Prostate Problem, could this be sinister?

Posted , 8 users are following.

Hi all, I'm a newbie here and I'm hoping that you fellow prostate sufferers can give me some guidance....I'll try and keep it short but there's a bit of background so forgive me. I'm 58 and first got my PSA checked out in 2006 when I was 48 and having some urinary problems....always having to look for toilets when out etc. PSA was 1.2 and I was told that this was OK.....symptoms never really went away but I learned to live with them. Fast forward 8 years to 2014 (age 56) and I'm now getting up regularly in the night....Go to Docs again...this time PSA 3.1.....Doc wants to refer me to hospital and I freaked a bit (probably stupidly....typical man burying my head in the sand)....Cut off for my age is 3.0 so I ask doc if I can agree to get tested every 6 months....she agrees....Have 3 more tests every one is 3.1...get complacent and leave it for 14 months...start to get a bit of regular backache so freak a bit and so get tested in June this year....surgery rings up following day and leaves a message on answerphone...please contact them (Uh Oh)...Its a Friday and by the time I see the message the surgery is closed....Sweat it out over the weekend....Monday staright on the phone....PSA is 7.5 (S**T)....Doc does a blood and urine test to rule out infection....Tests come back neg.....Now fast tracked to hospital referral (I was hoping they'd do the test again in case of error)...Whilst waiting as a control freak and obsessive I read up as much as I can on PC and come across prostatitis too....Just to gain back some control I read about free PSA and ring round to get a test....Find a clinic near Harley St....They'll do it but I also have to have a consultation with a urologist....(whatever it takes as I'm worried sicke by now)....Go to the west end to get my blood taken and then another trip the following day to consult with a very well known (if you mix in those circles, prof of urology).....Get my results from the nurse and in the intervening 2 weeks my PSA has dropped from 7.5 to 4.3 (different lab but even so)....Free PSA is 23%...The urologist spends 30 minutes with me.....then on my side....DRE and is pleased to tell me that I have a large prostate...hence the raised PSA and that in his opinion completely benign. I asked are you sure? His reply "don't worry I've felt thousands of prostates there is NO cancer".....I skipped out of there.

  Happy ending you'd think? Sadly it doesn't end there.....Get home to find I have 2 appointments with the hospital, one for a cystoscopy and one for a CT urogram (the paranoid mind takes over...what do they know)?....My wife makes me go ....Doctor doing the cystoscopy is rather brusque...try to explain about my PSA dropping he could care less....On the table trousers down....camera up the winkle.....5 minutes later he tell me "well you don't have bladder cancer"!!! WTF! I didn't think I did....fills out some paperwork says see the nurse and out the door.....The nurse reads the notes and says you need to go and book an MRI !   Jesus this is getting serious.....Go to book the MRI and when I go back to see the nurse she informs me that she has booked me for a biopsy...(I'm now really concerned)....Anyhow 2 weeks later I have had a cystoscopy (all tests clear) a CT Urogram (results go to consultant)  I've had the MRI.....But after reading "Invasion of the prostate snatchers" a great book I'd recommend for anyone with PCa or suspected PCa the authors talk about the ability of the 3T tesla MRI to pick up any "important" cancer in the prostate....with that in mind I ring my consultants secretary (I haven't met my consultant yet by the way) and explain my position regarding the lower PSA reading and 23% free PSA and ask if I can cancel the biopsy and see what the MRI throws up.....She rings back yesterday and says he agrees.....Now I'm thinking have I done the right thing.....Suppose I go for my meeting with him in a few weeks and he says we've seen something but because you were needle shy we don't know what it is....So more waiting and sweating and my bum still gets the needles......I'm really hoping that the PSA was raised by prostatitis and thats whats causing my current symptoms: ie lower back pain that moves around a bit....sometimes some groin pain, sometimes this is referred to the testicles, and sometimes a griping pain in the lower tummy.....Does this sound like prostatitis?    Anyone who can help me with the symptoms or answer any of my other concerns I'd be really obliged, as I'm really sweating now

   Sorry I've written a small novel, so if you stuck with it Well Done!

