Problems diagnosed as Osteoarthritis CAN be cured in some cases.

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If you're a proactive individual that's been diagnosed with incurable Osteoarthritis it's *possible* that you can in fact beat the diagnosis and get back to full fitness and functionality. It happened to me.

I should add that I was diagnosed at age 42 and was very fit and active at the time. I think it might be very different for older individuals, people who's condition is advanced, or people that don't enjoy exercise.

Here's my story. I can't make any promises that it'll be the same for you. But I will if people are interested share some of the resources that helped me to beat what I considered to be a life shattering diagnosis, for which I was assured there was no possibility of a cure. I don't know whether to believe I was misdiagnosed and never actually had Osteoarthritis, or whether they're wrong when they say Osteoarthritis is incurable. What I can say is that I was told my symptoms were 'classic' and that the diagnosis was certain - that my symptoms couldn't be explained by anything else. The whole area is so poorly defined and slap-dash that it's impossible to tell. Either way, it means there's at least hope of beating it if that's what you want to try and do.

I've spent 8 years battling against the people that were hell bent on brow beating me into believing I had Hip Osteoarthritis when I knew I didn't. My real problems were ignored - I was essentially left to rot. I was treated like an idiot. Told I researched too much. That I was in denial. Told that I was making my problems worse by training to keep myself fit, strong and active. Told I should swim and cycle and give up all other sports. I was asked repeatedly "You've had numerous experts try to help you - don't you think one of them would have succeeded if this really was curable?".

Finally I've been vindicated. I figured it out for myself. A simple, treatable muscle imbalance causing all of my problems. Obviously I wanted to let the people know that have tried to help over the years. I expected them to be amazed - a breakthrough that could help lots of people. These cases that we think are incurable can in fact be fixed!!

My excitement was met with apathy: [paraphrasing]. "The reality is that most people are inactive and unwilling to put in the work needed to address muscle imbalances like this. Even if the correct diagnosis was made, for most people the end result would be the same. People who are willing to put in the work necessary to reverse the condition are so few and far between that they aren't statistically significant to make it worth the cost of training and research. We were unable to solve your problem because we've not been adequately trained to do so. But well done for hanging in and figuring it out yourself."

Why wasn't I told this BEFORE I discovered the solution for myself? Why did they try to convince me I had incurable OA when they knew how determined I was to beat it?

Here's the reality as I now understand it (as it's been explained to me). This may not reflect every health professionals view, but it is a summary of what I've been told by various health professionals:

GP's are responsible for diagnosing OA. Yet they know very little about bio mechanics (unless they've got an interest and educate themselves).

They don't understand the condition in great detail, but they don't need to. They're working to a script. It seems not to be widely known who writes that script (so who to go to with questions or doubts)...which is a little bit of a worry.

Some know that often it's a misdiagnosis - more forward thinking GP's are aware that it's frequently a treatable soft tissue issue. But like the physios, think it doesn't matter too much as for most patients it makes no difference. They lead inactive lifestyles and any attempts to restore them to full functionality will fail. There is little point in wasting resources trying to give an accurate diagnosis when the end result will usually be the same regardless. So OA is the 'catch all' category you put them in. There is no cure - you manage with drugs and operate if and when necessary.

Even when someone is in great shape, keen to be proactive in their treatment and has an active lifestyle worth preserving there's nothing to be gained in finding the correct diagnosis as there is no one to refer them to to get it fixed. People worth bothering with (because they can be restored to a good, active life) aren't statistically significant enough to be worth the research and training needed to put systems in place to help them.

So, the GP's make the OA diagnosis despite not necessarily knowing much about OA. Who are the specialists then if you're determined to find the real cause of your joint stiffness or pain? Well, there's a bit of an oversight there. There is no one.

Orthopedic surgeons know about surgery. If your problem is an easily curable soft tissue issue they probably won't know enough to detect it. They may well put you under the knife unnecessarily. Or tell you that you have an incurable problem that will deteriorate over time - that your active life is over (that's what happened to me). But this is more a case of them forcing your problem into something that fits their specialist knowledge. Not a proper diagnosis.

Then there's physios. They aren't trained to detect and treat curable soft tissue problems that lead to joint wear and might otherwise be diagnosed as OA. However, some are better than others. Some might actually be very capable. It's pot luck. I think it's unlikely to find someone with these skills working for the NHS, but I may be wrong. I have been told (by a physio) that the failure rate in these cases is 99% within the NHS.

