Propranolol and migraine
Posted , 40 users are following.
Just to say how well this drug has worked for me, I have been on it for about 6 months now. I spent years resisting taking a preventative migraine drug, maintaining that I only needed to take my Sumatriptan when I had a migraine. But the frequency of the migraines increased, even though I had given up work. Finally I went to the doctor who prescribed propranolol, 1x40mg tablet twice a day. Even though the Dr said it would take time to build up in my system and start working; I noticed an effect from the morning after the first pill. Previously I nearly always woke up feeling stuffy, having to move around gently until the 'potential' headache disappeared, likewise during the day I would have to be careful of things that would trigger a migraine. Now I wake up feeling absolutely fine and am able to get on with life. The only side effect is that I do wake up more during the night, however I seem to need less sleep and have gained at least an hour of useful time each day. I do still get the odd migraine, but they are less severe than before and I recover faster. I also still avoid my triggers like lactose, alcohol and too many late nights.
3 likes, 98 replies
elseybellesC1
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El
G111
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arabella2
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vickih1977
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Kermodesmum
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I have just started taking propranolol after suffering horrific headaches since the age of 13. My attacks were unpredictable and left me bed bound for days. This is a miracle drug as far as I am concerned. Yes, I do seem to have put about ½ stone on in weight and my sleep pattern has altered dramatically…..but this all pales into insignificance when I think about the last 2 ½ months of being pain free!
Why did my old GP not tell me about this?
My concern and question is this:-
I have read a great deal about this drug, being used mainly for anxiety attacks etc. There is a strong message that patients must NOT simply stop taking them. As a Migraine sufferer will I be on this drug for the rest of my life, if so will I need to continue taking 40mg X day?
Guest
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ninger
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kmpro1133
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Kermodesmum
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I have been on Propranolol for the last 6 months now 40mg X 2 daily. Apart from restless night’s sleep occasionally I can’t say I have noticed any other side effects. I have gone from severe cluster headaches to the occasional migraine! Success! Having had migraine since I was 13 (now 51) this is a breakthrough and was only offered this drug treatment after getting a new GP!
My question is…..will I be on this treatment for the rest of my life?
maria02551
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I agree completely. I was put on propranolol 80mg slow release a few years ago, the brought my chronic migraine back to a manageable level. I came off them a year ago to start a family, which was unsuccessful however the 12 months were hell, my migraines were every 12 days of 4 day duration, violent sickness and screaming. Then the days in between were headaches and background migraines, I gave up my job to live off savings and the pain just got worse. Then they never stopped from dec 2013 the pain was 24 7 with a massive migraine every 12 days. I was starting a new job and terrified my life was never going to get better. My new doctor said he won't do any referrals to my neuro until I get back on treatment. I didn't want a daily tablet again but just bit the bullet and did it. Two days later that headache lifted!!!!!! It was amazing, I'm on week 2.5 and I'm doing so good. I e had headaches but nothing horrendous, and I'm working again and living again. That constant pain just evaporated, and my sumatriptan controls the bad migraines.
I have to recommend buccastem antisick to all the fellow migrainers, especially us menstrual migraine ladies. Since I started to take buccal them at the start of an attack I can usually stop the vomitting, also this stops the stomach shutting down so trip tan gets absorbed, so the migraine never gets unbearable.....it was getting migraines where no one could help and I thought I was dying, but I never used to take antisick. Now every time I feel bad attack starting I put a buccastem under my lip, then 2 x 400mg ibuprofen on advice of Neurologist who suffered migraine herself....thus can stop an attack and keep it handle able to work, if it breaks through again then another antisick and sumatriptan should keep ypu going. Obviously it doesn't stop the attack but I haven't had a day in bed for a while!!
maria02551
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YorkshireLass1
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Not sure if I need these tablets forever, or maybe my body just needed a kick start and I will be able to come off them. Don't really want to stay on them, especially because of the weight issue, but you have to weight these things up.
ninger
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beverleys86
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Maddy
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Guest Maddy
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I'm a bit younger than yourself but suddenly started getting Vestibular MIgraines which lasted days at a time (August 2014 I had 8 V.M clear days) aged 51 after not suffering from so much as a 'normal' headache my entire life. Eventually my GP refered me to Neurology and I asked the question "why now" his answer was "I don't know, it's just one of those things" I was told it may be a condition I have for the rest of my life but it may disappear as quickly as it appeared. Not very helpful I know but I don't think they have an answer.
I see your post was written 9 months ago. I do hope things are getting better for you and the Propranolol is helping.
Regards Sally
Maddy Guest
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Guest Maddy
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I have the aura without the pain which is a good thing considering how often I have an episode. My GP prescribed 20mg Amitripyline a day which I was on for the 12 weeks I waited for my appointment with Neurology. They helped somewhat but I was still getting more bad days than good. Neuro prescribed Propranolol 20mg twice a day, I'm on day 13 and so far feel as bad as ever but was told they could take anything from 1-3 months to fully kick in, so fingers crossed.
