Problems diagnosed as Osteoarthritis CAN be cured in some cases.

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If you're a proactive individual that's been diagnosed with incurable Osteoarthritis it's *possible* that you can in fact beat the diagnosis and get back to full fitness and functionality. It happened to me.

I should add that I was diagnosed at age 42 and was very fit and active at the time. I think it might be very different for older individuals, people who's condition is advanced, or people that don't enjoy exercise.

Here's my story. I can't make any promises that it'll be the same for you. But I will if people are interested share some of the resources that helped me to beat what I considered to be a life shattering diagnosis, for which I was assured there was no possibility of a cure. I don't know whether to believe I was misdiagnosed and never actually had Osteoarthritis, or whether they're wrong when they say Osteoarthritis is incurable. What I can say is that I was told my symptoms were 'classic' and that the diagnosis was certain - that my symptoms couldn't be explained by anything else. The whole area is so poorly defined and slap-dash that it's impossible to tell. Either way, it means there's at least hope of beating it if that's what you want to try and do.

I've spent 8 years battling against the people that were hell bent on brow beating me into believing I had Hip Osteoarthritis when I knew I didn't. My real problems were ignored - I was essentially left to rot. I was treated like an idiot. Told I researched too much. That I was in denial. Told that I was making my problems worse by training to keep myself fit, strong and active. Told I should swim and cycle and give up all other sports. I was asked repeatedly "You've had numerous experts try to help you - don't you think one of them would have succeeded if this really was curable?".

Finally I've been vindicated. I figured it out for myself. A simple, treatable muscle imbalance causing all of my problems. Obviously I wanted to let the people know that have tried to help over the years. I expected them to be amazed - a breakthrough that could help lots of people. These cases that we think are incurable can in fact be fixed!!

My excitement was met with apathy: [paraphrasing]. "The reality is that most people are inactive and unwilling to put in the work needed to address muscle imbalances like this. Even if the correct diagnosis was made, for most people the end result would be the same. People who are willing to put in the work necessary to reverse the condition are so few and far between that they aren't statistically significant to make it worth the cost of training and research. We were unable to solve your problem because we've not been adequately trained to do so. But well done for hanging in and figuring it out yourself."

Why wasn't I told this BEFORE I discovered the solution for myself? Why did they try to convince me I had incurable OA when they knew how determined I was to beat it?

Here's the reality as I now understand it (as it's been explained to me). This may not reflect every health professionals view, but it is a summary of what I've been told by various health professionals:

GP's are responsible for diagnosing OA. Yet they know very little about bio mechanics (unless they've got an interest and educate themselves).

They don't understand the condition in great detail, but they don't need to. They're working to a script. It seems not to be widely known who writes that script (so who to go to with questions or doubts)...which is a little bit of a worry.

Some know that often it's a misdiagnosis - more forward thinking GP's are aware that it's frequently a treatable soft tissue issue. But like the physios, think it doesn't matter too much as for most patients it makes no difference. They lead inactive lifestyles and any attempts to restore them to full functionality will fail. There is little point in wasting resources trying to give an accurate diagnosis when the end result will usually be the same regardless. So OA is the 'catch all' category you put them in. There is no cure - you manage with drugs and operate if and when necessary.

Even when someone is in great shape, keen to be proactive in their treatment and has an active lifestyle worth preserving there's nothing to be gained in finding the correct diagnosis as there is no one to refer them to to get it fixed. People worth bothering with (because they can be restored to a good, active life) aren't statistically significant enough to be worth the research and training needed to put systems in place to help them.

So, the GP's make the OA diagnosis despite not necessarily knowing much about OA. Who are the specialists then if you're determined to find the real cause of your joint stiffness or pain? Well, there's a bit of an oversight there. There is no one.

Orthopedic surgeons know about surgery. If your problem is an easily curable soft tissue issue they probably won't know enough to detect it. They may well put you under the knife unnecessarily. Or tell you that you have an incurable problem that will deteriorate over time - that your active life is over (that's what happened to me). But this is more a case of them forcing your problem into something that fits their specialist knowledge. Not a proper diagnosis.

Then there's physios. They aren't trained to detect and treat curable soft tissue problems that lead to joint wear and might otherwise be diagnosed as OA. However, some are better than others. Some might actually be very capable. It's pot luck. I think it's unlikely to find someone with these skills working for the NHS, but I may be wrong. I have been told (by a physio) that the failure rate in these cases is 99% within the NHS.

There are people out there that do know how to diagnose and treat these soft tissue problems. And there's plenty of info on this on the internet that you can use to help yourself. It's down to the individual to separate the wheat from the chaff. Contrary to what we are led to believe, OA isn't an incurable degenerative disease. Strictly speaking it doesn't exist. It's a 'catch all' diagnosis used to put people with joint problems in when there aren't resources and training to find out and fix what's really wrong with them. Contrary to what we're led to believe, there is no category of the medical profession with expertise in the multitude of conditions commonly labeled as OA. If you think you've seen an expert and had a reliable diagnosis of OA - think again.

