Problems diagnosed as Osteoarthritis CAN be cured in some cases.

Thank you!😊

So so long getting back.

no I have not tried cell therapy. There are good centers for cell therapy popping up. I will ask my doc about itsoon I will need revision on my left hip and can't try to help my other joints before they become deteriorated.

from what I have read stem cell therapy will help the joint rebuild areas needed to avoid serious los to the joint of cartiledge.

Hi, I agree with you AV222, Susan has been so much help for many of us who know we're not doomed to wheelchairs or walking frames, there is more to it than just what the doctors know has 'main stream diagnosing'.

What I need help with though is, how do we find therapist willing to listen to the possibility of better health with Susans suggestions, I keep coming across brick wall therapist who are not willing to open their mind to an easier option to heal. I live in Sydney Australia and have tried for over a year now, but can't find the right therapist willing to work with me. 

Fixing these 'twisted pelvis' type imbalances is a slow process. The problem is, virtually every muscle in the body is involved. If you focus on re-balancing one or even a few muscles the rest just drag everything back out of alignment. So unless you get really precise about how you tackle this then you'll get nowhere.

The second problem is that you've completely lost the ability to move normally. Your brain has learned to use all the wrong muscles. Physical therapists prescribe corrective exercises - these are exercises that are known to make the target muscles fire up **IN NORMAL PEOPLE**. We aren't normal people!! LOL The corrective exercises don't do what they are supposed to do with us.

What we need to do is to focus on individual muscles and develop a mind/muscle connection. If we understand what exactly is going wrong - the nature of the imbalance - we can work through things in a systematic way and we can completely fix these imbalances where the experts fail. The advantage is that we can **FEEL** our bodies and we can learn to work from the inside out, if that makes sense? Doctors and therapists are working in the dark - they don't know what we feel. They attempt to work from the outside in and it simply doesn't work.

So, you've already built up good knowledge and awareness so you have a head start. You also have a diagnosis of a Left on Left Sacral torsion. Really, that's all we need to know to start making inroads. (You have the same as I had but affecting the opposite side).

Everyone that has a one-sided joint problem will have twisting in their pelvis and spine. It might not always be obvious but it will be there. Due to normal human mechanics it will always present in a similar way. So regardless of what is actually wrong (sore back, knee, hip) the treatment will often be the same. You will probably need some local joint specific treatment too, but restoring normal mechanics to the whole body is a major part of the solution. Although my diagnosed problem was hip OA I had problems in back, feet, neck, knees, shoulders - all cleared up on their own once the pelvis was realigned.

Drop me a line via my website (you'll find email or contact form there). Website address is in my profile.

I'm STILL (sorry, but it's taking forever) finishing off the book that will provide a step by step plan for fixing this imbalance. I'm not an author and this is a very complex thing to describe. So bear with me on that! In the meantime I'm happy to help people fix this via email. The explanations and descriptions won't be as good but most people are managing to move forwards and make progress regardless.

Myrhthym,

This is a problem that I've struggled with. Both in my own search for a cure, but also in recommendations to others. It's human nature to want an expert to solve these issues.

My feeling now is I honestly wouldn't waste money on physical therapists. It never worked for me and I've yet to find someone it did work for. The websites of the more talented ones provides a good source of info - certainly the theory they work from has merit. But I think you MUST learn to fix this for yourself. That's what worked for me and it is working for others too. The trouble is, when you trust someone that you think of as an expert they can take you entirely down the wrong path. It can do more harm than good.  Don't take ANYTHING you are told as gospel (that includes what I tell you!!). The experts aren't as expert as they make out - else you'd be fixed by now!! LOL

I've come across various types of 'expert':

1. The ones that are 'evidence based' try to brow beat you into thinking you have an incurable disease. Evidence hasn't caught up with reality yet when it comes to these problems!

2. Alternative therapists know that 'tricks' with physical thereapy can in some cases produce miracles. They know the theory points to muscle imbalances being the true cause of many problems. However, as of yet there are no tried and tested methods of fixing these things. Sometimes they get lucky, and sometimes they can tweak something that produces big improvements and convinces the patient that the therapist has the ability to cure them. The reality is that you'll typically get all you're going to get out of them in the first session. Some will keep trying (experimenting on you with you footing the bill). Others will blatently con you out of money knowing they have no hope of helping you.

