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prolactinoma?

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maddisonmin
maddisonmin

Hello all!!

Soo i have some worries, that maybe some of you could shed some light on?

I started having irregular periods, and i went to the doctor, who said 'your fsh and cortisol are high'. So i said thats fine, i dont want kids of my own...

And then i googled! lol. I saw that galactorhea is not as common as i thought. I am 34 and have been having galactorhea for at least 10 years now. Sometimes is daily, and for the past few months its rare, but still exists. I thought it was common for women.

I am away on vacations for three months and i wont be able to do further testing before i am back.

But im worried. I contacted some specialists and all are asking about my prolactin levels, which the first doctor didnt test. 

In general, i dont have hot flushes, or whatever 'the change' brings. I am feeling cold all the time actually. I have a heater on my desk and under my desk at work lol

So my questions are...does a prolactinoma cause high fsh and abnomal periods?

Can galactorhea have fluctuations? 

Can you miss a prolactinoma on a simple mri?

 

0 likes, 5 replies

5 Replies

  • dambudzo
    dambudzo maddisonmin

    Posted

    hi

    you might find some helpful answers to your questions on the website of the pituitary foundation. (USA: pituitary organisation - i think)

    it would be worth going back to the doctor and checking your prolactin. also, how high is your cortisol? that might also indicate a problem.

    good luck

  • courtnay26
    courtnay26 maddisonmin

    Posted

    high cortisol can mean Cushing's Disease

    or Cushings Syndrome

    Sometimes it is the result of taking steroids

    but when its not it can be more serious

    Cushings is usually caused by a tumor

    which they call benign but it isn't because

    it is still a tumor

    Dont worry though , if it is a pituitary tumor

    it can be easily removed

    but a very good surgeon is required

    • maddisonmin
      maddisonmin courtnay26

      Posted

      can the gallactorrhea fluctuate?i had tons of it years ago, now its more subtle
  • courtnay26
    courtnay26 maddisonmin

    Posted

    hi Madisson

    It doesnt mean you have a tumor

    it is just a theory

    I'm going through a lot of this now with my doctors

    I missed my period for half a month or so , then it became normal again

    so really don't worry , it is not

    cancerous, as a doctor might say

    • courtnay26
      courtnay26

      Posted

      my advice would be to follow up with a pituitary center like Johns Hopkins, depending where you live but the best centers are probably in the US
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