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  • Posted

    Your PSA seems a bit low sometimes an elevation to 7.5 could be caused by anything including a recent ride on a bicycle. And the symptoms you described may not have anything to do with prostate cancer it could have to do with getting older. I don't think your back ache has anything to do with a symptom of prostate cancer. The only way to find out for sure is to get a biopsy I had one and it was painless no problem. But the readings you have are so low that it seems like even if it is cancerous you have a lot of time to think about it and monitor your PSA regularly. My reading is 6 come from cancer with biopsy and am getting a prostatectomy. If I were you I would wait and monitor. I had no symptoms by the way. Good luck do your own research make an informed decision

    • Posted

      Hi Mark, No bike riding, sex, masturbation before the PSA test for me, I'm an old hand at this.....My 7.5 PSA dropped to 4.3 two weeks later at a different lab....just wish my doc hadn't jumped in and referred me to the hospital.....Now I'm on the conveyor belt and finding it hard to get off the "sausage machine"

         I'm hoping that my raised level came from a prostate infection and that even if 4.3 is my new baseline that's within the limits of my enlarged prostate.....trouble is everybody is different as I'm sure you know.....there's guys out there with PSA levels of 2 walking around with the disease

         Good luck with your surgery

         Regards Tony 

  • Posted

    Tony

    be assured you are treading a well trodden  path. I has a prostectomy by davinchi robot over two years ago and all is well with few side affects. 

    You  mention various pains. Once I was diagnosed and up to my operation I had various  pains in my back, stomach groin, l think these were my mind playing tricks on me. It is a stressful time but try and get the best advise you can. I saw two private consultants in London on recommendation and selected one of these. The one I selected agreed to do it on the NHS, real bonus.

    good luck and explore all your options before you make the final dicision as to which path to take

    mike

    • Posted

      Hi Mike, Thanks for your reply....I'm still hoping at this stage that there's nowt wrong with the bloody thing, but you're right I am starting to think that some of my "symptoms" may be being "exaggerated" in my head.

         Never been the hypochondriac type either....don't even like taking aspirins for a headache....

        Strange thing is my private consultant that I saw after my free psa test has also had PCa himself, and had the robot surgery, and he specialises in it also.....Ironic right?

       I was assured after his diagnosis for about three days before the NHS got hold of me and started their battery of tests....I can't complain really, in these days of the "Cash strapped NHS" they're throwing money at me like a drunken sailor......My paranoid mind of course says "Why"?

      Glad to hear you're doing OK......Carry on getting better

          Regards

              Tony

  • Posted

    Hi Tony

    I am now 49, my father passed away 10 yrs ago of advanced PCa aged 67.

    In Feb 2014 saw a trace of blood in my urine with no other symptoms. I had the camera down the penis. All clear so I had my PSA checked. 4.6, then 5.6 3 weeks later. Advised on 12 biopsies.

    Result: low grade PCa, Gleason 6: 3+3.

    Went on AS in May 2014. In June 2015 PSA went up to 7.6 so has an MRI, this showed 'abnormalities'. September 30th, Targeted biopsies revealed Gleason 7: 3+4, the low grade 3+3 still there!

    After a good think on 30th Oct 2015 opted for the Da Vinci Robot Assisted Laparoscopic Radical Prostatectomy.

    Dec 8th 2015 PSA undetectable. However tiny positive margin sad

    June 7th 2016 PSA still undetectable. No RT necessary!

    So would an MIR have revealed abnormalities and my Gleason 7 PCa before my initial 12 biopsies that missed it altogether? This I do not know. I can say that my 2 targeted biopsies in my perinium were no worse than the my 12 in my anus and I was asleep. Prostatectomy post op was sore but I am soft smile

    BTW. No impotence or incontinence smile

    S.

    • Posted

      Sorry about typos, blooming autocorrect smile

    • Posted

      sounds like a great outcome all in all. I too am going to have a robotic assists prostatectomy very soon. 
    • Posted

      Hi, thanks for your reply, I've had the 3T MRI so have chosen to swerve the biopsy.....Just awaiting results.....Glad all is working out for you

           Regards   Tony

       