Complex problems like this aren't profitable. They require huge amounts of brain power, monitoring and work. Realistically the only person that can achieve this is you.

This stuff isn't rocket science. More of a giant logic puzzle. A bit like solving a rubix cube puzzle? Impossible for most to manage alone, but when someone shows you how it's doable. Hang in a bit longer and my book will show you how.

What I'm planning on doing is getting most of it into the book. Then using the website to provide more interactive help with troubleshooting and so forth. Hopefully in time people can use the website to help each other. One of the biggest problems is the need for moral support. It can be overwhelming at times and the biggest risk is that you give up. Stay with it and even if not complete cure you will get good results.

People's minds work in different ways. There are a few ladies I've been communicating with that have gone off on their own tangent with this and got results on their own after me explaining the basics. So my solution isn't the only one. But I want to get step by step instructions down on paper to provide a starting point.

Hello susan.

Got first PRI session today. The whole thing is based on muscle activation.

Can't do any feedback yet, but it's pretty much based on finding those sleeping muscles.

It's pretty hard to be aware of non functional muscles when they aren't firing properly.

Therapist seemed to be able to recognize the deficient pattern. Will give a feedback in a month or so.

Take care.

AV

Let me know how it goes.

How much is it costing?

So far , i've been assigned to work on

- firing left glute minimus + left adductors, in order to switch my body postural position to real left stance. I've been told to walk on left heel for 2 weeks as it engages those muscles while walking.

- firing the right gluteus max to restore that right hip rotation while walking. This leg has been assigned to walk on the arch for 2 week.

- couples of activations exercises have been given to me for those.

Will let you know in time how things are going.

60£ / session. one every 15 days i guess.

What happened?

Hi myrhthym.

I guess my post got deleted because i mentionned the name of my pracitionner. Basically, what I was saying is that i completely agree with you. Those practitionners , which adapt and take into consideration out opinions are gems.

There are a few practionners in the UK which belong to those kind. Truthfully, i'm looking for them as well. I believe everyone one of them has some right and some wrong. I'll try other therapies like NKT and MAT until the synergistic will give full result. If you are ever thinking about comming to the UK to get treated or have any interest, let me know , I'll gladly give you all the reviews about what I've tried and what worked.

AV

I'm not wanting to be negative about anyone, as of course there might be some out there that can get results. None are advertising reliable and consistent hip OA cures though....which suggests they aren't achieving them.

The thing to bear in mind is that they ALL sound plausible. I have spent thousands of pounds on people that were genuine, really did try, but got nowhere. I have yet to come across someone that got results with any kind of physical therapist (that's OA cases - of course they can help with some problems. The techniques they use to address muscle imbalances are sound - but once you get to the hip OA diagnosis stage it's stubborn and complex. It needs a very hands on approach that a third party can't provide).

The problem is, how do you know if what they're getting you to do is going to work? The answer is you don't. But of course you believe it will work else you won't be paying out all that money. It's a trap.

My advice would be to learn all you can from them. Ask questions constantly. That way if it doesn't work you are at least educating yourself rather than just wasting money.

Every one that I've been to I've sworn to people "this one is brilliant - really knows his/her stuff". You want to believe. That's the trap.

That said, PRI are definitely on the right track with this stuff. I have however spoken to three people that have been to PRI trained people and it hasn't helped them any with hip OA.

Also remember that their a things you can do that will give instant improvements. Often, you get these in the first session and that keeps you going back for more. In my experience you get all that you're going to get in the first couple of sessions.

But there will always be exceptions to the rule. I recommend tackling it yourself though. It's not rocket science. The experts aren't really that expert. Hip OA isnt profitable - it's labour intensive to fix. All the info you need is freely available - you just need to apply yourself.

Dear Susan. I totally agree with what you say. 

Until now, no practitionner has been able to give me a proper explanation about what's going on exactly when going into details of biomechanism, and just like you I've seen countless of them. As a matter of ego-building, they all had evasive answers when I tried to explain to them what I thought was going on asked about the solutions we work on together. It really seems that puzzle-solving is a skill that only few have but ourselves.

