If you wish i can submit the MRI findings from this weekÂ
I thank you sincerely in advance for your understanding and any help that enables me to overcome this since right now I am feeling particularly low - hence why I am in front of a computer at this hour.
Regards
KP
susan67756
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Just to stress - I'm not claiming to cure arthritis on it! More just as I'm saying here - that in MY case either it was missdiagnosed or I managed to cure it. But mine was described as a classic case - no doubt over diagnosis. I'm just planning on sharing my story and the things that I learned over the years.
fran64082
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I am not young, 74 this year, so perhaps you will now lose interest in me. But I am remarkably strong and determined, and happen to believe that age does not automatically mean that we must fall victim to diseases associated with certain stages of life. For instance:
Pap tests and breast exams are no longer offered to women over 70. You must request them. Have cancer? Well, how much longer did you expect to be around anyway?
Hip replacement surgery is often delayed as long as possible; the joint will need replacing in about ten years. If you leave it late enough, chances are you'll have died before the next one is due.
I fought with my doctor over the original diagnose of diabetes II. There is no longer any sign of it, yet last week another doctor looked at my file and suggested we should do yet another blood test. In other words, he doesn't trust the last one. Diabetes cannot be reversed, right?
I refused to take cholesterol-lowering drugs (hate any kind of drugs) and managed to lower it with diet. (I am vegetarian). Doctor doesn't like this either. NHS doctors (if you read the news story) want EVERYONE on Crestor, as a preventative. Don't think the recommendation was accepted.
My friend has just discovered she has kidney disease. Her creatinine levels (she now knows) were abnormally high way back when, but only when she mentioned a particular symptom did they acknowledge the disease had been hovering around for a while. She's 75, with heart problems. Kidney disease is hardly worth further effort.
This is not to say that I believe all doctors are anti-age, or that all doctors make mistakes. But I have never accepted a doctor's opinion on something until I've checked it out for myself. I wanted to be a doctor when I was a kid. God-like creatures to me then. But I matured. They are human, they live busy lives, they don't necessarily keep up with the latest findings. I am startled at how many things I've read about that the doctor hadn't heard of. No doubt they take a deep breath when I walk in - they expect to be answering a lot of questions.
My mother and maternal grandmother died in their late 90s. My older sister is currently doing yet another round-the-world cruise (she does two a year) at the age of 92. As I have expectations of living another 20 years. I would like to be pain and disease free for as much of that as possible. I want to buy another fixer-upper house to renovate. I'm considering the South of France.
If I can beat this groin issue, you will be forever in my thoughts. I would write a book about you.
But nothing's guaranteed, right?
I'll respond to your earlier post in a separate comment. This one got away from me...
BonnieStarseed fran64082
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meredithm fran64082
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Hi Fran, I am new to this board and know the posts I have read are a couple of years old, but wanted to share.
I am 62 with arthritis, mainly in my knees. I am doing everything I can to avoid surgery. Here are a couple of things I have found very helpful:
1. I have gone to a place that has infrared saunas and that was amazing, to the point where I want to buy one for myself.
2. I bought a book a few years ago "living pain free" by Pete Egoscue. He also has a lot of videos on YouTube and a DVD that I just bought. I used the book for a year and have found it very helpful. It's all about getting the body back in alignment. He also has a video chat or something like that, so he can personalize a program for you. I have not tried that yet.
3. I also found a video on YouTube. the one I found the most helpful is where I put about 3 lbs of weight on my ankles and gently swing my legs alternating, with a heating pad over my knees. My knees love this. The theory is that over a long time you might be able to regrow cartiledge
hope some one of these ideas might work. I am always trying to find new ways to get my 62 year old knees back to being 20 !!
fran64082
Posted
Lifting my left knee outwards towards my left shoulder is painful.
Can locate the "Bumps" of the sacrum, but can't feel a difference between them, and I have no one in the house to take a look.
