Proctalgia Fugax

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I have had this problem since my late teens or early 20's. As I get older (now 56) this pain is coming much more frequently.

The pain generally comes when I am sitting or in bed, which is fortunate since the pain is so severe it is very difficult to do anything until the pain subsides. Each episode lasts 5 minutes or so (never actually timed them)

Since my early 20's I have brought this up to my Dr. and have been fully dismissed. Over the alst 10 years or so I never bother mentioning it when I change Dr's because I have not expected an identification.

While watching the Dr. Oz show on TV this morning this was brought up during a question period. This was the first time I heard of others having this and an identifying name for it. I now am able to do research on the internet and decide on further action.

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  • Posted

    : Kurt Karlsson - Canada Guest

    Post date: Mon Dec 28, 2009 9:33 pm

    Post subject: My relief from Proctalgia

    --------------------------------------------------------------------------------

    On my last post dated, Nov.19 2009, I forgot to mention something else that eases the pain away. I learned in the

    Canadian Army that if you have pain, especially leg cramps,( but any

    other pain also ), there is a way to ease it away.

    Pinch the portion of the skin ( between the nose and top of the lip, tight ),

    Sounds wierd, but it works, it has something to do with the nerves in that area.

    So last night when I had another attack of \"Proctalgia\", I used the

    \"Noxema Cream\" and pinched under my nose, hard.....pain was gone

    in 3 min. It seems it just stops the progression of pain from compleating

    it's cycle.

    Try pinching that area for any pain and see if it works for you. Let me know if it helps..........If it works, why suffer, won't hurt to try.

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  • Posted

    I am almost certain that PF is a result of unusual cardiac activity. This could be stress or activity related. In my own case, I noticed that intermittent episodes of arrhythmia always correlated with episodes of PF. As I grew older, arrhythmia attacks became more frequent, and were always accompanied within a day or so by PF attacks. Once I had been cured of atrial fibrillation (by ablation) the episodes of PF ceased completely and have never returned. If you suffer with PF, do get your heart rhythms checked out. Don't listen to GPs who claim not to know about PF. Some do, but very few have heard of the link with heart rhythm abnormality.
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  • Posted

    suffered from this since my early 20s. (male, 35 now). normally always came after orgasm. i've had a few episodes where it has came on during sleep by itself (most recent one was this)

    pain unbearable at times and can last about 20/30 mins.

    i used to try and go to the loo due to the overwhelming sensation, but if possible i don't recommend this, i think it intensifies the pain. i find it hard to lie down though, i tend to walk about slowly, crouch, lie , get up again.

    i'm pretty fit and eat as well as i can.

    just one of those things, i can live with it. just pray it never gets more frequent. i maybe get it 10 times a year max. defo not something i look forward to. but hey, it makes us stronger right? if we can bear this we can bare anything :p

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    • Posted

      Hey, I'm 17 and I've had this for about a year now. Unfortunately however I seem to experience this more often then I should. The pain comes every few days and I can't get to sleep because of it. The GP prescribed me cream.

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    • Posted

      Has anybody else tried the pinch method? (Pinch just above the upper lip really really hard!) It cures my attack instantly, every time, and the attack doesn't come back after I stop pinching. It's seriously been a miracle cure for me, FREEDOM!

      I'd like to hear if this works for others!

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    • Posted

      Wendy, I've had this since I was 13. I'm 42 now. My episodes come every 6 weeks in the middle of the night for 2 hrs of the most extreme pain to where it knocks me unconscious. Nothing has ever worked. My last 2 episodes I did the "pinch above the lip", & w/I 30 seconds my episode was completely gone. So you are right. This sight was a godsend for me because I finally found freedom. Thank God for the person who referred the pinch method on this site.

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    • Posted

      My episodes are similar, try chewing two 325mg Aspirin. This cuts the duration in half for me, making the duration last about 5-10min. Its terrible but this is the only thing I have done that works!
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    • Posted

      What works for me is taking a magnesium supplement. Haven't had any episodes since I started doing that. As soon as I try to go off, they come back. It's what works for me lately. I would get a attacks 3 or 4 times a year and then the last 3 years started getting them a lot. Sometimes twice a day and at work instead of just at night. Also started having leg cramps. Decided to try magnesium as I knew it would stop the cramping in my legs and it worked for the PF as well. Worth a shot anyway. Nothing to lose if it doesn't work.

