Pyloric Stenosis and long term effects

would like to say i had a ps 54 years ago as a baby last 5 years have been terrible constant pain bloating constipation feeling of pulling in and around scar and under right ribs have been told its ibs defo not convinced still fighting 4 answers. have lost weight as when the pain gets really bad cant eat properly

\"Mouth\" may be interested to visit the experience of \"ljh446\" posted today (11 March) on one of the MedHelp PS discussions - go to http://www.medhelp.org/posts/Gastroenterology/pyloric-stenosis-scartissueinfantcausingproblemsin-adult/show/622104

It suggests that adhesions from early PS surgery do sometimes cause significant problems in later life. Thankfully not often, and there can be other issues behind gastro problems, but what you mention sounds quite similar to this story.

Hello, My questions is directed toward any parents whos child has had corrective surgury for pyloric stenosis. My daughter was different baby after her surgury, she smiled finally. However she is now five and I am having trouble getting her to gain weight. Her eating habits are a bit irregular however we encourage her to eat as often as she feels she needs to. She weighs 35 lbs and has been at or around that weight for almost two years. She is strong and otherwise healthy. The women in my wifes family are petite as well as those in my family so her doctor says she is fine. I am just curious if anyone else has a child with weight gain issues or irregular eating habits?

I am a 43 year old female and I had surgery for Ps when I wss7 weeks old. I have 3 children no Ps in any of them...thank goodness. I was always thin and have some Ibs issues. For all you moms out there do not worry about yourchilds weight...I was super skinny super fussy eater...now I am average weight and though still fussy I have grown up in that area.

Thank you for the feedback psbaby. I cant stop thinking abour her,and if there is more I can do. She is 5 and a half and still only 36 lbs. She is strong and smart,and I am thankful for that she is just not growing. Inheight a little but in weight none...were you small as a child also?

At 57, I'm probably amongst the first to have been diagnosed and successfully treated for PS. When my first son was diagnosed with PS, I was told it was not hereditary and the chances were 1 in 10,000. When my second son was diagnosed, the odds increased to 1 in 100,000,000 and the genetic link was established. Both my sons are now fine, fit young men in their twenties. They are both tall but very slim, and struggle to gain any weight.

I'd be very interested to hear from anyone who has evidence of the longer term effects they believe PS has had on their adult health or development

Hello, my son was diagnosed w/ PS at 3 weeks old. I noticed vomiting, though not projectile, about an hr

after each feeding. After a few days of this he started to become lethargic and we knew that something was

terribly wrong. We took him to the ER and after an examination we were immediately transferred to another

hospital to prep for emergency surgery. Since his surgery he's been fine but I found that he seemed to no

longer be able to digest dairy products and he would become extremely constipated afterward. I've since

switched to soy milk and he's given prune juice from time to time. I was wondering if anyone else's toddler suffered from constipation seemingly due to PS?

To NigelH:

What you write about is it seems quite normal, though not universal. I have the same: fit and healthy but never any weight gain. Mkaes eating fun. However, this is also in my family, so who knows the cause? I research and blog about PS (as interested and not medically trained) and have found that there are several medical reports on this fast digestion - the op often speeds up the digestive system and can cause IBS. There are also reports on other possible long term effects on health and development, and I've written about all these on my blogsite.

Btw, the heredity stats you were given were wrong: the widely published figures for the son of a PS father are 5%; for a girl born of an affected mother it's 20%. As with all stats, what actually happens is a bit of a lottery!

Jen1228....Hi, my son had pyloric stenosis when he was 3 mos and he is now 7 yrs old and is suffering with terrible constipation. He's been to the er numerous times now which they put a tube in him running fluids to him use the bathroom. It works for a little and then weeks later he is constipated again. I think its dairy products also. I just need help and answers

Hi Jen, so sorry to hear about the pain and difficulties your son and you are having. I'm no doctor but having had PS myself, having sensitive bowels and researching and writing about PS and related matters, let me mention what I've learnt about what you mention -

1) several studies have shown that PS surgery often results in some degree of digestive issues, but hey, much of the population has the same problems.

2) people with a PS history usually complain like I do on having too fast and loose a system and not being able to gain weight. Some report constipation and/or weight gain.

3) I try to forget about my PS past and work out what works for me. My wife has constant constipation issues and I the opposite. We've each learnt a lot about about our different diet needs and how to re-jig our systems when they lose the plot. Have you tried a GE specialist or a dietician or an allergist? Some of these will be good, others not for you, so ask around and be prepared for some trial and error.

Best wishes and hang in there working with your son on his needs.