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Prolapse, haemorrhoids, Intussuception NO CLEAR ANSWERS

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sandra2468
sandra2468

Any ladies out there with prolapse, haemorrhoids, and distal intussusception

My obstruction feeling is a feeling of incomplete evacuation.

After a bowel movement I feel as though I still have something there.

There must be some trapping re this distal intussception, which I don't fully understand.

However this feeling of incomplete evacuation/ blockage remains all day not just after a motion, however just may be if I learn how to digitally evacuate I may feel better.

Discharged NHS from London hospital for pain management on the colorectal side many months ago now.

I had to go and have another proctogram in sitting position privately which gave added information distal intussception.

I have seen 3 colirectal specialists privately.

1). Banding of haemorrhoids was mentioned as a way forward.

2). HALO surgery was also offered by a specialist for haemorrhoids.

3). A stapled procedure was also offered for mucosal prolapse, (lining of bowel down.

I was getting different points of view which was making me think I need to wait and consider my options here.

I was having haemorrhoidal problems swollen veins, residue of skin tags also a thrombosing of a haemorrhoid, however no usual haemorrhoidal symptoms. No constipation, no continual bleeding, no itching. 

In fact I had one episode of bleeding which led me to have a colonoscopy which was negative.

So I have been getting differences of opinions on the colorectal side and finally now have been offered investigation under anaesthetic and possible banding by one specialist. Or an investigation by another at same institution incorporating a diagnostic nerve block injection for a trapped nerve in the bottom. This nerve block injection is done as a blind procedure and I am 

worried to have this.

On the gynaecological side, I was told by one gynaecologist that he was not convinced that I had true uterine prolapse even though my vagina is at entrance of vagina and bladder well down because my symptoms are not worse at end of day which you apparently get with uterine prolapse. 

However uterine surgery has been advised by 2 gynaecologists and I am grateful one gynaecologist questioned my symptoms and was not convinced a uterine operation would infact help me. He is seeking the opinion of another gynaecologist at present.

So here I am and it's been a long haul but I am glad I haven't had any procedures advised as I could be in a worse state.

For the time being I will struggle with anal sphincter exercises and try to take my mind off all of this.  If I can strengthen the muscles I may be able to salvage all of this and prevent uncertain surgeries.

I have suffered for 3 years+ with an obstruction feeling in anus/incomplete evacuation.

I wake early morning with this discomfort which is worse from lying on my back, especially worse when sitting and eliviated with standing but still there.

I do not suffer with constipation or bleeding.

In fact I have the opposite as my anal muscles are sometimes not able to keep control and I have the occasional accident. Hence I have a little stress incontenance especially in the morning with No 2.

I have uterine prolapse womb at entrance of vagina, bladder down and lining of bowel down (mucosal prolapse)

Gynaecological opinion is that I could have a prolapse surgery however this may not sort out my anal discomfort and I may need a subsequent surgery with my anal end.

After reading opinion re prolapse especially on this forum, it looks as though many ops are not sussessful.

Also I do not have prolapse pain or dragging at end of day so my symptoms do not fit with total prolapse issues.

Colorectal opinion had been confusing.

1.  HALO surgery recommended

2.  BANDING recommended

3.  STAPLED OP recommended

4.  Investigation under anaesthetic to access prolapse with possible banding.

5.  Pudendal nerve block done as a blind procedure to see what may be connected to a trapped nerve in bottom or prolapse.

6.  Biofeed to strengthen muscles with physio/nurse.

It would be a miracle if I could strengthen my muscles to prevent surgeries where there are no guarantees.

Again these prolapse surgeries appear to overlap.

Every specialist has there own expertise.

I am thinking that I may end up with a hysterectomy and then a ventral rectopexy. 

Any other ladies with similar problems kindly make contact.

0 likes, 3 replies

3 Replies

  • moira34394
    moira34394 sandra2468

    Posted

    Sandra, I'm sorry, I can't advise you on these problems, but my heart goes out to you. I think you need to find a consultant you feel you can trust. You said, ' I am grateful one gynaecologist questioned my symptoms and was not convinced a uterine operation would infact help me. He is seeking the opinion of another gynaecologist at present.' This sounds like someone who is seeking an answer, and not just charging in with his own specialism. I would decide what is the worst problem, and seek help with that. It seems as if there's too much going on to fix all at once.
    • sandra2468
      sandra2468 moira34394

      Posted

      Thanks Moira,

      I have urge incontinence with my bowel, as well as uterine prolapse which doesn't appear to be significant but may be influencing all of this.

      I believe I may have found a colorectal chap who does work with a gynaecologist but they are few and far between.

      Also every surgeon has their own specialism when it comes to surgery.

      I will do my utmost to continue with some biofeed back, in the first instance to try to avoid any surgery.

      This has been 3 years+ now.

      Thanks for making contact.

      Sandra

  • angie67540
    angie67540 sandra2468

    Posted

    Hi Sandra,

    I also have similiar discomfort, i constantly feel like incomplete bowel movement. Or should i say the feeling of going to toilet again even after i have cleared myself. 

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