There are people out there that do know how to diagnose and treat these soft tissue problems. And there's plenty of info on this on the internet that you can use to help yourself. It's down to the individual to separate the wheat from the chaff. Contrary to what we are led to believe, OA isn't an incurable degenerative disease. Strictly speaking it doesn't exist. It's a 'catch all' diagnosis used to put people with joint problems in when there aren't resources and training to find out and fix what's really wrong with them. Contrary to what we're led to believe, there is no category of the medical profession with expertise in the multitude of conditions commonly labeled as OA. If you think you've seen an expert and had a reliable diagnosis of OA - think again.

There is no easy fix - that's true. There is no way of knowing if yours is a curable soft tissue problem without trying to fix it. I'm led to believe that official research into OA is centered around keeping this 99% of people that are deemed incurable (because they are perceived to be inactive and unwilling or unable to adhere to the required rehab plan), as pain free and independent as possible at minimum cost. It's simply not cost effective to put time and effort into finding the cause, the cure, or training people to make diagnosis and cure soft tissue problems in the cases where how to do so is already known by some.

But there are people out there that have figured out how to diagnose and cure at least some of these cases. Some speculate that all OA is initially a soft tissue dysfunction. However, this is mainly in the private sector - or perhaps in the NHS, but on an unofficial level. You're faced with the dilemma of separating the fakes from the real deal. Most will claim to be able to help - and many will diagnose incurable OA when they fail. That doesn't necessarily mean you can't be helped. Many tried and failed with me before I figured it out for myself.

But if you're willing to work at it yourself - or maybe even find the right person (which is very difficult) then it is quite possible that what you have is very curable.

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  • Posted

    Hello Susan

    I've been reading this discussion and thinking your book would be a great help. I have not seen anyone really mention fluid around knees. Wondering how much of an issue this is for others?

    For me my knees feel hot and I have a lot of fluid around them. One knee has a bakers cycst behind it.  I am wondering how to get rid of this fluid. I have had this fluid for at least 6 years now.

     Now my hips are starting to bother me some, stretching helps a lot for that.

    I also have planters faciitis - that is improving with stretching. Along with bone spurs by my toes.  Im thinking the bone spurs could be most of what has thrown me off structural balance - not sure though.

    I guess my questions would be how to get rid of 

    bone spurs

    fluid around my knees

    would your book help with these issues

    Any thoughts and comments would be greatly appreciated.

    thank you

    • Posted

      Hi,

      The book is 100% about correcting the muscle imbalance that is ALWAYS associated with hip OA. It ALWAYS contributes to symptoms, and in some cases may be the ONLY cause of symptoms. It is less relevant to OA in other joints - however, the imbalance that causes hip OA tends to cause problems in all joints over time. So, when I corrected the imbalance that caused my hip pain the pain in all other joints disappeared. The basic principles of muscle imbalance apply to all joints, so the book will still hold some relevance for any type of OA. Mainly it's for hip OA though.

      With regard to your specific question about bone spurs and fluid:

      Bone Spurs

      I think the only way to get rid of bone spurs is to have them surgically 'shaved off' - yet research shows (I believe?) that it's not worth doing as it doesn't relieve symptoms.  That suggests that the bone spurs are a bit of a red herring and not the cause of your symptoms.

      Research also shows that there is no correlation between x-ray findings (e.g. bone spurs) and symptoms - so much so that x-rays are no longer recommended to assist with diagnosis or management of OA.

      My point here is that probably it's not helpful to focus on the bone spurs. Current thinking is that 'radiographic OA' (what shows up on x-ray) is typically a normal and benign part of the 'wear and REPAIR' process. The bone spur is akin to a scar that forms on the skin after injury - it might not look nice but it's usually nothing to worry about. Now, if that scar on the skin was catching on clothes it might be a problem; by the same token, bone spurs in a joint MIGHT be a problem if they interfere with normal functioning of the joint. However, as I said already - research shows that removing them doesn't help relieve symptoms, so....

      Short answer: The book will NOT help to get rid of bone spurs. BUT chances are bone spurs aren't causing your problems.

      Fluid around knees - 

      This very much depends on the cause of the fluid on your knees. If it's caused by the strain or irritation caused by muscle imbalance (which is very possible) then yes - the book will HELP you get rid of that. If the muscle imbalance is CAUSING the fluid then eliminating the muscle imbalance SHOULD eliminate the fluid. 

      Now that said, I haven't experienced fluid on my knees or significant knee pain. I do know that I'd occasionally get fluid / swelling around my SI joint if I over did things. So it's POSSIBLE that the fluid is just a consequence of the imbalance, but it's not something that is common in hip OA. I know less about knees. 

      Short Answer: The book doesn't mention fluid on the joints - it's not something I really experienced. It COULD help indirectly if the fluid is caused by muscle imbalance. 

