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Prostrate-Night Urinating Problems/Symptoms(Autonomic)

Posted , 7 users are following.

al03909
al03909

I have had problems with urinating.  I have to go several times a night and I'm lucky if I can get 1 0z out-with the attendant problem most times that I cannot go right away.

  So far-this description is fairly typical of common problems with this condition.  But what I am about to describe is atypical so I thought I'd share.   My alarm system that tells me I have to go includes both a feeling in the bladder but also profuse sweating from the waist up to the point where my top(T-shirt) gets totally wet and my mouth goes dry-I mean totally dry.

  I had already posted once on this forum if anyone experienced these same very unpleasant symptom, and there was no response.  I also got a referral to Board Certified Urologist.  Ihave Type 2 diabetes and I asked the Urologist the following question.  The question was: Have you ever had a patient who had the sweating symtom and susequent really unpleasant dry mouth when I felt the urge to go.  His answer was "NO".  His diagnosis was my Type 2 diabetes aggravated my over-active bladder & prescribed oxybutynin.  For my condition it should NEVER be prescribed as is shown in the link I have provided.

  My other post to this forum about these symptoms, as I mentioned, went unanswered so I thought my condition was rare or peculiar.   A fairly good Google search on night time over active bladder yield little if nothing  on my problems.(I should mention;my problem ONLY shows when I'm lying down(supine position)   There is practically nothing(zero) on thne Internet EXCEPT for this which was a bull's eye:

http://www.dana.org/Publications/GuideDetails.aspx?id=49997

   This article at this link explains exactly what I have been suffering from for almost 8 years.   I am going to go see in Boston to a "neuro-urologist" who deals  with "Autonomic diorders" of the bladder.  This article was where I found the admonition to NOT use the oxybutynin if you had my symptoms.

   I finally have some hope & I hopes it might help anyone experiencing fairly similar symptoms.   And I also think it is a perfect example of how important it is to be your own advocate!!

0 likes, 10 replies

10 Replies

  • ianC
    ianC al03909

    Posted

    Great news Al. You must be relieved.

    Perhaps it was the very rarity that failed to get you a response. Guys here are very helpful.

    But now you've posted this, anyone else will get help too.

    You are totally right in being your own advocate. Most of us would agree with that - me in spades when my first 3 specialists said there's nothing they can do, so go home & die (7 years ago). Huh.

    And your case also shows the immense benefit the Internet is now. Hurrah!

    • al03909
      al03909 ianC

      Posted

      Thanks for your support-also,I think we all like when someone agrees with our comments such as the one I made about being your own best advocate.

        In my forty's I went back to school & became a lawyer in the State of Maine.  This was in the early '90s when the economy in merry old New England was horrible, and so I closed the doors on my own "practice"-if you could call it that-which does get me to my point about being your own best advocate.  In the short time I practiced law-I would hear about malpractice cases(not mine as they take a ton of experience). 

         It was absolutely scarey-some of the stupid mistakes doctors or hospitals make.  I am not talking about the one's that make the newspaper-rather the ones that don't!

        I know lawyers are not particularly well liked; believe me- lawyers make mistake that hurt clients or are some times dishonest.  As it is  with truck drivers-pick a vocation. But some times people misplace their trust in a doctor; after all-they walk on water -don' they?  And again-I cannot tell you enough good things about the Dana Foundation-the link I provided in this thread.  Anything that has to do with the brain & I-not my internest or urologist figured out that my problem had to do with the signaling system to my brain re; the symptoms I was having.  My deep background in electronics helped to under stand what was going on with me when my 2 doctors had not.  All parts of the brain are some how related tol the micro processor or computer  (human) brain.  As a piece of trivial & extremely interesting to me-the human heart (pump & transceiver(or in networking terms-heart=router or bridge router) the hear sends more messages to the brain thany other human organ.  Sorry for my verbosity but I am by nature-a learner & (hopefully) have some thing of value to share with others!

    • david91143
      david91143 al03909

      Posted

      You're not alone Al.  I don't have your sweating problem but I don't trust my Urologist either.  I have  used both the UK's well know National Health Service and also gone privately (which is quite easy and OK) - but the private hospital seemed just as over-stressed and mistake prone as the NHS hospitals!  Like everything else, we need to learn to shop around and not pick up the first shiny thing we see.....  above all, we need to be able to feel that we can challenge authority figures without feeling that we are betraying them or minimising thier education/experience.  As you say, we all make mistakes from time to time.

      Good luck

      David

  • pete25515
    pete25515 al03909

    Posted

    Make sure you get a cystoscopy +/- biopsy (look in the bladder with sampling). I once knew of a patient with similar symptoms who had a cluster of hormone (eg adrenaline) producing cells in the bladder- whenever the bladder was full these would be stimulated giving the autonomic response you describe.

    Hope all goes well.

    • pete25515
      pete25515

      Posted

      Just spoke to an endocrinologist- scrap the biopsy as may precipitate a crisis- urine tests for catecholamines and a scan will help the diagnosis if it is an adrenaline producing issue in the bladder.

      Good luck,

      Pete.

  • bruce19007
    bruce19007 al03909

    Posted

    Terrific posts all.  I have suspected an nerve cause for my BPH for over 22 years.  I had a sudden (overnight) reduction in urine flow when I was 25.  Guess what?  I had a lower back injury that year which an MRI showed a slight compression of L4-L5 and L5-S1 vertibral disks.  Gues which nerve bundles emerge from that region of the spine?  I am making an appointment with a neurologist next week.  Thanks to you all and spread the word about taking responsibility for ourselves and being our own advocate.
    • david91143
      david91143 bruce19007

      Posted

      Hi Bruce,

      This is my story too!  I had L4-5 and L5 -S1 compression incident which has left my left foot and part left leg paralysed.  I have had 'flow' problems too and have had a Foley inserted twice in the last 10 months.  I don't think my problem is the prostate but have been prescribed tamoslusin (Flowmax).  It really messed me up.  I would rather try relaxant medicateion (or intermittant catheter for problem times) - but what is your experience?  Have you had success treating the damaged nerve rather than the prostate?

      Thanks'

      David

    • bruce19007
      bruce19007 david91143

      Posted

      Not yet.  I am only now putting together the peices of the puzzle.  I asked my urologist if it could be nerve related and he blew me off.  To many of them (urologists) it an enlarged prostate or your imagination.  One trick ponies.  I know I sound jaded, but that has been my experience.  Based on what I have learned from this forum,  I plan to bypass my urologist and go directly to a neurologist.    I have been on Flomax for two years.  The only problem I've had has been lightheadedness when getting up from a crouched position.  I take it before bed.
  • DarrenUK
    DarrenUK al03909

    Posted

    Interesting posts. I have the sweating problem, enlarged prostate and the dry mouth. I am on tamsulosin and tolterodine and was putting the mouth and sweats down to side affects of the meds.

    not sure where to go now or what to do? Urologist doubts I have an enlarged prostate and gp did the fingers test and said I have. Intermittent catheters are helping totally empty my bladder but still waking up to pee in the night and leak through the day.

    • bruce19007
      bruce19007 DarrenUK

      Posted

      The only way to know for sure if your prostate in enlarged is to get a CT scan.  They can measure it.
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