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Pulmonary embolism after care😢

Posted , 14 users are following.

Lazeedaze
Lazeedaze

Hi, I am generally fit in my 50s and been travelling for six months and now I have a PE, 4 weeks on.

My doctors give me little information and I feel a total nuisance so I am hoping someone on here can assist or share similar problems.Ā 

I have been on blood thinners for 4 weeks, initially the pain went but now it has gradually returned. Ā Not horrendous just constant. Has anyone had similar experience?

many thanksĀ 

psĀ 

i intend getting on with my amazing life and look forward to hearing from you.

0 likes, 75 replies

75 Replies

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  • Supertractorman
    Supertractorman Lazeedaze

    Posted

    I had my nose cauterised while on Rivaroxaban and it made no difference, but as soon as I went on Apixaban nose bleeds stopped. I was told that with Apixaban it is two tablets a day instead of one on Rivaroxaban, therefore you are not receiving as intense a dose at once as you do with Rivaroxaban and this is the difference. No heartburn either so all good for me.
    • steve_1966
      steve_1966 Supertractorman

      Posted

      thanks, did you have to have an increased dose of Apixiban for the first week that you moved over or did you go straight onto the maintenance dose?
    • Lazeedaze
      Lazeedaze steve_1966

      Posted

      ...I am taking Dabagatran etexilate.. (Pradaxa) my side effects are minimal for your info. Ā two tablets a day one in the morning and one in the evening, I have been on this dosage since a week after diagnosis.Ā 
    • Supertractorman
      Supertractorman steve_1966

      Posted

      Straight on to maintenance dose although I was off Rivaroxaban for 3 days while having a TURP done prior to Apixaban.
  • Peedee99
    Peedee99 Lazeedaze

    Posted

    i had this - pains in chest etc - just as you though you were getting over it. i was told that the PE can irritate your lungs as they aren't supposed to be there - i also think that some of it is in our heads as we lose faith in our bodies - which is only natural. this did all fade after a while i can assure you.
    • -.a-way_forward
      -.a-way_forward Peedee99

      Posted

      Think of your veins, arteries/ pulmonary circuit like a pipework in a sealed central heating system. The heart & pulmonary artery is the pump/expansion vessel. The lungs are the radiators, clots produce cold spots/traumatic pain. And the wiring, valves and temperature sensors, is the endocrine & mental health aspects of PE.

      This observation helps me puts things into perspective. More importantly, the Gas, water & electric regulations should be the Nice Guidelines, treatment & aftercare plan.

      Preventative medicine and communication is key.

    • -.a-way_forward
      -.a-way_forward

      Posted

      I forgot to mention autonomic valves in our calves...and possibly in other parts of our body, that may contribute towards DVT..or clots from our arms

  • Peedee99
    Peedee99 Lazeedaze

    Posted

    Hi Mate - samehappened to me - my doctor said that the area you had the PE in can become inflamed or irritated by the clot - Also, i think part of it was in my head worrying about a reoccurance, it stopped after a few days, then happened a few more times
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