Prostate Conditions Confusion

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You start looking up prostate information.  You end up confused-atleast I do. 

   I have an enlarged prostate.  I also have type 2 diabetes.  It's well under control . I'm in shape, not over weight, A1c 6.5   I have to get up ONLY when I am lying down-no other time.

   My MD says enlarged prostate.  Urologist says overactive bladder caused by type 2 diabetes.  Urologist says target is 2 times get up at night.  Prescribes oxybutyn.  Prescription makes things worse.

  My questions:  Why problem ONLY when I am lying down-supine position.  I also sweat profusely & get dry mouth.   You look up information on Internet-says trouble at night is "nocturia"  OK   Doctor says enlarged prostate BPH?  Urologist is wrong. Not diabetes.  Only have problem in supine position.  Also-I forgot-take Finesteride & tamulsin.

   How come ONLY in supine position?  How come doctors are seemingly dumb.  ONLY happens in supine position?  Autonomic bladder?  None of them mention that possibility.  In case you hadn't figured out-I am really aggravated I cannot get any kind of straight answer from so called professionals.

  Doctor says I need the Green light laser brcause my prostate is enlarged.  Board Cerified Columbia University graduate urologist-I'm not sure what he knows.

  So does Enlarged prostate cause night time voiding problems-even when you take all suggestions(don't drink at night etc etc)  If enlarged prostate causing problems at night-why not during the day or when I sit or on my feet. 

   If brain cultimately controls all of this difficulty at night-why should an enlarged prostate not cause same problem during the day.   Why does Internet say "nocturia" is the nighttime problem but not even hint what the cause might be?  I see no chain of event causation other then brain getting wrong signal when I am in supine position(my theory).

  Anyone have any ideas??!!!  My doctors sure don't!  Neither is the internet particularly helpful.  It is so frustrating-no getting anykind of intelligent answer from anyone.   Almost as maddening as the condition itself!  And these fools don't understand that  "I don't know" is a perfectly good answer.  It tells me to look elsewhere!  Any help would be greatly appreciated!   Pointers-possibilities-no response too strange.  Thanks!

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11 Replies

  • Posted

    It may sound wrong but try to drink less water. I thought I had diabetes because I drank a lot of water and I kept on being thirsty. Only after a doctor told me to reduce the intake of all fluids to under 2 litres per day did I come right. Too m uch water can make you very thirsty and make you want to urinate too often.

     

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    • Posted

      Thanks for your reply.  The dry mouth only occurs with the sweating which only starts when the brains say at night "Wake up"  My intuition is that body is trying to find some way to get liquid out of the body.  I do not normally seat much at all and I think the brain starts the sweating which then results in the dry mouth to the point where it is uncomfortable to swallow.   If tamulosin-I doubt very much-would be a widely prescribed med if it caused the severe reaction I get when the alarm clock to go pee goes off.  5 times in an hour the other night. Usually about every hour or so.
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  • Posted

    Hi cdog, I'm type 2 as well. Your dry mouth is caused tamsulosin...it's a well known side effect. I asked the professionals also....why only urinary problem at night? and none of them could really answer. 

    I did all the research and ended up having a prostate artery Embolisation last week. Problem fixed. 

    No cutting, no bleeding, no impotence, no incontinence....check it out.

    N

     

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  • Posted

    Hello  Read your post   I look up some of the stuff you are having or they think you have.  Some of it that I read i did not understand.  First of all  I have stage 2 diabetes also and HB.  I use to get up 4 or 5 time a night over the last year.  Also Had 5 bladder infections.  Also had sipsis and kidney failure.  Supine position is your laying on your back.  It is where the kidneys are you may be pushing on them when your on your back..  I lay on my back and side.  .  Autonomic bladder  Is what I think it is like a child  you don't get the feel but you body does .  That whole think I read was very confusing.  If your prostate is enlarge. Caring had a PAE.  It worked for him but some of the other men that have had it done It did not work.  I had a urolift done 3 weeks ago.  I pee very good now.  Don't get up at night to pee and I am off all meds.  Please still look up everything that they like to do to you.  Also what ever you do to not let them cut of laser your prostate.  It may cure one problem but it will give you other.  Take care  Ken
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  • Posted

    Not too strange...Mine comes and goes.  Can go for weeks with no problem and then have a flare up and go 8-10 times in an hour. P*ss, leave the bathroom and turn right around and go again...and it's not weak little streams all the time. Sometimes i wonder where the hell all that water is coming from.OK for some strange. Search "enlarged prostate, alternative treatment."  Follow the links from there. There's appls cider vinegar, hydrogen peroxide, herbs (you have to be patient) and you can even look up Rife frequency for prostate on youtube. Read up on Royal Rife, a physician way ahead of his time. There's some strange for ya..JV
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  • Posted

    This is a UK "medical" website and to some degree our experience is different in that you see your local doctor and he refers you to a urology team at the local hospital who will carry out tests to try and establish the cause and possible treatment.  The usual process is to start with conservative treatments and then move on more agressively.

    Years ago I had over active bladder - I was peeing up to 10 times a night.  Out of bed, into bathroom [do not put on light] dangle, pee and back to bed all within a couple of minutes.  Various tests including stress test [filling bladder with water] diagnosed it and I was prescribed oxybutynin for three weeks which was a life changer.

    Now I have enlarged prostate but do not for some reason need to pee at night.  I take tamsulosin and finasteride which do have side effects [retrograde ejaculation into bladder], growing breasts [not yet] and regaining head hair [again not].  If I do not take the tablets the act of peeing becomes more difficult.

    I think the reason that you pee in the night [and that is all nocturia means] is that whilst the body shuts down to some degree urine is still produced and while you are conscious of it continually in the day "I've had a mug of coffee - I'll need to pee soon, perhaps I'll go now" at night it creeps up inside [unconsciously]until the message goes to the brain "get up and pee or you may wet the bed".

    I find that if on occasions I have a disturbed night I do get up simply thinking [though I am not desparate] "I may as well have a pee now and sleep later"

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    • Posted

      Simon- When I have to go there is no volition involved.  It's a mandate.  My mouth is totally dried out each & everytime & I'm drenched in sweat simultaneously unles I am standing up.  I get all the little nuances that can happen during the day.

      I am totally facinated why no one has a good explanation about the supine position being-to me-anyway- why this is the true indicator unless it has to do with the fact of different body position & strains of the bladder in this supine position.

        Otherwise-nocturia is one stupid misleading label.  It implies a night time occaision-from the latin word noctis meaning night time.  Trouble is for shift workers-can be day-turia- or after noon nap-turia..

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    • Posted

      Like your definitions!

      Very mysterious as you say.  Years ago I had incredible frequency and urgency and getting up 10 times a night but cured almost at once with oxy ...  Lifechange. Though the symptom of "dry mouth" certainly!

      I was in our [UK] hospital yesterday and chatting to one of the staff - not about my condition.  They have a "complex case" team where they review patients who have interlocking medical conditions and work out the best way forward; is there any similar facility?

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    • Posted

      No it is not like that... During the day I pee freely. Flow is good. But at night it is like there is a clamp on my willy...

       

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  • Posted

    I also have problems at night  it's when I lie down  but I get thirsty with medication the tablets to help ? I am due to see my specialist soon so last time he said I might need turps but  am 76 next week besides that in good health weight 13 Stone any advice please?
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  • Posted

    I had rezum procedure due to getting up 6  or 7 times a night. When I try and sleep on my back I usually only get up 1 or 2 times but when I sleep on my belly its 6 or 7 times a night.  I've asked my urologist and he has no clue. I can't figure out.

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