RA and crohns diagnosis symptoms of resp or cardiac issues
Posted , 5 users are following.
I have been diagnosed with 3 autoimmune diseases. RA, crohns and vitiligo and I now have symptoms of blood pressure readings going up and down, palpitations and most recently a resp infection that caused constant coughing and sensation of difficulty with breathing. Those have passed after prednisone and antibiotic but now I am wondering if I have resp autoimmune issue or vasculitis It is very frustrating since my primary doctor just doesn't seem to know what is going on and doesn't want further testing.My sleep is awakened by palpitations and checking my blood pressure I notice it is very high for me. A lot of info here but i am just wondering if anyone has had these type issues I am afraid to start Cimzia again since I am very concerned I will get much worse. The resp infection took 6 wks to get get rid of and left me very run down.
0 likes, 5 replies
AlexandriaGizmo Gloria814
Posted
So what exactly is the diagnosis for heart disease as that's not an auto immune disease.
I have UC and RA possible link
Light Gloria814
Posted
If this is a race for how many auto-immune diseases we have, sorry, but I win by a huge margin...
RA, peripheral neuropathy, pernicious aenemia, filamental keratitis, vitiligo, hypothyroidism, IBS... There's even another one I've forgotten! (Memory loss??)
Sorry. Couldn't resist.
What was your question when writing your post? Happy to oblige.
Gloria814
Posted
Sorry, I don't usually post anything and so I don't know why my message was clipped.There was a paragraph missing on my initial post here. My computer needed to be recharged just as I was sending so ?? if that was the issue
At any rate the discussion really wasn't related to the 3 autoimmune but I have been having issues with frequent changes in blood pressure through out the day and pounding palpations . Just got over a 6 week upper resp infection with constant coughing and sensation of choking. Treated with 2 courses of prednisone and antibiotics. I have not been on any med. for RA in a year, only pentasa for Crohns. I was to start biologic Cimzia again but this resp infection delayed it.On cimzia last year and stopped due to palpations Was seen by cardio doc but nothing found on testing
I was wondering if anyone else with RA or Crohn's had this type of cardiac issue
anthony1801 Gloria814
Posted
Hi Gloria,
This is interesting as I had the diagnosis the other way round. Months of palpitations, profuse sweating and looking grey around the gills. I was diagnosed with an aortic flow murmur. About a year later, I was diagnosed with inflammatory arthritis. The two may or may not be linked-no one has been willing to commit. However, ramapril controlled my blood pressure (and continues to do so), after much faffing about with meds my inflammatory arthritis is dampened by combined treatment of methotrexate and benapali. I am a season ticket holder for meds if you add in various others (gabapentin, zapain etc....) but I'm keeping going 🤣😂.
Don't know if I've answered your question but this has been my experience....... Hope that helps or offers some reassurance in some way.
Take care
Anthony
Gloria814 anthony1801
Posted
Thank you Anthony. That was informative. I think I will ask the primary doc to do some cardiac testing or refer me to cardiologist againWhen I am ""normal" - my BP runs on the low side so I am a bit leary to start on a pressure med.I have so many side effects from medication-