Only PRI I saw yesterday kinda made me want to work with him. Sent him 5 mails since yesterday about biomechanism questions, and all of his answers were detailed and explained to me what I already knew by doing my own research. In fact, it's exactly the same mechanism he did explained to me, within a couple of tweaks. Maybe it's gonna work, maybe not. At least, I've found someone who share the same point of view as I do.

As for OA, I can't really say, I don't have this problem diagnosed, "lucky" me, it's already enough painfull as it is.

Point is, and to quote you : "I recommend tackling it yourself though. It's not rocket science. The experts aren't really that expert. Hip OA isnt profitable - it's labour intensive to fix. All the info you need is freely available - you just need to apply yourself." has never been so true (up to now for me). 

Hello AV, that would've been helpful, if you think some of your practitioners have been assisting, I could ask their recommended opinion on a pratitioner here in Sydney. Thanks so much for your generous offer, as much as I'm a traveller, it's been impossible to do any of that for the last 5 years, as my body is declining. Reading what your and Susans experience has been, is where my hope is directed, along with my fight to not give in and trust what my core (physical core doesn't exist but mental core is all happening) beliefs are.

I recently found a dr/chiro who speaks of our bodies with so much understanding, he has turned most chiropractor practises on its head, and he's making a big change which is very shaky for some professionals who don't like 'new theories' and prefer no results.

He's in Chicago, on the other side of my world of course, I may skype with him one of these days soon, but in the mean time will keep looking for answers. I struggle somewhat to analize the detailed explaining you have or that Susan has, for where the weaknesses are occuring in your bodies, still getting my head around most of the abbreviations, but eventually makes so much sense after unravelling what is what, heeeee.

Dear Myrhthym,

I can't give you a feedback yet. It's pretty difficult, but I will, soon. From what I have tried , NeuroKinetic Therapy (NKT) seemed not efficient to me, as it doesn't focus on patterns, but muscles groups only. Active Release Technique (ART) helped me to release some scar tissue around my initial injury, but I don't really expect more out of it.

I wanted to hear more about you. I've went up and reread posts you left to susan a month ago. How did those trigger points hunting go ? Would you mind giving us a little bit more informations concerning your aches and your misalignment? Susan and I might be able to give you some objective thoughts about it.

Oh wow AV, thanks so much for clarifying the abbreviations, I'll soon get the hang of it, the more I see what each one is, and my mind registers it better because of how you've outlined the spelled-out word first. 

Well it's a weird story but this is what happened back in 2006, I woke up one Feb morning 3am, gasping for air, it was exactly like the wind got knocked out of me, I only felt like that once before when I fell on my back off a swing at 9 y/o, at that time the wind got knocked out of me, and like a bee sting, I remember never ever wanting to experience that feeling again.

That morning though I was rushed to hospital and was given a drip with lots of crap (steroids) in it, and was able to breath again, but struggling to get deep breaths in or out, and struggling to do my yoga breathing techniques. In the meantime doctors diagnosed me with a list of ailments.

My body was riddled with inflammation, which didn't make sense to me at the time because I was such a healthy eater. But mentally I was under enormous stress at work, I even had had a bad incident at work from a fall but never said anything to avoid conflict. 

I realised the doctors were doing a lot of guessing and I was getting no where, 2 years had passed and now I couldn't twist or move my back seperate to my legs, it was like they were all attached. And my diaphragm had stopped working properly.

I started to monitor what would trigger a decline, which was mostly any kind of muscle exertion or where I had to breathe fast due to exercise, that would cause my decline in muscle movement and start up my diaphragm spasms, I was a cyclist and had to stop because of my position on the bike and the pressure it would put on my diaphragm, I was a daily walker and that didn't help, my job was physical (security) and I couldn't be efficient anymore. I left work. 

I'd decided for the last 5 years I'll be taking care of myself, even though I haven't been able to get better and back to my physical lifestyle, I at least know I don't have anything as serious as the doctors thought. Although Osteo in my hips and spine started to kick in and lots of bone spurs around my spine as well, physically I take it very easy and not much is happening there for the past  4 or 5 years in movement or strength, because I dread having those diaphragm spasms. My physiotherapist lately explained that my scapula muscles are starting to switch on again. she doesn't talk about my hips and they are a disabling pain. 

