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psoriosis

Posted , 6 users are following.

dai1968
dai1968

iv had psoriosis for about 5 years i have tried loads of creams,bleach baths,etc i m now trused up like a turkey covered in cream and clingfilm and rubber gloves does anyone know a good fix as the best iv had is about 2 weeks then it all starts again

2 likes, 8 replies

8 Replies

  • KupKake
    KupKake dai1968

    Posted

    Bleach baths!!??  Oh dear!  I have also been through the years of covering my skin in cream and clingflim, I feel for you sad  I am completely clear now!

    I was in constant flare up for 15 years, my arms, legs, face, scalp and back were covered in red, hot, raised sores which bled and itched like crazy; I didn't know what to do with myself.  I was prescribed Dovonex which worked but I had to apply it morning and night, which I didn't always do...  But if you want something that works that definitely does the trick, but the doctor will have to prescribe it for you, the ointment is best.

    THEN, I got Psoriatic Arthritis and was in severe pain almost immediately after diagnosis (couple of months).  I was prescribed Methotrexate and when that didn't work I was put on biologics (very expensive) Entenercept also known as Enbrel and Methotrexate and my skin is now completely clear and I have no Psoriatic Arthritis!  After years of misery it is quite amazing!  But you'll have to go to a dermatologist to get on such strong medication, but it's life changing!  I thought my skin would never be clear, and it looks great!

    I hope you're able to find help xx

    • dai1968
      dai1968 KupKake

      Posted

      hi thanks for respose iv  had arthritus for 20 years and the meds made it worse i stoped tramadol and anti inflamitories about 8 years now and feel alot better apart from the psoriosis. i have asked for oral meds but my dr refused, he also refused a referal to se a derm just going around in cicles
  • pippie56520
    pippie56520 dai1968

    Posted

    Hi have you been to dermatology. They sent me to light therapy and though not an easy treatment at least I felt that I was getting somewhere. They continue to keep an eye on me are are available on the end of the phone. Go and see your GP or phone and request a referal.
    • dai1968
      dai1968 pippie56520

      Posted

      hi i seen a derm when first diagnosed now my dr wont refer me just keeps giving me creams ointments which iv used b4 1 continious circle
  • lucynewas
    lucynewas dai1968

    Posted

    You may need a DMARD to get a grip on the autoimmune response.  Best to see a rheumatologist.
  • david60784
    david60784 dai1968

    Posted

    You are lucky only having it for 5 years. I ve had it for 50 years no social life. I am now on  an injection called stelara FANTASTIC. ask you consultant about it. GP do not know much about it.
  • dai1968
    dai1968

    Posted

    i have found a way to stop the dry scales i use plastic sleeves what they use in kitchens with loads of eperderm cream and this does keep it from drying out also i use disposable gloves for my hands i use these over night
  • KupKake
    KupKake dai1968

    Posted

    Hi Dai1968,

    I am so sorry to hear about your situation, I really feel for you, I used to do the same thing with cream and clingwrap but it stops you going out and it's so messy!  I've been there, but really, really I strongly urge you to get a referral to a dermatologist!  There is definitely more help for you than you are currently receiving!  Doctors get it wrong, they are just human and if your GP is refusing to give you a referral to a dermatologist then go to another GP!  That is your right.  I had to change GP's too!  I was told there was nothing that could be done for me, how wrong they were!  

    Please, please get a referral to a dermatologist,  you don't have to live like this!  I know you said the drugs caused you problems but there are new ones becoming available all the time, they can juggle the drugs so you have the best quality of life and you don't have to struggle anymore.

    I hope you are able to get a referral soon, and get the relief you deserve!  Big hugs!

    xx

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