Posted , 4 users are following.
I have been diagnosed with proctitis and are awaiting to see what has caused me to have the condition. I have read various websites about what can help the pain but many of them are either unrealistic (cutting out 101 amounts of foods) or to avoid foods that i have eaten and do not make the pain any worse.
Does anyone else suffering with the condition have any pointers or tips to make the pain better?
0 likes, 11 replies
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Metaxa brooke22
Posted
Proctitis is no fun at all
I too suffer with inflammation in the lower part of my bowel and it is so painful. I have found being put on a low fibre diet helps a little in the mad rush I get to the loo. However this was done by a dietician and I think if you are having problems with what to eat/weight it's a good idea to see if you can be referred.
I am currently on a combo treatment of Mesalazine and Colifoam which is a foam enema for the lower part, Mesalazine wasn't enough and it was still raw hide for me. Re drugs ask your GP or consultant. At the moment apart from a blip fingers crossed it's calm at the time of typing this.
(I hope!!)
Finally I find codeine helps with the pain, again ask a GP re painkillers and I am on lactose free milk and white bread which is a godsend with trips to the loo it suits my tummy better and doesn't aggravate it quite so much.
I hope this helps you.
Good luck
brooke22 Metaxa
Posted
May I ask how long you have suffered with your proctitis?
Metaxa brooke22
Posted
Your reply is interesting. Do suffer badly with constipation?
I am complete opposite.
In terms of bowel problems I have been suffering around 2 years, I ignored my symptoms until I was passing blood lots. Colonoscopy was Sept 14 but diagnosed finally Nov 14 after an emergency admission to hospital.
It took a while to get my meds up and running, Mesalazine is the treatment for this and foam enemas for the lower bowel but there are many other drugs too.
What does your GP say?
Good luck I hope you get your meds sorted quickly and start feeling better.
brooke22 Metaxa
Posted
I don't think I had any noticeable symptoms until passing small amounts of blood which continued to happen, this occurred mid September. At first they thought it was an infection, proven wrong by a stool sample. Blood was taken and all was absolutely fine, I had my flex sigmoidoscopy mid December and was diagnosed with proctitis. I am yet to get my biopsy results back which I am expecting mid January.
I haven't been given any treatment at all apart for the advice to make sure I try to pass stools once a day. Dissapointed I haven't had any pain relief, but the pain only occurs before and during the passing of stools.
Is proctitis not curable then? Also, do you know what yours is caused by?
Metaxa brooke22
Posted
Not sure how I got mine
only thing I can think of is genetics, UC is immuno and my family has a history of immuno/bowel problems so that's the only thing I can think of.
As for results ask the GP to chase the hospital they have more clout. If you get pain tell your GP, I had had enough with cramps and being sore there are meds for lower bowel but ask the GP on this one.
Hope it all goes well let me know when results are.
brooke22 Metaxa
Posted
Metaxa brooke22
Posted
Before I had medicines it was there all the time and I felt awful for about 2 years.
Now I am on treatment I am definitely better than I was, your question is tricky to answer because I am still learning too!!
I am at the moment controlled with medicines, it hasn't quite gone into remission yet and I am seeing a specialist nurse who is keeping an eye on me and a dietician who is keeping me for the time being on a low fibre diet as any form of fibre sets it off.
When I see the nurse and dietician I will be asking your exact question re diet and what I am supposed to be doing as well.
Let you know the answer!!
brooke22 Metaxa
Posted
sandy17221 brooke22
Posted
Hi Brooke I've had this problem for several years but camera up showed nothing except the pain was awful (didn't have a sedative). What I don't read on anyone else's symptoms is that the inflammation and pain is so bad I can't wee properly either and keep needing to go but can't get rid of much. I guess we all experience it differently. Because nothing was found from the camera going up I feel that the doctors think I'm making it up. I know chocolate makes me sting and very inflamed but still trying to find other triggers. Have to be careful with fruit. I only find antibiotics help but don't like taking them and do put up with it as long as I can stand it. I have a friend who gets the antibiotics over the counter in Spain. I feel for anyone who has this pain and inflammation.
Dire03186 sandy17221
Posted
Hey, sandy how are you now? I know its long gap. But mine's symptoms are similar to yours. I would like to know your insights here.
sandy17221 Dire03186
Posted
Hi there I've never met anyone else with an awful inflamed bowel before if that is where it's coming from. If it gets too hot and sore I get terrible pains up each side of my tum. Had itn14 years now think doc/hosp think it's all in my head. New doc at our practise and hubby went with me and she did blood test for gluten but it was normal and she did say to go back so have app next Wed. Had two cameras up over the years they never find anything and last one hurt so much I was screaming at the guy to stop. The nursing sister said I need a scan but never been given one. Do you have any tips to put up to stop the stinging and heat.