Problems with diagnosis. Help.

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Hello everyone, my name is Irina, I am 38 years old female. Never before had I any serious problems with my health. Starting last November I noticed lack of strength and slight pain in the back of my left arm and leg. Short time later my left leg started feeling really cold,( abnormal sensation) from toes up to my knee, I always wanted to put on multiple socks. It seems to be just a feeling of sensation because for a doctor both limbs had the same temperature. I visited my GP and was sent to neurologist. Routine exam did not show anything. MRI with contrast performed on December 27th 2017 did not show any neurological abnormalities. At the end of December another symptom manifested - unregular sometimes rhythmic sometimes not jerks(twitching) of fingers/muscles ( myoclonus) .  As well as feeling of stress and anxiety, depression.

Later it became not only myoclonus of my muscles, but jerking of hands and feet, neck in relaxed condition. At the end of Jenuary I started feeling burning sensations (as I understand parastesis) all over my body - face, back, legs, and after that my skin sensetivity was reduced. In certain areas I felt intense pain a few times and after that those areas became numb. Also I noticed problems with my eye sight, more precisely focusing my eyes, reading from far distance. (what I could read before, I can not now). I went to neurologist with these symptoms again, routine exam did not show any problems, 30 minute EEG was also normal according to a doctor. Neurologist suggested waiting and recommended a psychiatrist, psychiatrist prescribed pills ( escitalopram, mirtazapine), that helped me somewhat with anxiety, but did not address the problem with my symptoms, which are getting worse. Today I have the following symptoms: 1. Regular Burning sensations of different areas of my skin on feet, legs, face. 2. Worsening of vision, focusing of eyes, pressure on the eyes. 3. Pressure in my head, especially forehead and ears (no pain) 4. Myoclonus jekrs, which, I think because of antidepressants subsided, but not completely gone, Yesterday (March 20th) I had an eyeball twitch, but did not record it in time. 5. Tiredness. 6. Much less sweating (for prolonged time). Lime decease test was negative, Vitamins are all normal, overall blood work is normal. I did not have lumbar puncture. Looking at the internet I self diagnosed myself with few degenerative diagnoses, including prions. Do you have any ideas? thank you!

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    I had a milder form of GBS which had similar types of symptoms. They think that I had the Miller Fisher variant of GBS because my vision was affected. I had to undergo all kinds of tests to rule out other neurologic problems so that is good that you are getting things checked out. Did anything occur beforehand in November - Flu shot, other vaccines, stomach bug, infection before you had trouble? Was it progressive or ascending? 
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    • Posted

      Thank you for your reply. I had a flushot in November but never had this kind of problems before. And, it seems to me, In October I felt already my leg and arm , I suppose. The feeling was a bit strange but not strange enough to see the doctor. 
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      I had symptoms following a Tdap vaccine. I had this strange sharp pain behind my eye and this strange feeling of numbness in my face. I thought that it was some kind of eye problem. When my eye was ok,  then I thought it might be some kind of sinus problem. Then I began getting the strange ascending numbness weakness thing that started in my leg and began progressing to my arm. It affected both sides but mainly one. Then more symptoms traveling up my body. Then I got thousands of nerve twitches everywhere, double vision, blurred vision, weird sensations, paresthesias, pain, etc. It was horrible. After so many weeks, I could barely walk and I had so much pain in my legs and weakness as well as this terrible pressure in my head and face. I had so many, many, many tests to rule out all kinds of neuromuscular disorders but earlier on a few providers thought it might be a milder case of GBS. I did get in with PT early and they helped me even though the cause of my problems was still up in the air. Everyone's case can be different but there are some things that follow the same. Some cases are more severe and happen instantly and I've found that other cases are slower and milder. I do know that there is a higher incidence following the flu shot than other vaccines but it's still pretty rare. I think that it's underdiagnosed though. 

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    • Posted

      Wow strange that I also had it November 2/12 years ago that’s how it started with me to you know your not aloud to have a flue shot again I can’t not aloud .
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