Posted , 3 users are following.
I have a prolactinoma, but even with medication it hasn't gone away... Iwas diagnosed with a prolactinoma (I think a macroadenoma, so a large one) last year because I wasn't getting periods. I got an MRI and lots of blood tests and got given a prescription for Cabergoline. It's really good (not much side effects) but sadly it hasn't worked, I've been taking them since the start of January this year. The doctor recently put me on double dose (4 tablets a week!!) and I've been doing that for about 3 weeks. A while back results showed that my prolactin levels did go up, but not to the levels they wanted. I know it's not a quick process but I'm getting a bit worried, what if nothing works? I feel like I've been on it for a long time. Would I ever have to get surgery to get it out, or radiation? I'm quite scared of those things so I'm a bit worried. Anyone got any experience or advice?
0 likes, 5 replies