My normal stance, feet apart as you suggested, seems to show the left foot somewhat ahead of the other. I do seem to want to use my left side with everything, going up the first step, moving from my chair. The right side seems to take a back seat. My twin sons are left-handed, and I often wondered (from the way I use my hands) if I was born left-handed but, because of the reasoning decades ago, I was retrained to use my right. Probably has no bearing on any of this, but thought I'd mention it,
I cannot carry a shoulder bag on my left shoulder. It is much lower (I hope not visibly) on that side. When I sit, if I take notice, I tend to position my weight on the LEFT buttock(!). To compensate, I sometimes put a small cushion under it to get the other side to take that weight. So I do seem to have a definite lop-sided posture, again, I hope not visibly.
I believe I injured the groin around fifteen years ago, renovating an old house, very physical work. I am (or was) extremely strong and did things I probably should have thought about first. I don't recall doing it, only that the next day I could barely move. It kept me off work for a good couple of weeks, but i didn't see a doctor about it. Eventually, over weeks it healed, to the point where I could walk normally. It was months before I could no longer feel the pain completely, and I was very careful with it.
Time passed, and I injured the same place again. (Dancing, this time.) Not as bad, but out of action for a few days. Since then, it's been fairly regular, about once or twice a year. I cannot seem to learn how to be more gentle with my body. Years of exercising, stationery bike, light weights, yoga, were all part of my routine until that injury. I was not a fitness nut. I simply wanted to remain strong and flexible throughout my life. I have a very strong back, and good stomach muscles. But this darned groin thing certainly curtailed some of my routines.
The hip pain only started a few months ago. I had overextended the groin again (getting in and out of a low-slung car) and the next day noticed the hip was sore. It seemed to heal. Then we moved house, much carrying and stooping, of course. And then the hip really started to bother me. and pain extended down my left leg. For a while I felt nothing in the groin, only the hip.
Then the doctor looked at the scan, prodded me here and there, and announced OA in that hip. At no time did he mention anything wrong with the groin, which is where the pain is really seated.
Now, with less physical activity now we are settled, the groin is it's old sensitive self again. One or two days with no discomfort, and then back again. (It hates when I vacuum, or walk uphill.) And when it is back, the hip usually complains too.
I've found that I can now manipulate the hip when it stabs at me (say, on rising from a chair) by digging my fingers in. The pain goes instantly. Doesn't work for the groin, of course.
I think I've covered everything.
fran64082
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Hope I hear more from you. Perhaps my age is a downer.
susan67756
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I've had the same as you at fifty years old - even at 42 when I was first diagnosed - "At your age you just want to be able to do normal every day things pain free". Um - no. Actually I want to be doing hill racing, pullups, deadlifting, karate...and I'm doing it now thank you very much!!
I think probably most people at your age have signs of degeneration in the hip joints on scans or x-ray. Most will be symptom free. So I honestly think that is pretty irrelevant most of the time. A red herring.
I DO think that even at my age doctors tend to just call it OA because they don't know what else to do and (As explained to me by a GP friend) "for most people the outcome will be the same anyway. Most people are too lazy and inactive to do anything about it". That infuriated me - she admitted to me that she deliberately misdiagnoses people (especially older people) because she judges that they aren't worth bothering with!
Lots of what you're saying would make me think there's every chance it's NOT OA causing your problems. So much sounds more like soft tissue. The fact that you can dig a finger in to take pain away - that's soft tissue. The fact that it comes and goes. The fact that you *feel* as if the old injury is rearing it's head again.
The fact that you are lopsided strongly suggests twisted pelvis. I think that's worth pursuing. Simply because any kind of lopsidedness - for whatever reason - is putting your muscles and joints under strain. That WILL lead to pain and restricted range of motion and, eventually joint wear.
I feel strongly that any kind of soft tissue / postural problem / movement impairment should be ruled out before an OA diagnoses. Otherwise how can they possibly diagnose OA? It is FACT that things like twisted pelvis can cause pain and restriction in the hip. It has to be ruled out before you can possibly know what else you are dealing with.
