Questions about recent diagnosis
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After 2 1/2 years of pain I was recently diagnosed with Osteoarthritis. They originally diagnosed me with Polymyalgia rheumatica hence steroids for 22 months. My GP thinks I also have fibromyalgia. My questions are why do I have it in so many joints. Feet hands hips buttocks knees and shoulders. Also 90% of my pain is symetrical. I am all negative for bloods I have only had a raised CRP once at the onset. Thats the other odd thing about being diagnosed with Osteo the onset was in about 8 weeks. I thought Osteo took years to show on xray and was more or less one or two joints. Any advice or opinions would be appreciated Thanks
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EileenH jo42444
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jo42444 EileenH
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Joanne
mary76396 jo42444
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Hi Jo, I had the same as you, took a few years of seeing Rheumatologists, neurologists, gastroenterologists before they came to the RA diagnosis. Trouble is the symptoms fit so many different diseases. They knew mine was an auto immune problem but not which one. My Daughter has MS hence the Neuro. It was partly my own fault too as I would get disheartened with being fobbed of with diagnosis of fibromyalgia, then because of inflammation levels, poly myalgia rheumatica that I would leave it awhile until I got the courage up again for another battle. I gave up work, retired to a country town by the coast and finally saw a doc who did bloods and my RA factor had risen so sent me to another Rheumatologist who diagnosed RA. By this time I was having terrible pains in hands and feet, my ankles felt I had glass in them. I was put on 20mg of MTX and Plaquinil but still bloods showed high levels of inflammation. I was sent for a bone scan to see where the inflammation was and I had huge amounts in my hands, wrists, ankles and feet. I'm now on 20mg of MTX and a biologic DMARD and although not feeling 100% at least I know I am listened to.
Please keep on at them, it's possible to have osteo too but your right that it's wear and tear brought on over time. If they think you have polymyalgia rheumatica then they must see inflammation in your blood results (fibromyalgia and polymyalgia rheumatica are much the same thing only polymyalgia has inflammation). Good luck and keep at them. Mary
EileenH mary76396
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Spot on Mary! Wish doctors all knew the difference between fibro and PMR as far too many don't! I think fibro has become the lazy doctor's get out.
jo42444 mary76396
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jo42444
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tony35673 jo42444
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jo42444 tony35673
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