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Proctalgia Fugax

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I have had this problem since my late teens or early 20's. As I get older (now 56) this pain is coming much more frequently.

The pain generally comes when I am sitting or in bed, which is fortunate since the pain is so severe it is very difficult to do anything until the pain subsides. Each episode lasts 5 minutes or so (never actually timed them)

Since my early 20's I have brought this up to my Dr. and have been fully dismissed. Over the alst 10 years or so I never bother mentioning it when I change Dr's because I have not expected an identification.

While watching the Dr. Oz show on TV this morning this was brought up during a question period. This was the first time I heard of others having this and an identifying name for it. I now am able to do research on the internet and decide on further action.

7 likes, 261 replies

261 Replies

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  • phyllis96278
    phyllis96278 Guest

    Posted

    I also have had this pain for approximately 4 years. I brought it up to my acupuncturist 6 months ago. She asked me to bring in some lubricating jelly the next time I come in. She did an internal manipulation(twice) of the muscle above the rectum. I have been proctalgia free for 6 months!! Please note that I had proctalgia almost EVERY night so this is like a miracle. 
    • vanessa12916
      vanessa12916 phyllis96278

      Posted

      Not sure how my male acupuncturist would respond to this. Is there any research that she could pass on to allow others to give the same treatment? Could she say what muscle to massage to allow replication by other practitioners?

      I have had pain twice in last week and appears to get worse.

    • dave97318
      dave97318 vanessa12916

      Posted

      Vanessa, have you tried the punch method that was described earlier?
    • phyllis96278
      phyllis96278 vanessa12916

      Posted

      Hi Vanessa, the manipulation that she did was very simple and I'm sure your acupuncturist could tell someone you trust to do this. It only takes seconds. I wish you well
  • lalaxton
    lalaxton Guest

    Posted

    I too have suffered with this for the last 10 years. It can happen any time, night, day while driving, once in the middle of an interview! (I did get the job). I am also a Nurse Practitioner and have tried to find any relief in any way possible. Many you have mentioned here; muscle relaxants may help (valium is a bit extreme though and highly addictive) try Robax (over the counter in Canada) or Flexeril (prescription). There has been one study showing some releif with Ventolin (inhaler for asthma). It has lessened the duration of the pain for me. Works fast but you also need a prescription for it. As for using an herbal product as seen on Dr.Oz, the only issue I have with that is that many of these products are unregulated and you have find a manufacturer you can trust. Buyer beware!

    I will have to try the "Jim cure" next time. Your theory may not be sound Jim but it is a simple and drug free solution! Thanks for sharing.

     

    • jim77426
      jim77426 lalaxton

      Posted

      Hi 1lalaxton,

      I am honoured that you plan to try "my cure" next time PF "rears" its ugly head.

      Hopefully it will work for you as it does for me and many others and enable you to stop it in its tracks every time. (Congrats on getting the job!)

      Cheers

      Jim

      Vancouver

    • itsapain
      itsapain lalaxton

      Posted

      hi lalaxton

      ​valium is addictive and i only use it during an attack. self control required. but it works!

    • amanda08914
      amanda08914 lalaxton

      Posted

      Hi,

      I am still trying to figure out if this is what I have. Can anyone tell me if my description of "trying to have a baby through my intestines" is similar to your symptoms? I have had this for years and it comes about 2 times a year but never at night. My GI Dr. Just looked dumbfounded when I tried to explain it to him. I finally, today, ran across this foru as I was I the middle of the longest attack I've experienced.

      Painfully yours,

      Thanks for the help!

    • cory31975
      cory31975 amanda08914

      Posted

      Amanda,

      For me, it's my actual butthole. I apologize for being so forward. My butthole has a Charlie horse like a leg calf muscle does on people. But the pain is ten fold. Screaming, passing out, etc.

      Cory

  • gordon51642
    gordon51642 Guest

    Posted

    This seems to work for me .I take a magnesium tablet each day .The attacks are far fewer and a lot less severe.I hope this helps you guys
    • lovemuffin
      lovemuffin gordon51642

      Posted

      Thanks, Gordon

      In addition to magnesium,, I take potassium and msm. I also avoid dairy soy preservatives.and sugar. I eat the same high protein diet daily. My consumption is limited to unshelled pecans, oatmeal, chicken/turkey and water. I'm very grateful for what I can eat.

    • rojotoro
      rojotoro gordon51642

      Posted

      Magnesium is interesting, I looked and cramping is one of the symptoms associated with a deficiency. 

      https://en.wikipedia.org/wiki/Magnesium_deficiency_(medicine)

      "gordon" I don't work in healthcare like you and so have no training, but I was surprised to see you note that Valium is addictive. 

      I guess people can become dependent on anything, colored water for example. But I've taken it for neck pain off and on for years, I guess everyone is different, but when I don't need it I have no desire to take it. And I have 100 of them sitting in the closet.

      Which I suppose brings up a good point: Everyone is different, different outcomes for people with similar lifestyles, and the opposite is true as well. 

      What triggers an attack of PF in one person, and what cures it could be completely different across a population of people who all share a common symptom.

      A right pain in the arse.

    • rojotoro
      rojotoro lovemuffin

      Posted

      I don't want to second guess your diet, but at a glance that doesn't sound very healthy?

      Np fruits, no vegetables? None? Also, what about your B's? 

      Not being critical, just trying to imagine life without wine and chocolate? That's a world I don't want to live in. Oh, and coffee, yeah that's not even close to negotiable. 

      Is it possible you have food issues?

      I'm sure you have a good reason, not intending to criticise. But if you're stable on that diet do you ever try reintroducing other foods to see if you can tolerate them?

  • Isa123
    Isa123 Guest

    Posted

    I have had these symptoms for many years. I remember having them only a few times as a pre-teen/teenager and then they have gotten more frequent into adulthood.

    Last night it happened, and I went to the bathroom but then the pain was so intense that it caused me to feel nauseous and dizzy. So I tried to get up to go to bed, walked straight into the door frame and hit my head. I'm pretty sure I lost consciousness for a few seconds as I lay on the ground.

    This is the second time with the nauseous/dizzy. The first time similar results, but less disatrous. Has anyone had these additioanl symptoms?

    • lovemuffin
      lovemuffin Isa123

      Posted

      Hello

      Thanks for sharing your experiences. I too began experiencing pf in my early teens. I can recall one account in my terns where I awoke and thought I was walking until I hit the floor because could not walk for hours. At some point, I crawled to a phone...to seek help. The pain/experience was extremely traumatic. I'm soon to 55 and my struggles with pf pain and severe food allergies have increased immensely.

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