Querying Fibromyalgia
Posted , 4 users are following.
Hi everyone,
Before I start I'm aware that no one is a doctor, and I have an appointment for next week.
Basically I'm just wondering if any of my symptoms match that of Fibromyalgia.
Every single day I have some sort of pain in my legs and or back. It varies from back pain to pain in my feet, pain in my calves or pain in my knees. I cant remember the last time I had a pain free day. Some times the pain is like a burning other times its like numbing tingling feeling. Normal painkillers are not touching it and I'm finding it very hard to sleep, which means in the day I'm exhausted. Does anyone have any ideas? Advice would be welcome. Thank you for reading.
0 likes, 8 replies
shannel82 samantha2202
Posted
That does sound like some of the symptoms but also sounds like Sciatica .
samantha2202 shannel82
Posted
shannel82 samantha2202
Posted
I have fibromyalgia and I do have the symptoms you have explained plus many more lol have you look up fibromyalgia cos why I did I noticed a lot more symptoms that I thought were just normal for me. There's lots of good articles on it.
Hope that helps a little
Good luck and I hope you get some answers, keep us posted about your Dr appointment.
Keep in mind a lot of doctors don't know much about fibromyalgia so do your research so you can ask the right questions in my experience they fobbed my off for a long time. Took a few years of being a ginipig before they diagnosed me.
Xx
alison_44707 samantha2202
Posted
Fibromyalgia has lots of different symptoms and effects us all in different ways. I get the burning pain all over my body but the best way for me to describe it is it is patchy. I'm continuously tired as hardly ever sleep. I like you have described get your other symptoms too plus many more.
Have you had other things ruled out first as there are lots of other conditions that have similar symptoms to fibro that need to be ruled out?
I took a few years to get a diagnosis from a rheumatologist and actually only a few weeks ago got it confirmed.
Not really sure that's any help to you x
samantha2202 alison_44707
Posted
alison_44707 samantha2202
Posted
When I first went to my GP they did lots of blood test to rule out many many things. I also had MRI's to see if it was anything to do with my nerves. I also got referred to the musculoskeletal people at the hospital then had more tests before finally seeing a rheumatologist. Ask your doctor to start with blood tests if you haven't had them already and then take it from there. They can't just automatically diagnose fibro without ruling out other things first.
Hope you get it sorted x
samantha2202 alison_44707
Posted
mel77 samantha2202
Posted
I know what you are dealing with as I am in the same predicament as you are. You name it, pain everywhere and different kinds too. As you know, fiibromyalgia pain is more or less on trigger points and when you press them, the pain increases. That is throughout the body from the neck down to the lower limbs. The other pain I have is lower lumbar and when I walk for any short time, it starts to hurt. Of course putting pressure on it wih your fingers cause a feeling like pressure and kind of sick feeling. I have peripheral neuropathy and although the pain is minimal but touching your legs or theighs by rubbing, then you feel the pain. Numbing and tingling while standing for a short time is apparent as well. When I sit or lay down, the numbness goes away. When I apply heat to my upper back, neck and shoulders, it does feel good and it masks the pain somewhat until you don't use it again. I get cold when the pain is there and have to wrap myself in warm blankets, fall asleep and when I wake up, the pain returns. At least I can control it to a degree. My pain level hovers arond 6 to 7 most times and if I am lucky, it can drop to a 5. You would think one digit can make a difference either way. It certainly does. I had pain of a level 9 which is excruciating and double over meaning that it is bad. Fortunately, that doesn't happen and get it on some occasion. I wish I could get to a level 4 which I don't know what that feels like but to me it would be wonderful. Pain meds don't really work that well and I am willing to try medical marajuana which is legal here. I just have to be certified. I still would have to pay for it. The marajuana itself costs more than some pain meds. Insurance? Forget about it. I'm not saying that pain meds don't help as if you are on the right kind and dosage, it should. The problem is that doctors don't want to prescribe because they are afraid you can addicted to it. For well over 20 years that I have been on these meds, by fighting the pain works to some degree but over long term, it doesn't do the job as much. By trying to wean off of them, withdrawls occur and it happened to me. The doctor can give you something to ease that. The withdrawls on me were sweating, being cold and shaking. Thats typical but no digestive upset. When I got back on the pain meds, the withdrawls disappear. The worst part of all this is due to complications of the various conditions we have and there is no easy solution. Doctors have a hard time dealing with this. That is why we feel that they don't do enough for us and probably do to not knowing what is the best treatment. Pain doctors are supposed to help you in finding the best solution but how much time do they spend doing it? They would rather write us off as a druggie than anything else and that is why we get treated as such. I have been called an addict as well as doing criminal activities doing more than one drug even when the doctor prescribes it for breakthrough pain. Try telling this to a doctor. They don't understand and do not want to understand and go instead to another patient. They really don't know what we have to go through in our lives to live with all the pain that we get. So, if one pain med works on a particular part of the pain, it may not work on others. I hope what I mentioned here will help you to decide. It has taken me so many years to understand this. Some pain doctors may recommend epidural injections but be forewarned, it can be dangerous if not done right. The doctor better be experienced and learned how to do it the right way in med school and not a crash course over the weekend to learn. Check out you tube and you will find doctors warning of doing these procedures and the risks involved. Specially be aware of patient inteviews and the disastrous effects who ruined their lives. t's sad but true. I am not saying this is true of all cases but some. Be a prudent patient and read it for yourself. I hope you will make a good discision on what to do. Good luck on your endevours and I hope that something can be done for you to help rid yourself of pain. Take care.
mel