Posted , 27 users are following.
I'm just hear really to see if I can find some support to help deal with this god awful disease and also to find out if others are experiencing the same thing I am really. The attacks started about 5 years ago now it's pretty standard and the attacks are always the same, I awake in the middle of the night with severe pain like a burning feeling, when I make it to the toilet I am saturated in sweat and coming in and out of consciousness, I try to tell myself I'm not dying (but the pain is so bad I don't really convince myself lol) and normally end up with 3 or 4 waves of diarrhoea. I usually faint and the last time I cracked my head open on the doorframe and needed seven stitches in the back of my head. I had a bowel perforation when I was 19 (I'm 28 now) and to tell you the truth I hate self pity but I am so fed up right now. I had a daytime attack 2 weeks ago and ended up in hospital for 3 days which is where I was actually given a name for this total pain in the butt, I'm still in pain now and I just don't know what to do, is this normal? I'm not sure what I really need but a friend would be nice who understands as I dont really feel all my family and friends as supportive as they are can really understand the terror that this thing causes especially in the middle of the night when no one is around etc.... I'm so sorry to ramble, I'm just so relieved I'm not the only one and that I finally have a name for this thing and perhaps I can now start to accept this is something I have to live with even though it is horrific lots of love and best wishes to u all ashley xx
1 like, 64 replies