Psoriasis is out of control!

Posted , 9 users are following.

Hello, I've had this itchy,ugly,scaly psoriasis for the last 20 years. I'm 39 years old and as I get older it's getting worse and covering my body. I use unscented body wash and lotion(straight out of the shower and at bedtime) It itches all the time and now I have this place on my neck that looks like a hicky because it's so red. I have it on my elbows and now it's covering my arms. I have it on my knees and now it's covering my legs. I have it on my chest and ears. It's getting to the point I can't hide it and lotions aren't helping. I have no insurance so I can't afford to buy the steriod cream or hydrocortisone that really helps. The over the counter stuff isn't strong enough. Summer is coming and I don't want to be stuck in jeans and quater sleeve shirts because of all the questions, whispers and stares of ignorant and insensitive people. Can someone please tell me something I can try? maybe something that works for you over the counter or a lotion that helps. 

0 likes, 11 replies

11 Replies

  • Posted

    Hello I found Dovonex ointment worked very well,I had large patches on my shin and both knees and elbows,all gone now,I put on every morning and a little at night.I did have to get this from the Doctor.

    I can now wear tshirts and shorts.

    Hope you find what works for you,kind regards Rick uk

  • Posted

    Hi, it sounds like you are doing the right things. I think Dove ex as mentioned by rick is great. Also, every evening I lather myself in an unscented petroleum based ointment (looks like lard) and cover with loose bandages to protect bedding etc. It's greasy, unsexy but it helps. Exposure to sun (sensibly) should help. Also antihistamines bought over the counter will relieve that dreadful itch. Best wishes
  • Posted

    Dovonex does nothing for me - seems to make it worse. Vitamin D high dose tablets work I think.

    Baths and showers make it far worse. I just use wipes to clean now or not clean at all.

    i haven't tried anti histamine a but they should work because psoriasis is an auto immune disease where the body attacks itself. 

    I have given up gluten and high lactose foods.

    None of the non steroid creams do anything for me. But everyone is different with theses I believe.

     

    • Posted

      Hi Steve, does the gluten free and reduced lactose help? I'm very interested. And I find Dovenex does the trick on plaque psoriasis but it doesn't touch my pustular psoriasis. I usually take Humira inj but unable to do so at present as recovering from pneumonia. The negative side of immunosuppressive drugs! So the intolerable itch has started on my hands and I can feel the 'bubbling up' of pustular psoriasis beginning 😩
    • Posted

      I am intolerant to lactose ( too much) and gluten in wheat seems to harm me. I believe it drags other stuff into the blood stream which my anti bodies have to fight and that 'fight'  encourages them to fight psoriasis too!

      its only my theory but I am too scared to start eating wheat again to test it properly, because I have got rid of most of my psoriasis at present.

       

    • Posted

      Okay, I'm gonna kick the gluten first, particularly as you say you are almost clear. Do you think 6 weeks would be a good test period? From all the reading I've done both gluten and lactose seem to make things worse but you are the first live person I've communicated with who has tried it and report good outcomes. I think that will be relatively easy for me. I will try that 1st. Lactose will be more difficult, I love all dairy. But I have high cholesterol at 8.2 so certainly kicking dairy should be doubly important. Do you follow a particular diet regime or is it something you do yourself? Advice much needed and appreciated. Cheers. NB I'm slim, and don't smoke. My doc just says it's the way my body metabolise cholesterol. I've tried stating in the past but they created havoc with my internal plumbing if you get my drift
    • Posted

      I am slim and don't smoke too.

      Diet? I take notes and research foods. After two years I am starting to get things right.

      my psoriasis is nearly completely gone. But I am still zapping the odd spot that starts with potent steroid creams. 

      I would need a two page text to tell you diet stuff, so I will just say a bit.

      1) Gluten - I take none, not even starch additives. 

      2) Lactose. It's complicates, yes I love dairy too. But I found out that I am craving the high calcium that those contain, not the dairy itself.

      so, I try to go for LOW LACTOSE dairy. Best of all is parmisan cheese matured for two years because it is high in protein and calcium but low in lactose sugars. Cheddar is also good. Eating a lot of hard cheese makes us constipated again, it's the calcium doing it. But we need 1.2 grams of calcium a day. That's a lot. So it's very hard to give up dairy completely.

      what ever you do do not take calcium supplements, they are poison! - acid rebound reflux.

      2) I eat raw peppers, raw cucumber skin and all, and bite the green parts off broccoli. I don't really like it but my digestion does like it. It thanks me by being regular.

      3) Potato is just fine for me, easily digestible and fills me up satisfyingly.

