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  3. Lichen Sclerosus

Protopic V LS does it help?

Posted , 5 users are following.

kay70189
kay70189

Hi i have been trying to find anyone who is using protopic to fight LS.

I'm using clob but have been given protopic as an alternative!

Not sure what i should do clob is holding it mainly at bay but i have shrinkage of the labia and issues of

Splitting if not careful. 🙃

0 likes, 11 replies

11 Replies

  • samantha1970
    samantha1970 kay70189

    Posted

    Kay I use protropic.. is there a reason your doc would like to switch?
    • kay70189
      kay70189 samantha1970

      Posted

      Thanks for responding.

      The dermatologist keeps telling me clob is to strong. I dont have any itch so far but sore and a little splitting.

      I really dont want to rock the boat. I had a terrible time 3years ago getting it to calm down. Really thought if this is my life i cant cope. So I'm worried. I asked the chemist about it but she couldn't help me!

    • kay70189
      kay70189 samantha1970

      Posted

      Hi i just ready your other post to me a few days ago. It also advises you not to go into the sun and don't drink! The sun wouldn't bother me. But i do enjoy drinking at the weekend keeps me sane

      Kay 🙃

    • samantha1970
      samantha1970 kay70189

      Posted

      Kay, I’m like a fish... I don’t find any undue affects with the protropic.... also I don’t tend to expose my lady bits to the sun and I live in a hot country and have a tan....x
    • samantha1970
      samantha1970 kay70189

      Posted

      My understanding is that clob is the strongest steroid available for LS and there are weaker steroids such as betnovate available you may like to try. Protropic is the strongest non steroid and there are also weaker versions. 

      I can’t use clob as it activates my hpv... protropic doesn’t for me... 

      ‘I also use borax baths 2-3x a week and pat with tissue dampened in borax solution after the loo when at home. 

      We are all different and what works for one may not work for another. For me protropic and borax work (for now/the last year) 

    • kay70189
      kay70189 samantha1970

      Posted

      Thankyou samantha thats good to know. Also i like a weekend drink is that a definite no no on pro topic?

      Kay x

  • odiee
    odiee kay70189

    Posted

    I tried Protopic once. It was like a chemical burn. It was horrible, however everyone is not the same. You may do fine. 
    • kay70189
      kay70189 odiee

      Posted

      Thanks for your reply odiee

      It all helps to make a decision

      Kay 🙃

  • Sedg
    Sedg kay70189

    Posted

    What is protopic please ?
    • kay70189
      kay70189 Sedg

      Posted

      Hi

      It's a non steroid cream that works as a supresser of your bodys defence system.

      Its new to me so just reading up on it to see how safe it is to use.

      To your other question dermovate is another steroid cream/ointment simular i think to clob. Clob is the one i have been using for 3 years to control LS.

      Kay

  • Sedg
    Sedg kay70189

    Posted

    Kay sorry I sound a bit hazy but is Clob  Dermovate ??   X
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