Prolactin levels fluctuating?

Posted , 3 users are following.

May 18, 2017 : 198.4 ug/L - Dostinex 2 pills per week

June 27, 2017 : 71.3 ug/L - Dostinex 2 pills per week

July 25, 2017 : 91.2 ug/L - Dostinex 3 pills per week

I don't understand why my prolactin has gone up when I increased the dosage here. This is so frustrating and I am wondering if it has happened to anyone else? 

 

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  • Posted

    After 14 years on Bromocriptine then cabergoline I was taken off meds 4 years ago, even at that time my prolactin was at a level of over 600. At present it stands at 780, but I am still not on any medication. After an MRI, I was told by my endocrinologist that my prolactinoma had not grown, and that prolactin can rise if you suffer any pain, even stubbing your toe. I occasionally take ompromazol for acid reflux, next month I am too spend a day on a dayward where I am to have canulated blood tests, this he informs me is the only way they can tell if it's your prolactinoma that is producing prolactin or not, he also said that I should stop taking ompermazol as this interefers with the production of prolactin. On the basis of that I wonder if other medications could have the same effect. Good luck.

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  • Posted

    This happened to me too. I don't know why. I would give yourself time sometimes it takes your body some time to adjust to new pill increases. I'm on cabergoline currently. 

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    • Posted

      Hi, I've been off meds for four five years now, and my prolactin levels are still elevated, recently I had a canulated blood test at hospital, where I spent 3 hours on a ward, having blood taken every hour. 1st hour 630, 2nd hour 628 and third hour 614. My endocrinologist has requested my GP try me back on Bromocriptine, and has almost aranged an ECG. May I ask how long have you been off meds, and what your prolactin levels are now ? Thanks for the reply.

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    • Posted

      I live in the US so the levels I think are different but at the beginning when I was diagnosed about 3 yrs ago I was around400. I was on cabergoline and my levels for the most part were going down but then they started to go up ago, not much but you'd think with melds they'd keep decreasing. I got to a point where surgery seemed the next route so I had a transsphenoidal pituitary surgery but the surgeon couldn't get all of it out. My levels in hospital right after surgery were 25 which is normal so I thought I beat it. But I started to feel that pressure between my eyes again and I knew it was back, so about 3 months later I had another MRI and bloodwork and my prolactin levels are right now back up to 78 I was put back on cabergoline 1/2 pill 2 times a week. I go back in October hoping it is going down! 

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    • Posted

      Hi, I was diagnosed in 1996, then my prolactin levels where really high, in the thousands, and I'd been suffering for years not knowing what it was, each time I had a blood test it came back as negative. Not until I had an MRI scan and canulated blood tests did they find I had a pituitary Tumor. On endocrinologist whom I see, the one who took me off meds, told me that they don't treat until the levels have reached 2,000, which sounds rather high too me. Another endocrinologist, the one I have had for my last two visits, said that my levels, where  elevated, and asked if I would be prepared too continue treatment, my last visit, which was just some weeks ago, from which I have received a letter, suggesting that my GP start with treatment once more, in between my consultant visits I see a specialist nurse, whom has repeated each time, that in his opinion I should be receiving treatment again, this over a period of four years. When I was diagnosed my levels where 5,000, I was started on Bromocriptine and soon my levels fell too 25 also, but have slowly risen over the years, the frustrating part for me is, that I know the normal level is 400 or less, mine, like yours was at the begining in the 700/900 bracket even when they took me off medication. Shortly I will be on medication again and hopefully I will see some fast results as before. The endocrinologist whom I first saw all of those years ago, I am told is working in America, his name is professor Kennedy, he was a fantastic Dr, and sometimes I wish he was here now. I hope you find some answers yourself, and your levels start too drop. If I may ask, please keep in touch with me, as I would be interested too know how things go for yourself, especially as you are appearing too have the undulating prolactin results as myself. Take care, and going forward I wish you well

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