There is no easy fix - that's true. There is no way of knowing if yours is a curable soft tissue problem without trying to fix it. I'm led to believe that official research into OA is centered around keeping this 99% of people that are deemed incurable (because they are perceived to be inactive and unwilling or unable to adhere to the required rehab plan), as pain free and independent as possible at minimum cost. It's simply not cost effective to put time and effort into finding the cause, the cure, or training people to make diagnosis and cure soft tissue problems in the cases where how to do so is already known by some.

But there are people out there that have figured out how to diagnose and cure at least some of these cases. Some speculate that all OA is initially a soft tissue dysfunction. However, this is mainly in the private sector - or perhaps in the NHS, but on an unofficial level. You're faced with the dilemma of separating the fakes from the real deal. Most will claim to be able to help - and many will diagnose incurable OA when they fail. That doesn't necessarily mean you can't be helped. Many tried and failed with me before I figured it out for myself.

But if you're willing to work at it yourself - or maybe even find the right person (which is very difficult) then it is quite possible that what you have is very curable.

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  • Posted

    Hi,

    it is going to be difficult for me to find the right exercises seeing that I never been very sporty.

    Yoga is putting too much stress on my back at times and aerobics is not so good for my knees.

    I like walking in the countryside and swimming is good but I will give pilates a go.

    Lately the pain in my knees has transferred to the underside and side of my left foot and I am wondering if there are some blood vessel problems involved because it is a sort of tired ache I feel sometimes and then the pain can turn very sharp as though it is inflammed -- back to the trigger point book I think !!!

    Angelika

    • Posted

      Hi Angelika

      I'm 68 and have had my 2nd THR. Had a fracture in the hip 4  weeks post op because of osteoporosis. I was doing an NHS exercise.

      I'm still on 2 crutches {7 months on} I found a yoga teacher who has a class for "elderly ladies" Who is she calling elderly??????biggrin Elderly is 15 years more than you are at any given age  LOL so in our 60's???Late 70 might be elderlybiggrin Anyway her exercises are a bit more gentle, no wrapping your legs around your neck wink but everyone lies on their yoga mat except myself and one other lady.....she sits most of the time and I stand most of the time.  With crutches if I got down on the floor I would never get up again cheesygrin She adapts the exercises to suit me as the others are doing it on their mats.

      So its only a matter of looking round for a good yoga teacher....hopefully I will get stronger and be able to lie down as time goes on

      Love

      Eileen

  • Posted

    Good luck with your Yoga Eileen. I will look for a teacher who will treat me gently and I am also not thinking of myself as older/old !!!
    • Posted

      Hi

      My brain tells me I'm in my late 20's early 30's then my body will kick in and let me know differentcheesygrincheesygrin

      Have you ever seen those road signs....Elderly people crossing {or something like that} its a picture of a little old man and woman with their sticks and bent almost double crossinbg the road....that makes me mad!!!!mad

      Love

      Eileen

  • Posted

    The same here, Eileen. 

    I think its age discrimination big time to show these signs and gives the entirely wrong image to 'younger' people, who, by the way, often are less fit than us (I know at work I can run up the stairs faster than them if I wanted to !!!).

     

  • Posted

    Hello,

    I'm 33 and was diagnosed with knee arthritis last year. I was extremely active doing excercise, sports and dancing and now am in so much pain that I can hardly drive my car. I'm seeing a physiotherapist at the Royal Ortho Hospital in London, but so far have not felt any results. I'm a mum on my own and its getting very distressing to try and live with this disability. If anyone has any advice on successful methods of improvement I would really appreicate it. Many thanks, L 

    • Posted

      33 is WAY too young to just accept an OA diagnosis and live with pain.

      In my experience physiotherapists generally aren't much help, and according to a couple that I've got to know well they really aren't trained to deal with these issues. (according to them)They're trained to work in the NHS where they mainly deal with geriatric patients that are too far gone to do much with.

      So don't be disheartened by the fact that the physio and doctors have got you nowhere.

      My experience is with hips. But I'm sure (in fact I know) that similar mechanisms are at play with knees. Regardless of the wear and tear (or lack thereof) in the joint muscle imbalances and faulty movement patterns can cause a whole host of painful problems as well as restricted range of motion.

      If you haven't already done so look into trigger points as almost always where there's pain and dysfunction you'll find trigger points adding to the problem - if not creating the whole problem!

      If I were in London I think I'd be looking to see if I could find someone trained in NeuroKinetic therapy (I know there are qualified people in London). You'd have to go privately but it shouldn't be hugely expensive and I think you'd have much better results than you're getting with your physio.

      Good luck, and trust that you will find a solution - you just need to be persistent and keep looking!

  • Posted

    Thank you for this post, Susan! I have recently been diagnosed with OA and I just felt odd about the doc's attitude. Your post is the first thing that popped up when I searched for answers. The information you have shared is great! 
    • Posted

      I'm glad it's helped. That's why I posted really. When I was first diagnosed all I could find was doom and gloom! Not a single person offering support and encouragement with finding real solutions. In fact quite the opposite - it seemed as if the whole world wanted to drag you down and accept your place in life!

      Good luck!

  • Posted

    Thanks for starting this post Susan. I find that many health ailments that the allopathic modality are unable to help with, other modalities can.

