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psoriatic arthritis

Posted , 4 users are following.

tinytoni
tinytoni

hello, my name is toni-ann im new to this forum. well iv just found out that i have psoriatic arthritis? iv had psoriasis all my life since being a little girl,so iv had all the name calling and nasty stuff said to myself. but now im told all the pains iv had for over 6 years is p.a iv had bloods done xrays an im waiting to have mri spine lumbar and sacral also on same day im having mri pelvis slj both. my rheumatology docter has gave me aleaflet methotrexate saying i will be taking these. im 36 years old and to be honest im still abit worry about all this so if anyone could please give me so advice on what to expect i would be great full. if you would like to ask me anything please feel free to do so

many thanks toni-ann.

0 likes, 10 replies

10 Replies

  • mrsmop
    mrsmop tinytoni

    Posted

    Hi Toni-Ann  I'm sorry that you are having such a hard time.  Have you read the following page on Patient.co.cuk  ?

    https://patient.info/health/psoriatic-arthritis

    It mentions DMARDs, of which Methotrexate [MTX] is one.  I started taking MTX at the beginning of last December, I have an autoimmune skin disease.  Taking the MTX has allowed me to come off Prednisolone for the first time in 3 years.

    MTX has its own side effects and they can be a bit grim but, it doesn't cause the same sort of long term problems that steroids do.

    They will start you on MTX with a small dose, usually 5mg/week, to see how you cope.  You have to take folic acid too, generally the day following the MTX.  Some people suffer badly from nausea when they move to a higher dose, so they then move to weekly injections, which eliminates the nausea.

    You have to have monthly blood tests for the first year.  

    I have come across people, particularly with RA, who have been taking MTX for 20 years.

    https://patient.info/health/psoriatic-arthritis/support

    This is also a useful page.

    I hope this helps and good luck!

     

    • tinytoni
      tinytoni mrsmop

      Posted

      Hello mrsmop.

                 Thank you for taking the time to reply to my message and send myself links I will be sure to take the time to look at them both later on today.sorry to hear That you have autoimmune skin disease.Take 

      care of your self hope each day gets better for you many thanks toni x 

    • tinytoni
      tinytoni mrsmop

      Posted

      Hello. 

                  Thank you, yes I did find that yesterday. I wrote on that forum but no reply as yet. Thank you for thinking of me when you seen it x. 

  • joanne27239
    joanne27239 tinytoni

    Posted

    Hi,Toni-Ann,my names Jo,

    i was told 5 years ago I have P.A after suffering with Phorasis since the age of 5. I was 39 at the time so slightly older than you.

    I was told about Methotrexate and read all the leaflets and decided to give it a go. 

    I started on the tablets for 3 years, I did feel really queezy on them I must admit.

    I was never a big drinker so the no alcohol side wasn't a problem. 

    It took about 3 months to start working and what a difference it made. From getting out of bed and hardley being able to put my feet down to walking pain free. 

    And my skin cleared to. I'd not been clear since I had my last child 12 years previous. 

    Gradually I've had to up the dose as I think your body does become adjusted to it. 

    I now take 25mg by injection. As I was fed up of feeling sick. This bypasses your stomach so not to make you feel so bad.

    and I've just ran my first half marathon for the British Skin Foundation. Something 5 years ago I would never had thought I'd do.

    you will read different comments on here about how it effects people. But remember, everyone is different, what effects someone else may not effect you!

    Give it a go,but don't expect an overnight miracle. 

    What have you got to loose? If it doesn't work you can stop it, But if it does then you have everything to gain.

    good luck 

    Jo

     

    • tinytoni
      tinytoni joanne27239

      Posted

      Hi Joanne. 

                          Thank you for getting back to me,  its nice to know what others have been though. Well done on running the half marathon you must be so proud of yourself. You should be at the moment I couldn't see myself doing anything like that. But reading what you wrote gives me hope to stay positive.  So I will give anything a try once.  Can I ask if you work if so what do you do. Im in sales working in a clothing shop but im finding it difficult as my back hip wrist hurtsso bad making it hard to keep up the customer service (the pain show though). Many thanks toni x 

  • joanne27239
    joanne27239 tinytoni

    Posted

    Yes Toni I work,

    i'm a school cook. It's very heavy work, and on my feet all day which for me was a big problem. Trying to find shoes to help with the pain. 

    But again,I'm fine at the moment. I have to be careful with certain cleaning products as the phoriasis flares up on my hands and it's always on my arms.

     

    • tinytoni
      tinytoni joanne27239

      Posted

      That's good to know as I want to keep working. Not sure my boss will be that understanding. Im glad that your feeling better. 
  • karen20616
    karen20616 tinytoni

    Posted

    Hello my name is karen ,i to have found out that i have psoriatic arthritis ,i have psoriasis in my head and had it for years ,i  started methotrexate  six weeks ago,have you started methotrexate?If so how are you getting on with it ?

    Karen 

    • tinytoni
      tinytoni karen20616

      Posted

      Hi Karen.

      I hope you're feeling well. Yes iv started the tablet but only a week so still early days yet. How are you getting on with your tablets ? I would like to know. Take care Toni-ann

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