Progress ...or regression

hello all.

its been a while since I have written .

My journey from my body falling apart last April has been tough ..

I was given a diagnosis of PMR following lots of tests etc aswell as hemachromostasis and osteoporosis 😬

In regard to PMR I gave gone 3 steps forward and 6 steps back .

i believe this is because of my inpatience attempting to reduce to quickly ....I've certainly learnt my lesson the hard way 😞

During this time I have also lost my sight in my right eye , which has resulted in going back to 20 mgs each time with sight and severe temporal pain vanishing within 24 hours .

4 fractures !!!! Spine ,ribs ,foot and most recent my wrist ..

i was off work for 6 months returning in September , but I have struggled and am worried how I can sustain this . The tiredness , poor balance and severe pain following spinal fracture , which required vertoblasty is awful ...

i have currently been off work again following falling 2 weeks ago (hips awful balance appalling ,but had tried reducing again to 15mgs with rubbish effect )

my rheaumatologist has now popped me on Azathioprine in view of reducing pred (currently on 19mgs pred ) commence on 25mgs 4 weeks once daily then increase to 50mgs .

I would love to hear from any others who have taken Azathioprine 

The other question I have , is regarding severe muscle weakness !!!

although this has improved throughout my journey ,my arm , leg and back muscles are no where near the point where I can carry things ,walk , push pull etc without pain and discomfort .

is this to be expected ?

my vit d levels are now back in the normal range following the 6 week treatment last April which is good .

i have also had a bone strengthening infusion and am now on acreete twice daily .

any advice would be greatly received 

best wishes to all 

Helene x

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