      4) I try to vary because the stomach really does prefer that. So I an and do eat - hard boiled eggs, non-gluten salad plates such as egg, tuna, and greens and vinegar sauce. Fish, bananas, espresso with sugar seems to work wonders.

      5) I have now given up candy bars and am experimenting with that. I am not sure about sugar and candy. I seem to need it but usually I eat far too much so am limiting it.

      6) I am experimenting with VITAMIN D3 - pills and creams. The cream may keep my skin clear after steroids better than tar creams. I am not completely sure but certain,y vitamin D3 has been part of my regime that has been successful. I take high dose vitamin d3 at night (1000 iu) and put dovonex cream on the scabs or where the scabs were before I zapped them with steroid cream. I think it helps stop them coming back. So far so good.

      lets see,,,, I also take Lugols iodine three drops a day, but I don't know if it is connected. 

      I take no other supplements other than what I've said. 

      I eat for healthy digestion not for taste. People with IBS I believe are similar to us psoriasis sufferers in that food intolerance needs to be defeated or avoided. 

      Let me know what you do so we can compare strategies. All the tiny details are very important IMO.

  • Posted

    Go back to your GP and get a referral to dermatology. I saw a great Dr and now have a nurse specialist who I can ring for extra help. I also had lighttherapy in the physiotherapy department and the different it made was and still is out of this world (don't get me wrong it hasn't gone completely, but is managable). So much easier to keep up the maintance treatment than fighting a losing battle daily.
  • Posted

    Hello, since the age of 30 I'm affected with psoriasis, now I'm 70. I guess I've tried so many treatment to came to the point that for me I get the best results with natural products. Actually my skin is nearly clear, I don't want to complain because I had a

    "before" and now I'm an "after". Doing a lot of research myself and starting to be critical with some doctors, I found that taking bath with Salt of the Dead Sea and Mud,  is the best medicine for me. Not to forget that what works for one person maybe don't work for another. But those products are for me not to costly and have no side effects. 

  • Posted

    Hi there, poor you, I really feel for you as I know exactly how you feel. I am 48 and have lived with psoriasis since I was 11. However, up until mid 30's it was not so bad - just elbows, a small patch on one knee and my scalp - all of which was controlled steroid creams a few times a month and a steroid lotion for my scalp once a week. However, I hit mid 30's and my psoriasis went mental and I now have it everywhere. I thank god that it's not plaque psoriasis (those huge patches) but I have small patches all over which just looks like I have a terrible rash. Except my feet and ankles which are covered in total and my scalp which would be entirely covered if not for my scalp lotion (I'll give you all the names in a moment).

    I have had every treatment available over the years and absolutely nothing works permanently, or even for several months, and so I have had to come to terms with the fact that this cronic condition is for life and I have prepared myself for getting the arthritis that comes with it at some point too. 

    So to you; you say you cannot afford the steroids etc so can I assume you don't live in the UK or anywhere else where you get free health care? If that is the case then you are going to have to work with some natural options to relieve the symptons - which is actually what I do these days as I am just fed up with plastering on all these disgusting steroids as god knows what harm they are doing to my insides! 

    Anyway, here are the things that I do which make my psoriasis bearable and also not so obvious and ugly looking. 

    1)  Where do you live, is it warm and sunny during the summer months? I ask because without a shadow of a doubt sunshine is the one and only thing that clears psoriasis up and gives you some relief for months at a time. I live in England and unfortunately we don't get too much sun, but on every single occassion that the sun is out I am in the garden sunbathing. And I contort myself into all sorts of positions to make sure every area that has psoriasis gets the sun. I also take every opportunity to go on holiday and it is only ever to a sunny place - I cannot waste valuable money and holiday time going anywhere cold or winter holiday as I live by the sun. This means through the summer months at least I get some relief from it and my skin ends up looking o.k enough to wear bear legs and arms etc without excruciating embarressment.

    I have spoken to my doctor and my dermatologist at length about the pros and cons of the sun because we all know the risk of cancer, and both unanimously said that when you live with psoriasis long term you personally have to weigh up the heightened risk of skin cancer and the relief you get from the sun vs. getting no sun and living with cronic symptons. They both agreed for me, a heightened risk of skin cancer was a risk worth taking because I get such good results from it. I 100% agree and for me there is never a chance of me not going in the sun - I live for summer now just so I can have that few months of comfort and relief. 

    I also read on this forum someone takes extra strong vitamin D tablets and that helps them. I have not tried this myself but I am going to do so. I have just ordered myself some tablets so hopefully that will help aswell.

