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pulsatile tinnitus advice please asap

Posted , 3 users are following.

carroll998
carroll998

I Saw an ent consultant when I 1st started with pulsatile tinnitus. .They gave me a head mri scan which came back normal and listened to the blood flow in my neck ...that seemed ok too...i put up with it for 3 years...i then had sepsis to my amazement i noticed my pulsatile tinnitus had gone ...It was brilliant ...that was 2 years ago and it returned with a vengeance in June of thus year ...little different this time as my hearing been really affected also. My gp booked an appointment with an ent consultant. ..he said because I had an mri head scan 5 years ago he wasn't willing to give me another and never tested arteries in next just sent me to tinnitus clinic who just altered my hearing aid ...i wasn't happy with the consultant eagernessto get me out of his office ..I felt let down and I wanted tests to find out what caused my symptoms. .i contacted pals who suggested I see another member of his team ...i saw her today she was adamant not to do any tests other than she listened to the arteries in my neck ...and that's it ....It was 5 years when I last had a mri head scan since then had a parathyroid adenoma removed ...Over active thyroid ..atrial fibrillation. ..but made no difference. .won't do another mri ...what shall I do now ...please advise Carroll

1 like, 5 replies

5 Replies

  • Aeryes
    Aeryes carroll998

    Posted

    Well from what I have studied and learned over the last year since I had Tinnitus is that the problem always stems down to something simple and something that has been overlooked. You say you had a parathyroid adenoma removed. This would suggest to me that it could be a surgury related issue where something that was linked to either the auditory nerve or something happened in that area that had a knock-on effect to the ear causing Tinnitus. Ototoxic substances used during the procedure? Medication after it? Medication you have been on for the whole time? or just noise exposure?
    • carroll998
      carroll998 Aeryes

      Posted

      Good morning. ..The pparathyroid adenoma was rremoved a year ago the pulsatile tinnitus returned 7 months ago. I see no connection. But thank you for your suggestion. What I am trying ssay why the

      Ent consultant is using an mri head scan ttaken 5 years ago and says because had 1 no need to do an up do date 1 even tho tinnitus stopped 2 years ago and restarted in

      June this year even tho my body wwithin last 3 years been thro parathyroid op ..Overaactive thyroid and atrial fibrillation he says another mri head scan not justified...it will be the same ...my point is he his not even trying to find a reason. Not sure what to do now takecare

    • Aeryes
      Aeryes carroll998

      Posted

      Well he isn't in charge you are. Your paying him to keep you healthy. Insist that he give you a scan or else you'll take it further.
    • carroll998
      carroll998 Aeryes

      Posted

      Do you know how I have fought in the past..i fought tto have hole in heart repaired cause i

      Did not fit criteria. ..my heart was enlarged ..i wwas in pain for many years with gallstones no Dr thought to do a sstomach

      Scan my daughter came with me and verified how much pain i was in then did a

      scan an found a very ddamaged gallbladder

      With very large stones...was removed after

      Years of pain ...tThe pparathyroid adenoma had to fight for that op too...i am tired of fighting with consultants...i shouldn't have too....i have seen so mmany mmistakes in nhs Iit's scary....not easy to type on hhere letters keep ddoubling up....I am ssick of having to ffight for my life bbecause tthey aaren't doing ytheir job properly. ..takecare

  • melodie66392
    melodie66392 carroll998

    Posted

    Carroll my heart breaks for you!  First, I would suggest getting some new doctors.  I hate how some doctors treat us as if we are just "crazy" or imagining our problems.  If your doctor does not listen and empathize with you, find one who will.  That is the beginning.  Once you find a PCM who is on the same page as you with your care, you will begin to find them referring you to the right specialists who will as well.  This is where I would start.  It's not as easy as it sounds unfortunately, and too often takes time to get on the road to recovery.  My PCM is wonderful and I can talk to her about anything.  She never gets tired of hearing me whine and that's a big plus.  If she sends me to a specialist who I am dissatisfied with, she will send me to another.  She has even ordered tests for me herself.  Unfortunately with all the tests I've had, they see nothing abnormal.  The ENT told me that what he did see is something that simply comes from the aging process, although I know I've had some exposure to very loud sound moreso in my right ear, which is much worse than the left.  Sometimes we just have to listen to our own bodies and do what we think is best.  I've found this forum to be not only informative because of all the other folk who have this, but simply the friendship I am gaining with others who suffer with this in itself, is helping me a lot!  Keep checking back and I hope you will begin to feel the same way.  As good as my doctor is, even SHE has no idea what would help.  She told me there actually is no cure for it.  She feels bad about that too.  I am doing one thing though.  I'm protecting my ears whenever I'm around loud noise these days.  And I avoid it as much as possible.  Take care and I wish you all the best.  I will pray for you too.
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