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  • Posted

    those are my symptoms EXACTLY. and after years of fighting it i have had to reluctantly admit it is chronic and i will have to live with it. having passed out a few times with it, it is rather scary though. i wonder if dehydration may have a role to play, or a reduction in mineral levels - it is a muscle spasm like cramp after all. am going to ask my gp for either super strong painkillers or an inhaler to relax the spasms as some have had success with that
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  • Posted

    My pain started about about 18 years ago. Fullness in the rectum and pain when sitting. I had all the standard tests...Diagnosis was anal fissure. Two operations later, loads of anal exams, MRI scan, camera up the butt, drugs, lotions, potions, the pain is worse than ever...constant. My dr always said it was Proctalgia Fugax, a loose and undefined term. After surfing the net (on the recommendation of the pain doctor ) I have come to the conclusion that I have Levator Ani syndrome. I have read all there is, and have come to the conclusion that there is no treatment at all. It is crap thinking that I am going to have this pain for the rest of my life...at least it is not life threatening
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    • Posted

      Hi, I have just come across your post while looking for some answeres. I hope you dont mind but I was wondering if you had any tips on levator ani syndrome. I have had it for over a year now. I do a lot of different things which do help but today I seem to of gone back to squqre one with pain and have spent the day on a heat pad. Would you please let me know if you can help in any way.

      Thank you in advance.

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    • Posted

      I have been suffering from PF from last 7-8 years, it comes once or twice in six months, usually happens during sleep and wakes me up.

      I have discovered that the following exercise always works for me and relieves my pain in about 4-5mins.

      I lay down on my back and move my legs in the air like I'm cycling in the air... It always works for me.

      If I'm sleeping alone I do it on my bed itself, or if my partner is sleeping next to me then I do it on the floor to avoid disturbing partner's sleep.

      I hope it helps you too.

      Regards,

      Prayer

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    • Posted

      Wish I read this minutes ago! I would have tried that! I am so glad I found this site! There is an actual name to the pain that I have been getting since my teens! This last episode lasted over 20 minutes which is the longest ever, so I decided to do some research since I was practically paralyzed with pain. All my G.I. doctors just told me I have IBS all these years and looked at me strange when I explained this very distinct pain (not the normal IBS pain I had almost daily). Thank you all for sharing!
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    • Posted

      Hi

      Please search this forum for discussions on the punch technique. It totally solved the problem for me so hopefully it will for you as well. I've been using it for well over 10 years to very quickly and immediately stop an attack.

      Jim

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    • Posted

      Jim, thank you so much for sharing this technique!!!!!

      I've been writhing in pain for 2 hours just now and decided to Google PF relief, so here I am.... Actually I started with the "pinch the skin between the nose and upper lip" technique that was mentioned here, and that worked too! But I found when I stop pinching the pain came back. So I punched, and now I'm fine! A miracle!

      Thank you all!!!! I can sleep again!!!!

      (My attacks happen maybe twice a year, last an hour or two, and often come on after I've had an episode of diarrhea. Forgive the image! Anyway I also get pain "in the front" like Jo's daughter, just because the spasms are so painful that I can feel a dull ache in my abdomen. Boy I hope Jo tried the punch technique! It's really not a painful punch, more of a firm connection.)

      Off to sleep again! smile

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    • Posted

      Most recently, after becoming severely dehydrated I also became severely constipated. After an agonizing 4 days I slipped on a finger stall and physically removed a very hard stool from the rectum.

      Yes it hurt, hurt, and did I say hurt. A couple more over the night hours and then my doctor said get Microlax and give yourself an aenema. I held the substance for 15-20 minutes and with some effort expelled an enormous stool

      followed by many others over a full 24 hours at about two hourly events. In the initial finger events I discovered that the area closest to the tail bone was highly sensitive and initiated the same pain as the proctalgia.Researching I discovered the truth.

      It is a severe nerve spasm of the internal sphincter muscle(s). Hence it can be stopped by activating nerves elsewhere. Also for some a banging action to break the spasm, but care is needed

      to prevent damage to vertebrae. I would expect that there would be other acupressure points similar to those between the nose and lip. The rectum can become full very easily and low down by the Anus the dried out faceal material can no longer be re-hydrated and builds pressure on the nerves.

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    • Posted

      Replying to my own post, after a couple of months!

      I've noticed the punching technique doesn't work so well for me anymore, but a MAJOR thank you to the person who suggesting pinching the skin between the nose and the upper lip!!!!  That's my go-to solution now, and it's something I can do anywhere.  (On rare occasions, I get an attack in the middle of the day, at work, and this is a lifesaver.)

      I had an attack in the middle of the night a few nights ago that woke me up (of course), but I pinched and was able to fall back asleep within a few minutes.  I used to suffer for hours.

      This seems to be happening to me much more frequently in the last year... sad

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    • Posted

      Yea Billie. I get the same type. Once every 6 weeks like clockwork, I'll get an attack around 3am while sleeping. Mine are the excruciating pain type. For 2 hrs (same length of time every time) it's so unbearable all I can do is scream & pray to be dead it's so bad.

      The pinch right under the nose & between upper lip (it's like right where bottom of nose bone is) technique helps tremendously. There's a nerve that runs there that takes the pressure away for some reason. Pinch hard. After a minute the pressure will begin to lessen significantly.

      Sometimes, if I can catch the attack right when it begins, the pinch will deplete it all together. But if it alrdy in full swing, it just lessens the pain by 3/4 intensity.

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