Prostate or Underactive bladder? At my whits end
Posted , 7 users are following.
Hi everyone I'm new here and was hoping for some advice.
I'm 40yo in Florida. At 38 I started having urination problems here and there, but didn't realize I was retaining. My family doctor had a MRI ordered which revealed a 1.5" bladder stone and sent me to a uro who broke it up in January 2015. In December he went in and removed four pieces that were too large to pass. He never seemed interested in helping me figure out what was causing my urination issues. He told me I'm "wide open".
In seeking a second opinion the receptionist let it slip that he diagnosed me with an enlarged prostate. The new doc works under the same umbrella and can see the notes from the first doc. I met with the new doc last week who did a scope in office and claimed my prostate looks normal and he thinks I either have a tight bladder neck or underactive bladder.
I don't know what to think at this point. Can they really tell of the prostate is obstructing just by looking at it? Wouldn't it seem better to find out how many grams it is exactly? He sent me home with caths on Thursday and I had to use one last night. I haven't urinated but dribbles today and I'm on my way home to cath now.
He ordered urodynamic testing which I've scheduled for next week.
I'm just so confused. How can my notes from the first doc say enlarged prostate and the second doc thinks it's something different?
0 likes, 23 replies
Tpanative
Posted
I got a phone call from the uro office today and my urine culture came back normal flora but indicated 50k coloniation so the doc ordered 7 days of bactrim but told me to go ahead and finish the cipro before starting the bactrim.
Tim-B Tpanative
Posted
That's a lot of antibiotics. I avoid Cipro due the side effects. I'm a runner and one potential issue is tendon rupture. It's not common, but its not worth the risk for me.
It is good that he ordered an MRI, hopefully a 3T multi-parametric. There are a few interventional radiologists that specialize in prostate issues. If you are interested I can send you their names.
Good luck.
Tpanative Tim-B
Posted
He also ordered some PSA 4K thing I've never heard of. He mentioned my TRT could have something to do with it but I've only been on that since October and these problems started well before then.
Tim-B Tpanative
Posted
Sounds like he is working with you to figure out what's going on. Sometimes, its a process of elimination.
Tpanative
Posted
Got my prostate MRI results back today. It is 29.6cc in size and no evidence of cancers. My primary doctor is taking me off seroquel immediately as it blocks the neurotransmitter aceytylcholine and has an anticholnergic effect on the blader (been on it since '07). My PSA is 1.4. I'm worried my bladder has been distended for so long it may be perm. damaged. He mentioned self-cath'ing which i'm doing every five hours, a drug called urecholine which stimulates the bladder, or an implant called interstim.
I will talk to my uro about all of this in a couple weeks.
Tpanative
Posted
OK I just wanted to give everyone an update on my progess. My uro ordered a urodynamic study which showed I had adequate bladder pressure (in the 80s with a very strong urge and the urge came in around 450-500cc). At that 80 pressure I was only able to get out approximately 100cc despite my bladder nearly bursting (the nurse got 977cc in me and it was agony).
My urologist has no other explanation other than obstruction, and he even sought his partners opinion that my problem is obstruction. His recomendation is to do an incision of my prostate (it's 29.6 grams), which he said should relax my bladder neck, but may result in retrograde ejaculation, or may not everyone is different.
Have any of you ever had this incision?
hank1953 Tpanative
Posted
Would you update your progress ? Many may learn from it. Thanks. Hank