      Sorry I can't be of more help! All I can say is don't be too quick to assume that your joints are the cause of your pain. I had big toe pain - in fact, it started a good few years before the hip problem. It FELT very much like it could be down to OA or bone spurs. Yet it went away completely when I fixed the imbalance that led to the hip OA diagnosis. Trouble is, doctors explain away joint pain as OA and tell patients that it's due to loss of cartilage or bone spurs. Yet they're guessing at this. And more and more research is starting to show that what we see on x-rays is not really related to the pain we experience. Chances are, the joint wear is a CONSEQUENCE of the thing really causing the joint pain....muscle imbalance. Fix the muscle imbalance and the pain/Symptoms MAY go completely and whilst the joint wear will remain, it shouldn't get worse. 

    • Posted

      Thank you Susan !  

      Funny I've been more focused on my bone spur pain causing my other issues.  Time to rethink.

      I really appreciate your detailed answer and will be ordering your book smile. Amazing to me that you as the author take time to answer people individually and honestly. Thank you !

    • Posted

      I only wrote the book because of these discussions. I first posted here a few years ago - utterly frustrated because I'd managed to 'cure' my so called 'incurable' OA and the doctors, physios etc simply did not want to know. I wanted THEM to learn from my case and use it to help others. I couldn't get a single person to even record the details of my case.

      A long thread started up from that little 'vent of frustration' and people started asking me how I did it. I shared all the knowledge I had and people started reported similar results. it was on that thread I was persuaded to write the book. I had to really think it through in a lot more depth in order to put it in a book.

      So, writing books isn't really something I do - I just had no other choice in this instance as there was simply no other way to get the info to people. I'm still happy to do all I can to help people in the same boat that I was in - I know how it feels! 

      It's nuts, because treating the muscle imbalance genuinely does help so many people - it can't all be coincidence. Yet the professionals simply don't want to know. They prefer to cling to the 'incurable disease' story. However, their explanation simply doesn't make sense. If you look into the available research for yourself you'll see what I mean. I think the issue is that the physical therapy approach is simply not cost-effective (it's not a problem that can be resolved with a few sessions with a physiotherapist). Unless people are willing to do all the work for themselves then treatment simply isn't viable. I think perhaps this is why doctors etc prefer to just tell people they are incurable and need to take toxic drugs - it's easier.

      Good luck!!!

  • Posted

    Thank you Susan for all your persistence and putting it into words.  I think you nailed it that most people are not willing to put in the work so doctors give us pills.  So far for me I don't have to take pain meds, I do take supplements but am beginning to think that is the easy way out and really doesn't solve the problem.  I find for myself that I would like a quick fix !!  Maybe someday medicine will figure out that us patients do need to put in some work here.

    Hate to say it buy maybe doctors not believing you was a good thing. Look where this thread has taken the conversations and all the people that are doing better. !!  And now you have a book.

    Thanks again for all this insight and your dedication !

  • Posted

    Hi your post is so helpful. I am awaiting an appointment for THR.

    I was given crutches , to practice with after the op , along with a small leaflet. With exercises for afterwards. I have never had hip joint pain. Most of the pain is in my thigh , knee and shoulder. I thought I had one leg longer than the other but noticed one hip was higher. After loads of googling and you tube watching I’m convinced it’s my posture that’s the problem. Avoiding the movement that caused the pain for the last two years seems to have twisted my hips. My left buttock is much higher than my left. My right just seems to sort of merge into the back of my thigh.  I am living in the midlands uk. Did you find any practitioner that was helpful. Again many thanks for your post. 

    • Posted

      Hi Wendy,

      I, along with most people I've communicated with over this issue, never had any luck getting help from professionals. You'll occasionally find someone that helps move things along a little by providing a missing piece of the puzzle, but for the most part you need to get to grips with it yourself.

      I don't really like plugging the book as I know people with OA diagnosis are 'easy targets' for selling 'solutions' to. However, in your case I'd strongly recommend you get my book - you'll find links in my profile. The book describes in precise detail the imbalance that's associated with hip OA and it also has a treatment plan. Now for most people I don't expect stellar results in less than a year (it took me ages to untangle my imbalance - years!) - however, very many report massive improvement after just running through the first three weeks of the plan. Enough to cancel hip ops or to go from not being able to walk to managing long hikes of many miles.

      From what you've said, in your shoes I'd want to really explore the possibility of muscle imbalance being the root cause before going for surgery. Please get the book, read it - it will give you a clear understanding of how muscle imbalance can be the cause of all your symptoms - and if you have any questions at all don't hesitate to contact me. 

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