    Years ago I had a pain in my right hip, which after the allotted physio treatments was still there. I was told that that was all they could do and it was something I may have to live with. I then went to my unorthodox chiropractor who used a system of muscle testing that found that I had a groin muscle that was no longer working. He wired me up with the right frequency to encourage the brain to send signals to this muscle. Twenty minutes later, no hip pain. That was maybe 20 years ago!

    I think you are very right in saying that OA (and a number of other body pains) may be due to misalignment. Many issues of joint pain can be the result of misalignment of the skeletal frame.

    I live in Canada and have a friend who is an alignment specialist. She trained under Katie Bowman in the United States. You can read about what Katie does here ___________ Her blog gives exercises and she also has a few books out that may help if people find this relevant to their pain.

    Basically, if we are not fully supported correctly pain will occur in the body due to this misalignment.

    Hope this information helps someone!

    Cheers,

    Irene

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    • Posted

      Thank you Irene - I would be interested in that link if you wouldn't mind Pm-ing it to me?

      It's interesting that you say a groin muscle not working was at the route of your hip problem. So much was involved with me that it's hard to say for sure, but certainly the psoas was a big contributor - that's probably what most people think of as the groin muscle.

      I still have imbalances - although the pain and major dysfunction has gone. It's hard to get a muscle to fire up when it's decided to shut down. I'm very interested in reading about techniques to achieve that. My glute max and psoas still prefer to 'delegate'!!

      I know everyone has their little pet theories, but I really am convinced that most things come down to these muscles imbalances and movement impairements. I expect very many therapists would agree - the dispute seems to be over what the underlying cause is (neural, weak muscles, tight muscles, overactive muscles....) and how best to treat. Right now it's so poorly missunderstood that whether or not a health professional manages to find the solution is pretty random.

    • Posted

      It's OK Irene - I found Katie on Google. Thank you smile
  • Posted

    Susan,

    Tell us what you did?  What were your symptoms and what did you do to fix/correct the muscle imbalance or whatever caused it ???

  • Posted

    Susan,

    Do you have any information on pelvis misalignment and the pain it can cause?

    Beth

    • Posted

      Hi Beth,

      I'd recommend looking up the Postural Restoration Institute - do a Google search for their website. The website isn't brilliantly informative - the best source of info is their articles so have a look through them. That is their speciality - all the physical problems that result from pelvis misalignment.

      My hip problem was essentially a twisted pelvis. Although it's perhaps a missleading term. Is the twisted pelvis the cause of the problem or simply a symptom of something else going on (tight muscles, weak muscles, reaction to pain)? Almost always I'd say the latter. However, knowing exactly how the pelvis is sitting can give you huge clues as to what else is wrong.

      This thread has been going on for so long that I've forgotten what I've already posted. So forgive me if I'm repeating myself!

      I had what's known as a 'right on right sacral torsion'. The sacrum (the bone at the base of your spine that the wings of the pelvis attach to) tilts and twists as part of normal gait. The whole spine, legs....pretty much your whole body moves in a set patern in relation to your sacrum. So for example, when the sacrum tilts left and rotates right (part of normal gait) the lumber spine tilts right and rotates left; thoracic spine tilts left and rotates right. Also the innominate (wing of the pelvis will rotate and shift in relation to the sacrum.

      If the sacrum (for whatever reason) gets jammed at a particular point in the normal gait cycle everything else gets jammed to. So if you have a sacral torsion (another name for pelvic misalignment) then you're guaranteed to have twisting and bending all the way up your spine, shoulders out of whack, innominates in the wrong position, strain on hips, knees, ankles. Because the skeleton is all out of place so too are the attachment points for the muscles. This means some muscles are in a compromised position and can't work, some are too slack, others overstretched.

      When the nervous system senses any instability it can lock everything down tight in order to stabilise and protect you.

      So you start to see how things being out of alignment can cause pain and dysfunction throughout your body.

      The bad news is that there isn't much expertise around in a) identifying what's wrong, and b) fixing it.

      These problems quickly become cyclic and self-reinforcing. The boney structures are out of place because the muscles are pulling them out of place. Why is it happening? Usually I think it's ultimately down to the nervous system - it's just got confused and has forgotten which way is up!!! Very difficult to untangle the mess and get everything firing properly which is why I think it just gets written off as OA.

      Take a look at the postural restoration stuff. See if anything strikes a chord. If you then come back with more specific questions I *might* be able to point you in the right direction with some links.

      My honest belief is that most cases of OA are, initially at least, a simple case of muscle imbalance. But the mechanism is poorly understood. There isn't much useful knowledge within the NHS. Some private practitioners - everything from osteopaths, physios, chiros to myofascial release experts have great success with these cases. But none have a good success rate with all patients. The root causes are so diverse that it's luck of the draw whether you find an expert that's seen a case exactly like yours and knows how to deal with it.

      In my experience you really need to do your homework and learn as much as possible yourself. Perhaps having a quick consultation with a few different practitioners to help build you knowledge. Just be wary of paying out for long courses of treatment and in my experience they all promise the earth but fail to deliver!

      Good luck - I hope this information has been of help!

      Susan

       

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