Quick Question about Muscle Spasms with Dizziness

Posted , 5 users are following.

Has anyone else experienced muscle (leg and back) aches and spasms by trying to keep balanced when you have disequilibrium, or is this just because I am generally out of shape since I don't walk as much anymore?

What do you do to help that? This is really bothering me, as it seems the dizziness is affecting more and more things by the minute!

Thanks.

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11 Replies

  • Posted

    Hi Dee,

    Yes, definitely have had muscle spasms with my labs/vestibular neuritis (I am about two and a half months in). Legs and arms have been twitching on and off for months, and I have had aching calves or jelly legs on and off all this time too, like I did a long run the day before, but I didn't. Another thing I have just started to have is loud knee clicking when I climb the stairs and sudden knee pain while walking, to go with the chronic shoulder pain and the pins and needles feelig in my left arm/foot and even tongue.

    I was in pretty good shape before this came along so it's not fitness. I have read that it could be anxiety-related (I don't really believe that –  I don't feel at all anxious now) or muscles trying to keep up with balance problems (more likely) or just general nerve confusion (my favourite). The GPs I have seen don't know anything about it and were no use on this particular aspect.

    I can't help with a solution – I am just living with it and hoping it disappears when the condition as a whole goes. Things are getting slowly better. My advice would be just to keep moving/exercising and don't let it stop you doing things if you can. I completely agree it is at first *very* alarming: I thought it must be MS or some muscle wasting disease. When I realised other people had experienced similar sensations it became less of an issue for me, and I believe it will eventually go.

    Best of luck,

     

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    • Posted

      Hi Charlie can you help me I've got vestibular neuritis did you do vestibular rehabilitation exercises.I got a Flickr in my left eye and weak balance system in my left ear. I'm get now cold hand and feet pins and needles. I do not have the spinning Sensation just feel off balance to my left.l hope you are feeling better
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    • Posted

      Hi Victoria,

      I have done the exercises but not much, and then only because I read about them on the internet. The ENT I saw recently said not to bother, that it was better to get out, exercise, and get your vestibular system to relearn that way, through walking, cycling, running etc. I don't think the VRT will do any harm mind you. 

      Pins and needles was definitely something I felt earlier on and occasionally feel still, in my left side and right now in my lower lip. The non-specialist doctors I've seen don't seem to make any connection with labyrtinthitis, but others on this site and elsewhere seem to have had it, so am no longer worried about it, I think it's just part of the general vestibular dysfunction. I also don't really have much spinning, just the occasional feeling of suddenly not quite being stable, occasionally having to readjust quickly so not to bump into a doorframe etc. I don't think I have had it really severely, but the weird symptoms (including heart) and the worrying about what they could mean have been the worst of it. 

      My ENT said that if I had VN it would go away. It always does, even if it takes months. And it certainly (or almost certainly!) won't come back. So am clinging to that, and keeping trying to get out and live life as much as possible.

      Good luck! As well all know, it's a horrible thing to have.

      C  

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  • Posted

    Hi

    I totally understand how you're feeling. All this started when I had a virus about 4 weeks ago. Dizziness, vertigo, pins and needles in left arm. Back ache, aching legs etc. I've been off work since Monday as I work with vulnerable people in the community and I'm not driving at the moment. I don't think GPs can sympathise, because I still look healthy. Kind of feel like a hypochondriac smile Must admit though, the anxiety has since subsided, and every day seems to be better. I've been prescribed betahistine for the symptoms. I've noticed that when the dizziness kicks in, my left shoulder is painful. Bizarre!!!

    I'm now using aromatherapy, 2 drops of lavender and peppermint behind the ears. Seems to be helping and smells lovely.. There does seem to be a lot of people suffering with this, but fingers crossed, we're all on the mend now..

    Wishing you better

    S 0:-)

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    • Posted

      I'm just now starting to learn about essential oils and have just ordered a kit.  Do you layer the lavender and peppermint or mix them together?  Trying anything to not have to get back on meds!

       

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    • Posted

      Hi

      I mix them together in the palm of my hand, then apply to the back of the ear.. I agree, conventional meds make you feel worse, chamomile oil can be mixed in too.. If you google reflexology, there are pressure points on the toes that encourage the blood flow in the ears.. I'm a great believer in alternative medicines.. Seems to be a lot of us suffering with this dizziness at the moment

      Wishing you better smile

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  • Posted

    Well it's good to know others have the pain with it. With me, it's not anxiety at all. It's depressing because I can't do the things I used to do, but it's definitely got a physical cause. So fe up with doctors. Ortho thought it was a pinched nerve - maybe - PT said it was hips out of alignment (no, MRI showed good alignment). I'm going on 16 months as of March 10th. I do find if I walk with a cane now, it keeps the presuure off of my back muscles to help me steady, if this helps anyone.
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  • Posted

    Getting very frustrated with doctors not knowing what's wrong. I am doing better by googling things on my own! Serious waste of time.

    Yesterday's appointment "diagnosis" for unrelated problem went from "It's probably Raynaud's syndrome", to "Could be neuropathy", to "No, it's a callus", to "I'm sending you for an xray of your toe (?!), it may be broken".

    No wonder they can't figure this imbalance thing out, or the back problems caused by it... it's all a guessing game! Very discouraged.

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    • Posted

      It is very discouraging, especially when you are so desperate for answers.  They go on to the next patient and you maneuver your way to the elevator wondering how you are going to make it to your car without help. Two things that have saved me, not being shy about asking a stranger to give me a hand if I am feeling unbalanced and two, finding a group like this where people live it every day and are trying as hard as I am to figure out how to get better.
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