Purple grey discoloration after 2 days of clob ointment

Hi alyshia- what a heart breaking condition this can be, I totally relate to your frustration. The bruisy look could be from sex, as the clobetasol can thin skin and make it prone to bruising. I personally think clobetasol is ridiculously potent at first and then becomes this evil medication because although it is suppose to keep the condition from advancing, not everyone has success with it. My believe through research and talking to others who take steroid cream is that long term heavy use of corticosteroids keeps us in a compromised health. I know some may not share my view. So I say use clobetasol only as needed and not too aggressively as it can also create a dependency by the body, causing your immune system to weaken. My doctor said to use every day for 3

Weeks when I have a flare up then go down to 2x per week then only as needed after a flare up. 3 weeks feels crazy to me so I just did 3x per week then down to 2, then 1x per week. Now only once in a while to keep LS at bay. Seems to help. Clobetasol is the #1 most potent steroid out there in the market and can have bad side effects. It’s anti inflammatory so if  you can find natural ingredients that are also inflammatory, including what you eat, I believe this can help immensely. Maybe try twice a week and supplement with coconut oil, baking soda washes, and continue with your healthy diet. Then go down to less often? Since we have an auto immune condition it’s really important we try to keep stress at bay, eliminate sugar etc. hopefully it’s just a bruise and it will fade a bit and get back to normal. I’m also new to the group and studying all the different ways, through the “experts” in the forum that I can heal myself naturally. So far feeling hopeful. Best to you and feel free to write anytime. 

What country are you in?

Hi alyshia, when you are first diagnosed it is important to use the Clob as directed. Why? Because you are flaring and you need to get your symptoms under control asap and that is why its best to follow your Drs advice...at first....however, I believe that once you have got your LS under control you can then look at alternatives, something more natural.  

I think if you start using the Clob every day for a week, then alternate days, then weekly.  There is no rigid time frame for this, we all react differently and to be honest, I would consider using it twice a day for a week as the sooner you get your symptoms under control the sooner you can stop using it and try something else, an alternative.  I believe this is why your LM is looking purple/grey and the Steroid cream should hopefully bring it back to a pink.   I only use the Steroid cream for emergencies now, although some women do use the Steroid cream weekly for maintenance.

There is a thread called 'experiment with Borax' which some women swear by for helping keep things under control, if you do a search for it I think you will find it interesting.

I read that in some cases that women with a dark discolouration on their Vjay changed all that when they started using Borax, it went back to a healthy pink.  

So, my advice is to use the Clob for now, and get hold of some Borax.  

Nancy that posts on here, has a very good thread on nutrition etc which is definitely worth reading.

Hi Alyshia- I am 12 days diagnosed and fo not hv access to steroid cream yet as my Dr. Went on 6 weeks leave. I left on vacation ( non- refundable airpkane ticket 🙄 , so I hv ONLY been  using homeopathic treatment -Eumaid Maxx and a vitamin based Moisture barrier. My itching has gone from 10-1/2, my pain has gone from 12-1. It got a little more irritated when I got  my period on Thursday, but symptoms are pretty much under control. I cut out sugar, red wine, nuts and wheat products and am following a low- oxalate diet. I drink tons of water and re- apply all everytime I pee. 

I don’t hv a Dr appt until July 24, so I an doing the best I can on my own. The people on this forum have given lots of great advice! 

I have been watching Dr Goldstein’s lecture and am concerned that without steroid treatment, the homeopathis treatments are not penetrating through alm the layers to attack the T- cell issue that caused this disease in the first place? That is a conversation I will hv with my Dr. When I return from vacation. And I haven’t had sex since May due to the pain and inflammation- husband’s semen seems to make it worse! TMI,  I know, but it gets raw and painful for weeks afterward. 

Good luck to you! 

Hi Alyshia,

Just putting this out there so you know about it; it may not pertain to you but it certainly was an issue for me.  I discovered my body does not tolerate Clobetasol; the symptoms that appeared were even worse than the mild case of lichen sclerosis that I have.  I have very sensitive skin and it reacts to a lot of things; I can no longer use Clobetasol.  The same thing happened with Protopic; I can no longer use it.  I've been using Diflorasone Diacetate for a few years now and it works fine; I only use a few times a week.  One thing I've learned is that I can't over-use anything, or it may cause issues for sensitive skin.