That's what I know about what has caused the diaphragm issues.

Now I have lots of other problems (hips, osteo, bone spurs etc etc) because of my sitting life. I believe like you and Susan, most if not all can be reversed, I just have to find the right person to help treat me and keep reading what you lovely ladies are teaching us. Thanks AV, talk soon :-)

I do agree that in a case like yours it's good to get some help. It sounds quite scary. A different ball game from OA.

However, if the experts don't know then often you will end up spending a lot of money on having people 'guess'.

Do you have free healthcare over there? In your shoes I think I'd be looking to find a good GP (family doctor?). He won't know how to treat you, but if you could ask him to overview things to make sure you don't do anything dangerous. You can keep him in the loop of what you're trying yourself and what experts are telling you. That could help steer you away from the 'snakeoil' salesmen?

Other than that I think you just need to keep researching. In actual fact it was Postural Restoration Insititue info online that made the penny drop for me. That convinced me that the key was to level the pelvis. However, I do know some peole that tried PRI for hip OA and they were told 'you've got arthritis - nothing can be done'. (AV - your case isn't OA so I would hold out hope for PRI).

But for your problem myrhthym I would say Postural Restoration Insititue is worth a try. You'll get a list of pracitioners from their website.

The point though I'm trying to make (from experience) is that when it's hard to find someone to help you it's often because there IS no one to help you. If there was a treament out there why isn't everyone offering it? We want to trust that someone can put this right for us, but often the only solution IS to figure it out for yourself. Go to a few experts but mainly pick their brains for info and clues - don't count on them solving it for you. And if you can get a good doctor in your corner to keep you safe!

What I would be asking your therapist about is the roll of the core muscles.

So for example, if you lie on your back with knees bent and feet flat on the floor your hip muscles are taken out of the equation. Do you still have twisting? For example, put your hands under the small of your back - is the gap bigger on the right side than on the left? (An indicator that your sacrum is twisted).

If so then targetting the hip muscles won't help as the whole spine will shift as you move the limbs. You need to look at the spinal rotators and the obliques. I would say BEFORE addressing the muscles in the hips.

But you don't have hip problems  - that adds an extra layer of complexity as your hip CAN'T move correctly. Maybe when there is no hip problem fixing the balance in the hip muscles is enough to push things in the right direction. But still, I'm suprised they aren't tackling the core first so that's something to ask?

Hello Susan, thanks for sharing with each of us in mind when making suggestions, that is what keeps us going, trust me, when a thread can go on for this long, it's only because you have made the time specifically for each and every one who is finding something in common with you. Say goodbye to the days where doctors were the be all and end all of our health and our bodies.

With regards to healthcover, I don't have to pay to see a GP, but anything outside of that, specialists etc is so so expensive. The problem of course is my GP, she doesn't believe in nutrition, and how much good food can reverse many issues. I just havent found the right GP, and this is why 10 years down the track, I got no where until now, it's looking and sounding so much more better than the rut of no return.

I wish you the very best with your upcoming book, and looking forward to getting myself a copy.

Thank you for your enthusiasm, it's very contagious :-)

Obviously the book isn't addressing your problem myrhythm but I think the concepts might help you to find the correct path. Obviously things about hip OA and the twisted pelvis resonated with you else you wouldn't be here!

I think something that's hugely valuable for everyone with a 'difficult' problem is that something that the experts deem to be impossible; something that resists monumental efforts with physical therapy; something that seems structural, permenant, and insurmountable - CAN actually be a simple muscle imbalance. Find the key to the puzzle and everything starts to unravel and suddenly the problem isn't so complex.

Hip OA (my case at least) might be described as a specialised kind of twisted pelvis. Twisted pelvis really is just a muscle imbalance where tensions between right and left side of the body are out of whack. Differences between front and back of body are less complicated to fix and have less 'nasty' symptoms. Muscle imbalances (particularly rotational imbalances) can produce a huge aray of symptoms.

