Questions to be asked in a survey about prolapsed discs

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Hi everyone

Following on from the other post where Gordon, PUK's news editor suggested we do a survey, well this is the new post where we can capture all your thoughts on what questions could be asked in a survey about prolapsed discs or what topics you would like the survey to cover.

On the other post, Gordon said this:

\"Over the last three years, back pain has been the 6th most common problem people have been seeking help with on PUK. Leg cramps has been the 8th. So, I think there is an unmet need and the subject is not currently covered by NHS targets. We can go as far as helping gather stats and making an academic comment on them.\"

Guys and gals, we really can make a difference with how the NHS treat all us sufferers of this debilitating condition. Please please use this post to input your thoughts.

Thanks very much in advance

Love

Jude xxxxx

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15 Replies

  • Posted

    Okay I'll start with a few questions :D :D

    From when the pain in your back/buttock/leg started, how long did it take to be diagnosed

    1-4 weeks

    1-3 months

    3-6 months

    6-12 months

    Over a year

    Were you offered an MRI scan?

    Yes and I had one

    Yes but I refused one

    Yes but I had to fight for one

    No I was never offered one and haven't had one

    When you were diagnosed with a prolapsed disc, were you offered physiotherapy/hydrotherapy

    Yes and I had treatment

    Yes but I refused treatment

    Yes but I had to fight for the treatment

    No I was was never offered that kind of treatment and never had it

    Were you offered pain medication:

    Yes

    No

    If yes, which pain medication were you offered (tick all that are relevant):

    Morphine

    Cocodamol

    Diazapan

    Diclofenac

    Gabapentin

    Amitriptyline

    Pregablin

    Anti-depressants e.g. diazepam

    Volterol

    Paracetamol

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  • Posted

    Did you see your GP first with the pain?

    Yes

    No

    If Yes, did your GP refer you to a consultant at a hospital?

    Yes

    Yes but only when I asked

    No

    What type of consultant did you see at the hospital (please select more than one if you wish)?

    Orthopaedic Consultant

    Neurological Consultant

    Spinal Surgeon

    Other

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  • Posted

    If you were offered an operation for your prolapsed/slipped/herniated disc, how long was it from the pain starting to the operation being carried out:

    1-4 weeks

    1-3 months

    6-12 months

    More than 12 months

    What type of herniated disc did/do you have?

    Disc degeneration

    Prolapse

    Extrusion

    Sequestration

    Don't know never told

    Where was the pain mostly (tick all which are relevant):

    In my back

    In my buttock

    In my left leg

    In my right leg

    In both legs

    In my left foot

    In my right foot

    Did/do you experience numbness in your leg(s)?

    Yes

    No

    Did/do you experience a burning sensation in your leg(s)?

    Yes

    No

    Did/do you experience weakness of your leg(s)?

    Yes

    No

    Did/have you lost your achilles heal reflex in one or both ankles?

    Yes

    No

    Has your prolapsed/slipped/herniated disc prevented you from doing things e.g. working, taking care of children, driving etc.

    Yes I am really limited

    Yes but only moderately

    Yes but only a little

    No

    If you normally work, have you had to be off sick with your back condition?

    Yes for a long time (3 months or more)

    Yes but only for a short time (1-3 months)

    No I've been able to continue working

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  • Posted

    If you were offered an operation, were the risks fully explained:

    Yes

    No

    Don't Know

    Were you offered a choice of hospitals to have the operation?

    Yes

    No

    Don't Know

    Were you offered the choice of an open or micro discectomy?

    Yes I was offered

    Yes but I had to ask

    No I was never offered a choice

    Don't Know

    Did you feel confident in your surgeon?

    Yes

    No

    Don't Know

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  • Posted

    How did you feel the physiotherapy/hydrotherapy helped?

    Yes it helped a lot

    Yes it helped a lot

    No it didn't help at all

    It made my condition worse

    With your prolapsed/slipped/herniate disc, what activity did you feel you couldn't do? (tick all which are relevant)

    Stand still

    Walk

    Sit

    Lie down

    Run

    Bend

    Kneel

    Shower

    Bath

    Go to the toilet

    Lift any weight

    If you went to A&E with this condition, what happened?

    I was sent straight home without treatment

    I was given pain relief and sent home

    I was kept in hospital for a few days, given pain relief and sent home

    I was kept in hospital for a while and had X-rays/MRI scans to determine the problem and sent home with medication

    I was offered an operation straight away

    Other, please explain

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  • Posted

    Hi Jude,

    I registered with PUK last year sometime but I can't remember my username and password, so I don't know how I'm going to be able to contact you.

    I'll answer the questions that are above, we'll have to sort something out, does anyone have a clue as how to find my username and password?

    Angela

    Q. From when pain started how long did it take to be diagnosed?

    A. 1-4 weeks

    Q. Were you offered a MRI Scan?

    A. Yes I had one done.

    Q. When you were diagnosed with Prolapsed Disc, were you offered Physiotherapy?

    A. Yes I had physio but it was after my 1st Operation.

    Q. Were you offered Pain Medication?

    A. Yes, Diclofenac, Dihydrocodeine and Paracetamol, but did'nt help. I was put onto Morphine Tablets, Tramadol, Amitriptylin, Fluoxetine after my 1st Op as I still had severed Pain.