I'm very wary of going to see 'experts'. Even more so at your age I think it highly likely that they'd just tell you that hip OA was causing all of your problems. I always found that all I got for my money was people trying to undermine my confidence.
BUT I wonder in your case if it's worth finding a good chiropractor and having a single visit just to see if they can diagnose the reason for your lop-sidedness. Within a year of my diagnoses I went to a chiropractor. Now I warn you - he ripped me off and conned me into paying for over £1000 of treatment that did nothing. So you need to be very careful as this does seem to be the way they work. But he did detect twisting in my pelvis - unfortunately didn't give me any details about the mechanism of the twisting. I didn't know to ask back then. He was trained to identify these kind of problems. Unfortunately 'clicking' the joints didn't have any positive effect. It might be worth the cost of a visit - just to see if they can detect any twisting and give you details of what is twisting where. But if you do this be very, very careful as I think most will have you going back for countless expensive visits that would achieve nothing with promises of miracles. Maybe even take a friend with you so that they're less inclined to think you're an old lady and an easy touch! If you phoned up and asked if they'd be able to detect any sacral torsion or misplaced in-nominates - tell them you just want that diagnosed. They might try and talk you into an x-ray (that would cost you), but that's not needed to detect something like this. So I'd say a big NO to that. Maybe even some physios could do this - but here in the UK at least they don't have the training.
OR one other thing that might be worth doing. Probably a much better idea actually - contact the people at the Postural Restoration Institute - ask if they have any practitioners in your area. I don't think it'd be too expensive - there's one in my area and he charges the same as a regular physio.
Just be careful when going to these people for help as in my experience they just have you paying for stuff that doesn't work and then they try and tell you the reason it didn't work is because you have OA. In my experience it was always just a big con - deliberate or otherwise. Most aren't trained in dealing with these kind of complex muscle imbalances.
The PRI would be your best bet if they have anyone near you.
I'll dig out some more links (I'll probably get your email and send them that way) that might help you if you prefer to try and figure it out for yourself. In fact, I think you MUST try and figure it out for yourself even if you do go to a professional. I think ultimately you'll have to do most of it for yourself anyway. It may be a day or two so don't think I've lost interest if you don't hear from me for a little while.
There's a video on youtube of an 86 year old gymnast. Look it up - her name is "Johanna Quaas". You've still got 12 years to get to her level of fitness. 12 years is a long time!!!
BonnieStarseed susan67756
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susan67756 BonnieStarseed
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It's very tricky as whilst it's quite likely that at least a good number of your symptoms are down to the same basic root cause as me (muscle imbalance / twisted pelvis) there are a multitude of reasons as to WHY this has happened. That's what makes it so tricky to untangle the mess.
If I were you I'd start with self myofascial release (otherwise known as trigger point therapy). There's a very good book that you can buy online from Amazon called "The Trigger Point Therapy Workbook". It's not expensive. You simply look up where you feel the pain and it will tell you the muscles/trigger points that can cause pain in that location and shows you how to apply self massage to release the knots. It's very simple and there are lots of tools you can use to get at the knots if you're a bit imobile. The book explains all.
Trigger points will form in muscles in pretty much everyone. The more dysfunctional you are the more trigger points you have. They can be a major source of pain and other symptoms. They typically refer pain to distant parts of the body, so pain you feel in your foot could be coming from your back for example. I can pretty much guarantee you'll get a lot of relief from this.
Once you've dealt with some of the pain and stiffness then you can start looking at perhaps doing some specific exercises to rebalance things.
Good luck
Susan
susan67756
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BonnieStarseed susan67756
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susan67756 BonnieStarseed
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The trigger point massage on the other hand can't do any harm and I'm certain it will relax the tight muscles. That should result in some significant improvement in both movement and pain levels. It might also provide clues as to what muscles are weak and from there it could be possible to find some exercises that will help.
Give it a little try - I'm sure it'll help a lot! And if you're planning on going back to a chiropractor you'll make his job a lot easier if you get those tight muscles loosened off!
If I could suggest exercises I would, but it's just not possible without knowing what's out of balance in your body.
Good luck!!