I hope you get some success when you're seen again, it's a nasty dibilitating condition isn't it?
angela68805 Guest
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Hi Sally,
I realise this is an old thread and you may have moved on but I have only just found it. What you have described in your post could be me! I too am 51, have been suffering vestibular migraines for a year, diagnosed after numerous tests at the hospital. The hospital doctor told me that she thinks it's been triggered by fluctuating hormones i.e menopause. Having kept a diary for a year my condition does appear to be cyclical. My GP has told me that I am the first patient he has had with this diagnosis! I have been taking Propranolol for about 10 days now and it seems to be working although I feel that some days that a migraine is about to strike. I would be interested to know if this drug is still working for you?
Regards Angela
Guest angela68805
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Hi Angela,
Firstly it's interesting your Dr suggested it could be hormone related. When I suggested this to the Neurologist he said absolutely no way was it Menopause related even though everything pointed to it as far as I was concerned!
I didn't carry on with the Propranolol. It left me feeling out of breath and I was having to stop half way up the stairs for a breather, whereas I would normally run up them.
I went back on the Amitriptyline 20mg a night.
I kept a diary of episodes and then stopped taking the Ami six months ago, I still kept a diary and noticed the episodes neither improved or got worse.
I'm now medication free. I absolutely believe it's Meno related looking at my diary. Hopefully that means once we're over the Menopause we'll be free of vestibular migraine forever more.
Regards
Sally
angela68805 Guest
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Hi Sally,
I believe it is menopause related, I made adjustments to my diet in the weeks before Christmas by eating foods high in natural oestrogen and the frequency, duration and verocity of attacks dramatacally decreased. A big hiccup over the Christmas period prompted the prescription for propranolol for a months trial. I don't think I will be carrying on with it. As you say, hopefully this truly awful condition will disappear in time.
Regards
Angela
rae77426 angela68805
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Hi Angela....and Sally......if you're both still there on the forum!
I can see these are old posts but thought I'd reply as I've found myself in the same boat. I too very suddenly developed what has been described as Vestibular Migraine, at 51, having never had any real headaches before. I've had it for 5months and at times it has been completely debilitating. I've started Propanolol 20mgs with some effect and they have just increased it to 40mgs, which I'm not that happy about but will try it. Like you I am fairly convinced it has been triggered by the menopause. I have also seen a chiropractor, which I was slightly sceptical about(but desperate!) and she was brilliant....made some rather alarming noises manipulating my cervical spine back into alignment which def made a difference....so maybe two things going on.....might be worth a try for either of you ladies. Hope you are both feeling better since your last posts.
kind regards
Rae
Guest rae77426
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Hi Rae,
At my most desperate I tried Reiki, relaxing but didn't help V.M. Accuputure, again relaxing but didn't help and an osteopath, my back and neck clicked somewhat but the V.M stayed the same, neck felt great though, all loose and wobbly.
Mine started age 51 at the same time as my periods started becoming irregular so I'm of the opinion it's Menopause related.
I hope an increase in meds works for you, if not diet is the way forward and plenty of water.
Regards
Sally
rae77426 Guest
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Thanks for such a prompt reply. I will def try the foods and an increase in my hydration....measuring jug out already....sometimes the simple measures are the best.
Hope you are soon on the mend.
Kind regards
Rae
angela68805 rae77426
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Hi Rae,
I stopped taking propanolol after two weeks as it made me very breathless. I no longer take any medication. Since my last post the Migraine symptoms have decreased to nothing.... until today! By sheer coincidence I have had a slight relapse, but I believe I've brought this on myself by not listening to my body and physically pushing myself over the last week, a known trigger for me. I make sure I eat foods high in natural oestrogen everyday (not as onerous as it sounds) I also take a supplement. It's interesting that a visit to the chiropractor has helped, I wouldnt have thought of that myself. It is definately something to bear in mind should the VM's flair up again. Good luck, I hope you feel better soon
Haithum angela68805
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Hello everyone,
Firstly, I'm glad I'm not the only one!
I'm 41, male, and my migraines started out of nowhere around 2 months ago.
I'm a shift worker and get only around 3 hrs of broken sleep after my night shifts. Plus I've had 3 high speed car crashes and been knocked down by a car in the distant past.
I'm on Propranolol 40mg twice a day now and I don't seem to have had any side effects other than restless sleep that isn't helped by a 5 year old who insists on walking 3 or more times a night. Other than a migraine when I first started taking it I've been migraine free until last night and today.
I know the obvious cause for me would be head injuries but bright sunlight and very bright head lights shining directly into my eyes seem to be a trigger.
Essentially what I'm asking is did the Propanolol stop working for anybody else or is it just normal for the migraines to get through sometimes?
Thanks,
Haithum