  • Posted

    Hello Tony, I was diagnosed with low rish PC this past October. I had no symptoms at all... no pain, no blood in urine, no dificulty with urination. Also, no abnormality felt in a DRE.  I was sent to the urologist from my primary care physician due to an elevated PSA. It was 5.2. Urologist put me on antibiotics for a few weeks to see if it might be an infection. After the antibiotics - the PSA was at 5.1. Still a little too high. He recommended a biopsy. He talked to me about what that would involve. He said I would be numbed and I wouldn't feel any pain. Also, I would be given antibiotics a few days prior to the biopsy - and I would be required to give myself an emena to clean me out - the antibiotics and the enema will help prevent any infection. So the day of the biopsy came. The nurse came in to apply what she said was a numbing agent. I waited for about 30 minutes and the doctor came in to do the procedure. Well, for me, it was not pleasant and it did hurt. He took 12 samples that day. He wanted me to pee before I left to make sure all was okay. The ride home was very uncomfortable and I couldn't sit up straight for a few days. Doctor said to take ibuprofen or tylenol for any pain or discomfort. And it helped. A few days later I went back in for the results. Out of the 12 samples, 2 showed cancer cells. The good thing is that they were very low - 10% in one sample, and 2% in the other. He told me that I was in the low risk group and that I had several options to deal with it. He directed me to some websites that explained treatment options including active survaillance.  I had quite a bit of discomfort after the biopsy for a while and went back to see the urologist and he said I had prostatitus and gave me more antibiotics. After I finished this regimen of antibiotics, my PSA was down to 2.1. Still the DRE showed no abnormalities. He told me I could opt for Active Survaillance, or be treated and cured. This was a dificult decision to make. I either wait and see - and I would be older and perhaps have other health issues to deal with, or treat it and be done with it. I checked several websites that provided lots of good information for many treatment options. I just wanted something that would get rid of the cancer with few side effects. All treatments have some degree of side effects. After looking at many options, I went with the Brachytherapy - low dose radiation seed implants. That was done last February. It is a one time treatment done as an outpatient procedure. The treatment takes about 45 minutes and you are put under anesthesia. You can go home after you pee a couple of times. More ibuprofen for discomfort. I couldn't sit straight for a few days. Also, I had a large bruise in my perineum area where the needles went in to place the seeds. Aside from having some inflammation on and off in my urethra, I am doing pretty well. I take Avodart and Flomax to help keep me urinating well. The urologist put me on both of those medications prior to the procedure even though I wasn't having any problems. He said this was for prevention. And it is probably a good thing he did. There have been times at night when I get up that I have a very slow stream. I don't know why it seems to be at night when this happens. And it is not all the time. He told me that this will be on and off for several months and that by 10 to 12 months I should be back to where I was before the procedure. I still wonder if I made the right choice in chopsing to get treatment, or wait. But then I think about the alternative. At this point, I am glad it is over. I go see the urologist next month for a follow up.

    I know that you are having a lot of anxiety at this time... but you need to do a lot of research before you make any decision. If you choose to be treated, find something that has been proven to work and find a physician that has proformed that procedure successfully many times. I can point you to some good websites that go over various treatment options with success rates, side effects etc. Let me know if you care to see any of these and I will forward them on to you.

    Good luck to you,Charles

    • Posted

      Hi Charles, I apologise for not replying before, you were the last person to respond to my post and I missed it....Thanks for telling your story.....I was hoping for a good result at the hospital this week but it's still up in the air, because of "something" seen on the scan....Now got to have the biopsy in 2 weeks and sweat another 2 weeks before the result, so 4 more weeks of waiting.....shot myself in the foot there......May get back in touch re info

          Thanks again

    • Posted

      Yes, keep me up on your upcoming biopsy. It is not pleasant, but it is tolerable. I know the anxiety you are going through for this. Just keep in mind that what ever they find, there are many good options for you. Keep a positive attitude... and good luck to you. - Charles
    • Posted

      Thanks Charles, I was hoping that the MRI was going to show nothing and I could have avoided the biopsy....Don't like the thought of those needles up my rear end....plus the danger of infection, blood in urine etc etc.....knowing what I know now, wish I hadn't have "wimped out".....That ships sailed now though.....thanks for the reply....I'll keep you posted

          Tony

    • Posted

      Tony, the risk of infection can be cut down considerably with taking antibiotics prior to the biopsy. My urologist put me on one a few days before, and I continued taking it for a few days after. Also, I was instructed to do a fleets enema the morning of the biopsy which will also cut down the chance of infection. I don't know if you were told any of that... but it might be worth asking about. As for blood in the urine, I didn't really have any of that, but I was told that there was a chance of it and nothing to worry about. There is blood in your semen for a while after though... also nothing to worry about. Too bad they can't just schedule that procedure and get it over with. The waiting is hard to do.

      Charles

    • Posted

      The waiting is my fault, had I not tried to get out of it I'd be aware of what is going on now....I've been given anti-biotics for before and after.....No enema apparently, I asked the nurses yesterday.....

         Regards   Tony

    • Posted

      Well at least you did the right thing by getting the MRI to see if a biopsy was even needed. It is what I would do. Most doctors want to poke and hope. I wouldn't want to be a pin cushion for them. PC is usually slow growing so it is just the wait for the results that sucks. I may have to go in for the MRI myself as I still have prostate issues. I hate this a lot and I wish you luck. It should mean that they won't need to stick you so many times as they have a target in mind. Take care.

    • Posted

      Thanks Craig, Know what you're saying, but in this instance it's rebounded on me.....Got another 4 weeks wait now.....Oh well....In the general scheme of things...none of this will matter in 100 yearsbiggrin....good luck to you too

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