Prostatectomy surgeons
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Is there a website or other way to find the best surgeons that perform a prostatectomy? I have looked at all my options and this is most likely going to be the best course of action for my condition? I'm so depressed.
0 likes, 19 replies
john47646 ES28567
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barney34567 ES28567
Posted
if I needed a major procedure I would read up on all the options available and consider the experience of the physician offering the service. A physician with a lot of experience in say open ie non robotic surgery is, in my opinion, a better choice than a newcomer to robotic surgery.
do not be depressed
feel good about taking charge and considering all the options available. Even if some are unavailable where you live.
Be aware of how much time you have to investigate the matter and use the time wisely. Don't rush.
barney34567
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mosski ES28567
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He only does open surgery. He did my prostatectomy in early December. One of the things I am most happy about is no incontinence whatsoever which I was very anxious about.
Good luck!
stewarta ES28567
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Pathology tests showed it had not spread to the lymph nodes, as a consequence I am not on any after treatment. I have minimal leakage and this is dissipating as I continue pelvic exercises at home.
If you are not in Victoria Australia just ignore this post.
john47646 stewarta
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barney34567 john47646
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ES28567
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I have done a lot of research and met with 2 urologists, 1 radiologists, and 1 medical oncologist. Had numerous tests (PSA, MRI, biopsy, bone scan). Cancer is 3+3 (which is not considered aggressive) and is isolated to the prostate but very close to or possibly in seminal ducts. Also have almost no stream because of very large prostate so I must do something soon. The options are prostatectomy or hormone therapy + radiation. I really hate both options because of the side effects. I'm in very good health otherwise and only 56. If I wasn't married I would seriously consider not doing anything. Prostatectomy has immediate side effects of incontinence, impotence (which can get better but is never as good as it was), shorter penis, dry ejaculation...everything a man could ever hope for (sarcasm).
Radiation treatment usually doesn't have too many side effects until a few years later and then rectal issues, incontinence, and ED start to set in.
I feel like I just woke up and I'm trapped in a room engulfed in flames. My choices are run across the room through the fire to the door (and get severely burned in the process or avoid the flames by jumping out the window receiving some cuts from the broken glass and injuries from falling 3 stories to the ground. Of course there's active surveillance of just standing there and hope someone comes up with a better rescue plan before the flames take my life. Sorry to be so negative. Just going through waves of depression.
david41094 ES28567
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barney34567 ES28567
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by this I mean a person with no medical issues other than a 3+3 is different to a person with a 3+3 and problems urinating, constantly high PSA levels and say a history of cancer elsewhere in the body.
therefore the two persons should be offered tow different treatments
david41094 ES28567
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All the best
barney34567 david41094
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ES28567
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So I have to take some action just to resolve my urinary issues (before my bladder becomes more stressed) and even though my Gleason score is considered low at 6+6, the location of the cancer is of concern.
If I do radiation therapy, I must do hormone treatment first to reduce the size of the prostate but that has its own side effects including the possibility of developing breasts (which happens a few years later, not immediately while taking the drugs). And there are studies that hormone therapy also contributes to impotence after 5 years.
Also, those who do radiation experience impotence issues and bowel issues at about the 5 yr mark. However, they have much less issues with incontinence. (This info. is just from the studies I have read).
A prostatectomy rarely causes any bowel issues but does cause immediate issues with incontinence and impotence (which can come back if the nerves are spared but it is never as good as prior to the surgery.
My feeling is there is still no good solution for men. Just the choices between the lesser of two evils and everyone must pick their poison. I think some men just do whatever their doctor has recommended. But for me, I'm having great difficulty deciding from which cup to drink.
david41094 ES28567
Posted
So, to sum up, RT is very tightly targetted and you will be very unlucky to get any incontinence issues and the effects of the hormone therapy are minor and trail off over time. You will notice a drop in libido during the hormone therapy but this returns about a month after you stop. As I said before, after 6 weeks I am back to almost complete health. The biggest pain is the 37 sessions which become very boring after a while. One final thing, if you opt for RT, make sure it is IMRT and not EBRT.
I wish you all the best...
ES28567
Posted