What I DON'T want to do is raise hopes and send people to expensive physios etc because research shows that they aren't delivering cures or even worthwhile treatments for these stubborn issues. We're (society) still at the stage where we need to keep our cash in our pockets and research, share info etc. Fix ourselves! It CAN be done. It seems crazy but we CAN get better results than the expensive experts. We need doctors to make sure there's nothing sinister going on and to verify that what we're doing isn't going to harm us. But with the doctors go ahead this is a very safe thing to experiment with.

Sorry about my spelling BTW. I never could spell to save myself and this forum doesn't have a built in spell checker!!!

Of course Susan I do understand, the book isn't targeting the diphragm, but the theory of the chain reaction to our muscles is what can be understood from much of what you discuss, which I'm sure will reflect in your book.

The chance for most of us to check in with our bodies trust ourselves before anyone, and move forward with what approach may work better for us. Doctors for some, surgery for others, and alligning our misalignments for the other others, heeee, I'm in the other others category as are some of your readers and yourself.

Have no idea what muscle is what, that's also where I think your book will be of help.

Very interesting in your reply to Colin about your bunion story and how so many other parts of your body could be affected. It's crazy true!

A little off the topic, I had Hashimotos, and through diet and supplements was able to reverse it, although it took 4 years, it worked, while doctors for years would tell me I'll come begging for the thyroid hormone med. because they thought nothing else would work. Patience worked and an extremely strict understanding and learning of what were the Endocrine Disruptors.

Those combined got my thyroid working again!

So now here goes my next attempt in healing my diaphragm, which probably wasn't my diaphragm in the first place......heeeee! stay tuned  

An important thing I've learned from my experince with hip OA is that experts are only experts on typical people. Research only considers a treatment effective if it works reliably for many or most people. Doctors, charities, researchers and governments are all interested in improving the health of the nation as a whole. If you aren't 'typical' or 'average' then the 'experts' are pretty clueless about what will work for you. The have no research and no experience to guide them. Many, many doctors, physios etc have said to me (upon hearing about my cure) that 99% of people are too lazy and inactive to help themselves. Whatever you diagnose the outcome will be the same - a life of pain medication and ultimately surgery. There is no point diagnosing something curable if people won't put in the work necessary to achieve that cure. The pragmatic thing to do is to simply tell everyone with joint pain that they have OA (unless there's something else that can be diagnosed and treated easily). Research shows that statistically speaking the outcome to be the same no matter what you diagnose. Which may be true. However, labelling everything as OA prevents researchers from finding cures. It causes everyone to give up and accept life as a cripple.

A totally different tangent, but when I learned how 'wrong' and 'misleading' Osteoarthritis information and advice is I started to look into other things. What about cancer for example? As a result of that research I stopped going for breast cancer screening. I don't remember the numbers, but the reality is that if you go for screening you have a greater chance of receiving drastic surgery, Chemo, radiothearpy THAT IS TOTALLY UNNECESSARY than you have of being treated for cancer. I think from memory it's something like 3 people need to be given unnecessary treatment in order to treat 1 person that really does have cancer. Additionally, screening itself does cause a very small number of deaths due to radiation.

When you take into account all of the risk factors, if you are a very low risk of cancer due to genetics and lifestlye then the odds of screening leading to unnecessary treatment (life threatening treatment) vs real cancer being picked up, screening starts to look unnecessarily risky. I looked into all screening and weighing up all the odds it's actually safer for me NOT to be screened.

My dad was screened for prostate cancer. It was found to be present. He was told it was slow moving and chances are he'd never have problems but they offered radiotherapy to be sure. He took the radiotherapy (who wouldn't - we're lead to beleive it's a treatment). 10 years or so later he developed a soft tissue sarcoma in the exact spot where he received the radiation. It was an aggressive cancer that killed him quickly in a very horrible way. Was it caused by his screening and subsequent unnecessary treatment?

I really believe that you need to take your healthcare into your own hands. YES make use of docctors (who without a doubt have skills and save lives), but research everything they as if your life depends on it......because often it does!

Wonderful! Well Susan, I'm thinking you are actually in agreeance with me, yes :-)