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I'm a 30year old active female with a history of prolactin/pituitary problems.
- when I was 17 I was diagnosed with a pituitary marcro adenoma. I responded well to cabergoline so no surgery was carried out to shrink the tumour. - - When I was 19 my MRI showed a small bleed to the tumour which caused it to shrink completely.
- when I was 21 I was taken off cabergoline and my prolactin levels remained normal for a few years.
- when I was 25 I noticed familiar symptoms, breast discharge and fatigue so went back to my consultant. My prolactin levels creeped back into the abnormal range and I was put back on cabergoline. MRI showed no tumour.
- 3 months back into treatment I found that cabergoline was making me incredibly tired and low so my consultant switched me to Quinogolide (norprolac) which worked and gave me no nasty side effects.
- I'm now 30years old and last year my consultant and I thought it was time to stop medication as my prolactin levels remained in the normal 300 mark. 2 weeks after coming off my medication I noticed my moods changed significantly and my sex drive vanished. I went back for immediate blood tests and my prolactin levels had raised up to 700! I went back on Quinogolide to reduce the levels and once again felt OK.
- I recently had another MRI to see if there had been any changes. My MRI was once again clear.
I'm incredibly frustrated and gutted to still be taking medication for something that I simply don't understand. Why are my prolactin levels continuing to rise yet I no longer have a pituitary tumour!? I go back to see my consultant in a couple of weeks but I fear that nothing will change and I will continue to treat a problem rather than get to the bottom of the cause :-(
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