1. Community
  2. Bones, joints and muscles
  3. Polymyalgia Rheumatica and GCA

Proper Response to Flareup?

Posted , 15 users are following.

bob73443
bob73443

Hello all you wonderful people.

I've been diagnosed with PMR since last July and on prednisone ever since.  I used the gradual withdrawal method to get down to 10 mg/day and have been at that dosage for about 2 months.

But after coming back from a business trip last week, I think I'm in the midst of a significant flare-up.

Here's my question:  I'd rather NOT increase the dosage to deal with the flareup and just wait for it to simmer down on its own.  But is that possible?  Can the inflammation simmer down on its own or will I have to increase the dosage to deal with it?

Thanks all!

1 like, 20 replies

20 Replies

Prev
  • Padada
    Padada bob73443

    Posted

    It was interesting to see that Eileen mentioned 'selfish demands' by friends and family are to be avoided.  My stress over the holiday weekend was due to a family member that asked if they could spend the holiday at my house.  I originally said that I did not feel well enough to entertain, but then I felt guilty saying no, so I relented.  Must remember that people can be selfish and that I must stick to my guns.  It is hard to say no sometimes.
    • ptolemy
      ptolemy Padada

      Posted

      I have the same problem Padada. People think you look and sound OK and they fancy a trip out. I have turned down relatives several times and they still keep saying they want to visit plus all the children! I feel so guilty saying no.
    • Padada
      Padada ptolemy

      Posted

      Yes, my company even said that I look fine. I suppose I do look fine except for the slightly chubby cheeks.   But it is good to know that I am not alone feeling guilty about saying no - thank you for sharing.
    • EileenH
      EileenH Padada

      Posted

      When we have visitors they get handed the bedclothes to put on the pillows and duvets themselves. When WE visit we take our own pillowcases and duvets with us - they have only to provide the pillow and bottom sheet.

      When we have visitors we eat out or do raclette - OK, I know we can afford it but if they help I'll eat at home. If I don't think I can manage - I say so. One adult couple visiting is one thing - the whole tribe? NO. If they want a free bed - and I'm fairly happy to provide that - they can contribute in other ways. I am not a free hotel service and the kettle and requisites are pointed out. 

      We saw what having the family to stay did to my MIL and husband when he had heart trouble so we always stayed with a friend or in B&B. He enjoyed seeing the grandchildren and we didn't have to worry about keeping them quiet all the time. David's brother once stayed in a caravan (far more money than us so why I never understood) and went to his mother's for all meals! Which rather spoiled the point I felt!

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.