    2) I bath in porridge every night. Someone told me about this years ago and I thought what a crock of rubbish, nothing helps psoriasis except sunshine and steroids. However, a couple of years ago I was absolutely covered and was so depressed with it all that I was in tears all the time. So I thought, what the hell I'll try it. You take a sock or stocking and put a cup full of organic porridge oats into it, tie it up and put it in the bath whilst it's filling up. Squeeze it in the water until all the milkyness has come out of the sock. The water by this point is milky. Then soak yourself for about half an hour - don't wash or use any soap or anything, just relax and unwind in the quiet, warm porridge bath. Give it a couple of minutes to soften the scales and then use a buff sponge to scrub the dry skin away, then just lie in the water and relax for half an hour. When you get out of the bath smother yourself in a really good emolient or moisturiser. I use Cetraben but not sure what you can get where you are, but you want a really rich emolient and you want to rub it in everywhere. They are very greasy I know, and it gets really boring having to do this every night but I absolutely wear to you it works. I started this regime and for the first 3 or 4 days I couldn't tell if it was helping or shrinking the patches, but I was certianly feeling better. I went to bed that first night and did not itch all night and I woke up the next morning astounded that I had slept all night. This continued and on another plus, I noticed the during the day I wasn't getting all dry and itchy with the horrible flakeyness - my skin was just the pink patches which personally I prefer to the dry scaliness.  Anyway, after about a week I was sititng watchign t.v after having a week or so much less itchiness and I realised my legs looked so much better - less red and certainly shrinking. So I continued with the porridge baths and emolient and after 4 weeks I was clear for the first time ever. I still had very vague pink marks which I call scaring (which never clears up unless you get a suntan) but all the lumps had gone, the itching and dryness - my legs, arms, buttocks, back and chest were smooth.

    And it stayed that way for about 4 months and then I noticed a few little bumps coming back. Anyway, what I have realised with psoriasis is whatever you use and do, eventually your body gets used to it and the psoriasis returns. So I stopped the baths for a couple of months and then resumed them again and again, it all cleared up, then came back etc etc. So now I have a cycle of using the porridge baths when the psoriasis gets really bad, it then improves for some time so I stop using the baths, then it comes back so I resume the baths etc. As well as I baths, I go in the sun as much as possible etc. etc. T

    These 2 things definitely help me life with psoriasis and keep it as under control as I think is possible, and if nothing else, the baths will certainly ease the discomfort you feel and cool the skin down.

    3) In addition to the above I also take an antihistammine morning and night. This helps with the itchiness as well - but when I'm bathing in the porridge I don't have to take the antihistammine. I take 1 piriton during the morning and I take 1 Phenagan at night (don't know if you can get Phenagan where you are but these are brilliant to take at night). Also, when I go on holiday to America I buy something called Benadryl gel - it's a topical antihistammine in a lovely cooling gel which is really easy to rub in being a gel - you just slap it on and rub it in and get no sticky residue etc so brilliant to use if you are out and about (I carry a bottle around with me all the time). So when I go to America I top up and bring back about 6 bottles of the stuff as you can't get it here in the UK.

    In addition to all of this, I also never eat dairy products. Cheese is the worst. I cut out cheese a year ago as I was trying to lose a few lbs and hadn't had any for about 4 months and then went out to dinner where cheese was included in the meal. I thought nothing of it but when I got in bed I itched so badly all night I couldn't sleep even using the benedryl gel and taking an antihistammine. I realised it was the cheese as I hadn't been itching for months. So I cut it out together with cows milk, yogurts and butter etc. and that has helped immensely. I have heard something people have found wheat also affects them but I have not found this to be the case.

    I find the worse part of psoriasis is on the scalp because it nearly sends you demented with the itching. The only thing I use and will consider using is a scalp lotion called Diprosalic. I have tried everything, all shampoos etc and nothing works at all or even gives any relief from the itching other than Diprosalic. It is only available on prescription here in the UK and I use it twice a week regardless of whether I am itching on my scalp or not - as I cannot bear to even begin to get psoriasis on my scalp. I don't know what to suggest if you are unable to get something for your scalp other than using the shampoos you can buy over the counter and also soaking your head in the porridge bath - I haven't tried this but you could try this and see if that helps.

    Without steroid creams and lotions, these are the only steps I can think of that can help relieve your symptons. Please try the porridge as to me, it is the single most effective thing other than the sun, but the sun and porridge combined will help even more so. Always buff the scaly skin away and use a really good emolient at night after you've buffed and soaked in porridge. Then next morning, use a good moisturiser again - doesn't have to be emolient but does need to be a good rich moisturiser. Ditch dairy products for 6 months to see if this helps you. Take antihistammine and get in the sun as much as possible. 

    I hope these steps help and give you some relief. Bye for now, and good luck.

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.