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proctitis only found on colonoscopy but still sick

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Lea1788
Lea1788

They only found proctitis on my exam and the biopsy came back clear. I have been sick for almost 2 years with sever mucas in stool, blood in stool not a lot though, nauseous every day and sever constipation if not diherrea. I have sharp pains on left side and right side under ribs and vice my belly button.

I go through cycles of feeling sick for a week or two too feeling great the next week or so.

Doctor said on my follow up appointment there is nothing left to do and can not help me. The best thing to do is eat right and exercise. Yea like I really feel up too exercising when I'm sick most of the time. I didn't even get a stool sample or any other testing.

What do I do now? Should I just leave it alone and live this out or see someone else. Can a colonoscopy come back normal but still have IBD just because there was no flare up at the time?

0 likes, 4 replies

4 Replies

  • Lea1788
    Lea1788

    Posted

    Oh and I forgot I got an endoscopy and found a benign stomach tumor and was diagnosed with GERD and antral gastritis but never got treated for any of it.
  • craig84609
    craig84609 Lea1788

    Posted

    Proctitis is IBD of the rectum. They should be able to give you a steroid medication in the form of an Enema or foam for it. Seek a different doctor. The answer to can you have IBD with no evidence from colonoscopy is yes. It can go into remission at times, but you do have IBD if you were found to have Proctitis. Not sure why the doctor isn't doing anything about it.

    • Lea1788
      Lea1788 craig84609

      Posted

      Thanks and I thought I was crazy, when I looked proctitis up and what caused it there were some crazy nasty stuff on there that didn't apply to me but the one that was a possibility was IBD. But at the same time they did a biopsy of the proctitis and it came back negative for any cause so it was marked down as unknown proctitis. I think my husband drilled it into there heads that I had so many bowel movements before the colonoscopy who wouldn't have an inflamed rectum after that. They took a blood test and the blood test were normal and showed no signs of IBD or anything else. Yet I'm still sick and in pain with no answers 🙇🏻???🤷🏻???🙍🏻

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