Psoriasis/Arthritis - Methotrexate
Posted , 8 users are following.
So, i started this medication in pill form yesterday.
I was on Cyclosporine up until about 3 weeks ago. I'm starting to learn what this could do to someone now.
My Doctor didn't really tell me much about the pill apart from it had less effects than the Cyclosporine does. (It was making me ill, the reason for ending it 3 weeks ago).
I'm on a Psoriasis group on Facebook and I usually get all my info from there.
Can people here tell me what form of effects they have been getting or have had with the pill form of this?
I've heard about hair loss (I'm honestly dreading that the most as its the only feature i like about myself now to be honest) and I've heard about sickness and no appetite.
What should i be looking out for?
I take the Pills on the tuesday of each week and the Folic acid on the Saturday of the week (Doctor's orders). Does that even sound right? I had so many people ask me why such a gap between the meds... Apparently its not good for me at all....
Basically I'm so confused about all of this at the moment and would really appriciate it if some of you could shine some light on the subject for me.
By the way, Totally new here, So, I am sorry if there is already a post on the boards that i havent come across as of yet with the same question as mine.
0 likes, 12 replies
carrieann_64399 RachelPPSA91
Posted
I have been on this drug since Sept 2014, I also take folic acid everyday , doctors orders. As for side effects ,I have had none.
I know I was not much help, just wanted you to know that everyone reacts differently ,,good luck
RachelPPSA91 carrieann_64399
Posted
I hope so too
And it was helpful knowing some dont get them
Thank you.
cherie67035 RachelPPSA91
Posted
i have been taking MTX for over 10 years. I take it on Tuesdays and take folic acid the other 6 days of the week. I feel a bit fatigued when I take it, but other than that, I have no side effects. AND I have a very, very, thick, healthy head of hair !!! Good luck!!!
RachelPPSA91 cherie67035
Posted
cherie67035 RachelPPSA91
Posted
mrsmop RachelPPSA91
Posted
I had started to pass out as soon as I took the MTX, so my doctor told me to take the folic acid at the same time and it worked.
If you ever suffer with sickness, just up the dose of folic acid - again, I was initially told to take the MTX, followed by folic acid on the next 5 days, with the 6th 'off' and then it is MTX day again
You will find that all the doctors have different ideas, so do what your doctor tells you to do.
I have had clinic nurses telling me that my doctor is wrong and shouting at me, until I agree to do what they tell me. I agree but ignore what they say! My doctor is not a Consultant for nothing!!
I have been on MTX since the beginning of Dec 2013 and I have now started losing my hair. I have/had very thick hair so it doesn't show but I find it everywhere!
Good luck!
RachelPPSA91 mrsmop
Posted
I cant sleep most of the time so i was up until 7am this morning and i felt so horrible. My head was spinning everywhere, i couldnt help but feel as if i was going to be sick everywhere.
mrsmop RachelPPSA91
Posted
Some nights I can't sleep at all. I have also been having pain lately and take paracetemol, which, amazingly, knocks me out for a while.
If you are still having problems, you should contact your clinic, either the nurses, or your Consultant's secretary - you may be given an appt..
Lisa_Batts RachelPPSA91
Posted
david60784 RachelPPSA91
Posted
Consultants at hospitals want to get you off there system, and therefore will prescribe tablets. I start on injections on tue for psoriasis I have 2 friends who are on injections and they recommend it. It is a LAST resort treatment . stay posted will let you know.
penelope76067 RachelPPSA91
Posted
johnfs49 RachelPPSA91
Posted
I have been on MTX since May 2002. I take 20mgs every Monday evening and 5 mgs of Folic Acid the other 6 days each week.
Never had any side effects.
BUT IT WAS STRESSED TO ME THAT THE FOLIC ACID WAS IMPORTANT TO TAKE.
I allso take 1000 mgs of slow release Vitamin C every night along with 1000 mgs of Cod live oil.
I'm on beta blockers, statins and blood presure pills to.
John.