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Well have just come back form a couple of days of tests at Papworth and have been confirmed as having Chronic Thromboembolic Pulmonary Hypertension. I need to have surgery to remove as much of the clots as possible and to hopefully then be able to return to a 'normal' life and able to enjoys all the things that I used to do.
I was told that this could have been going on for years before it finally got really bad last year and I ended up in hosptal for 2 weeks with large bilateral pe's, I hadn't been feeling great for about 3 and a half years and have had all different kinds of tests, all of which came back clear and was told it's anxiety!
Am so glad that I have finally had a diagnosis and I am being given the chance to get my life back to normal.
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