    Q. Did you see your GP first with the Pain?

    A. Yes, but he didn't refer me to a Consultant as the Hospital.

    Q. If you were offered a Operation, how long was it from pain starting to Operation carried out?

    A. 22 Days

    Q. What type of disc did you have?

    A. Prolapsed Disc

    Q. Where was your pain mostly?

    A. Back, Buttock, Left Leg and foot. I experienced numbness, burning sensation, weakness and loss of heel reflex in ankle.

    Q. Has Prolapsed Disc prevented you from doing things?

    A. Yes I am really limited.

    Q. If you normally work have you been off Sick?

    A. Yes for over 20 months now.

    Q. If operated on were you told about the risks fully?

    A. Yes, wasn't given a choice of Hospital.

    Q. Were you offered a choice of Open or Micro Discectomy?

    A. No.

    Q. Did you feel confident with your Consultant?

    A. Yes I did.

    Q. How did you feel Physio helped?

    A. It didn't hel at all.

    Q. With your Prolapse what activities did you feel you couldn't do?

    A. Stand, Walk, Sit, Lie down, Run, Bend, Kneel, use Bath or Shower, go to the Toilet and couldn't lift any weight.

    Q. If you went to A & E with the condition what happened?

    A. I was kept in for a while had Xrays, MRI Scan and sent home with medication. Pain got worse over the next week and was taken back into Hospital and had a Discectomy Operation on 19th Jan 07.

    If you need to know anymore Jude, just let me know and I'll try to help you out.

    Bye for now,

    Angela x

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  • Posted

    Hi Angela

    I'm so sorry, there maybe some confusion. What we're doing here on this post is listing all the questions we're going to ask in a survey, we can all contribute to what questions can be asked and then PUK are going to run the survey, send it out to everyone so we can collate the statistics. Please please do contribute though, what would you want to know about your fellow sufferers?

    I probably can't even say this on here but I'm on Facebook, my name is Jude Robinson, I have a red cardigan on, can you find me that way?

    Love and hugs

    Jude xxx

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  • Posted

    Angela,

    Lin who looks after Patient UK members will sort your password out with you (she'll write to the email address you supplied).

    G

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  • Posted

    Angela (Teeside)

    So that I can check our database and sort your account out - please can you e-mail me directly.

    Regards

    Lin

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  • Posted

    Hi everyone

    We're still looking for contributions as to what questions you would like to ask fellow sufferers. We would really appreciate your input.

    Many thanks

    Jude xxx

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  • Posted

    Hi Chimera,

    Where can I find your email address, so I can send you an email

    Cheers,

    Angela

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  • Posted

    Q. From when pain started how long did it take to be diagnosed?

    A. 12 weeks

    Q. Were you offered a MRI Scan?

    A. Yes I had one done.

    Q. When you were diagnosed with Prolapsed Disc, were you offered Physiotherapy?

    A. Yes I had physio but it was after my Operation.

    Q. Were you offered Pain Medication?

    A. Yes, Diclofenac, Dihydrocodeine and Paracetamol, Tramadol, nsaids

    Q. Did you see your GP first with the Pain?

    A. Yes, but he didn't refer me to a Consultant as the Hospital.

    Q. If you were offered a Operation, how long was it from pain starting to Operation carried out?

    A. 28 wks

    Q. What type of disc did you have?

    A. Prolapsed Disc

    Q. Where was your pain mostly?

    A. Back, Buttock, right Leg and foot. I experienced numbness, burning sensation, weakness and loss of heel reflex in ankle.

    Q. Has Prolapsed Disc prevented you from doing things?

    A. Yes I was really limited.

    Q. If you normally work have you been off Sick?

    A. Yes for over 6 months .

    Q. If operated on were you told about the risks fully?

    A. Yes, wasn't given a choice of Hospital.

    Q. Were you offered a choice of Open or Micro Discectomy?

    A. No.

    Q. Did you feel confident with your Consultant?

    A. Yes I did.

    Q. How did you feel Physio helped?

    A. helped me a bit

    Q. With your Prolapse what activities did you feel you couldn't do?

    A. Stand, Walk, Sit, Lie down, Run, Bend, Kneel, use Bath or Shower, ,couldn't lift any weight.

    Q. If you went to A & E with the condition what happened?

    A. n/a

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  • Posted

    Hello,

    just been reading your experiences with a prolapsed disc and i've noticed you say you suffered loss of heel reflex. I have this and have been informed it is called foot-drop. I am now 9 weeks post-operative of a discectomy on L4/L5 and do not see any improvement in my foot eventhough the pain from my legs and back has gone.

    I was wondering if you are still suffering with the lack of foot movement or has is got any better. If so, how long did it take. Where you given specific exercises to assist your healing.

    Any info would be great!

    Ta

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  • Posted

    [quote:2cc1932ce7=\"Mismatch\"]Hello,

    just been reading your experiences with a prolapsed disc and i've noticed you say you suffered loss of heel reflex. I have this and have been informed it is called foot-drop. I am now 9 weeks post-operative of a discectomy on L4/L5 and do not see any improvement in my foot eventhough the pain from my legs and back has gone.

    I was wondering if you are still suffering with the lack of foot movement or has is got any better. If so, how long did it take. Where you given specific exercises to assist your healing.

    Any info would be great!

    Ta[/quote:2cc1932ce7]

    Luckily my foot drop improved immediately, I did have physio for a limited time only after my op.

    My main problem is the pain in my back is recurring not sure why but was told that it might never go away after op anyway.

    Least the main problem and pain in my leg has gone!

    HTH

    Donna smile

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