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RA negative

Posted , 3 users are following.

ann95057
ann95057

Hi friends, I have RA negative but I was taking methotrexate combined with other medicines. But no improvement in my pain.

Now I have heel spurs and slowly it went to my knees. X-ray shows bone movement in knee..and I could not walk! My knees are inflamed and painful giving me hard time to walk. I'm just so confused.

We'll, friends right now my Doctor prescribed methotrexate 8 tab, Aravali alternative days, prednisolone once a day, and Artrodar 50 mg Capsule. Have anyone of you taken these medications ? Any advice will be helpful.

Thank you

0 likes, 5 replies

5 Replies

  • lyn1951
    lyn1951 ann95057

    Posted

    I too am RA negative arthritis, have been on MTX for years. after some time it was found that I do not take up MTX via my stomach, as I was getting no relief at all, and that's unusual, so changed me over to self injecting into upper leg once a week, I nearly freaked, Dr put me in my place with the words, their are 8 - 9 year old children who are self injecting insulin, get over it, she was right, just the thought of sticking myself with a needle, UGHHHH, I still am a little needle phobic but no where as bad as I was, you can get over it, very patient GP helped me the first few weeks to self inject.

    Arava, which does not like me at all, night sweats, loose bowels, take it at night, and in the morning the family know to stay away from the toilet, it is mine, (known side effect) and that's on 10mg, 20mg dose I developed extremely high blood pressure, apparently only about 2% of patients have this side effect, I can manage to take it just by taking every 2nd day at 10mg dose, really does help settle arthiritis, so worth the problems.

    Don't know about the others, but I'm sure someone else can help.

    ?What I will say as a last comment, have you tried stopping eating ALL WHEAT, a few months ago, I just got sick of all the tablets, and the side effects, as above, and one day just stopped eating wheat, I check everything's labels, some are naughty and don't even put it on labels, if under 2% apparently they don't have to, and guess what, the pain lessoned.

    I don't find it easy, as I love a bit of toast, have been sticking with fruit, rice products, cornflakes for breakfast, surprising enough I can eat oats, they don't seem to cause me problems, have even given up potato as well, the difference it has made is astounding, so do I have a problem with wheat, nothing the Dr has tested me for comes back with a positive result.

    I could feel the difference in pain levels within about 4 hours, and thought it can't be this easy. 

    Is it worth a try, YES, and can it do you any real harm NO.

    • ann95057
      ann95057 lyn1951

      Posted

      Thank you Lyn. Maybe we should be away from gluten food. What about carbs like rice???

    • lyn1951
      lyn1951 ann95057

      Posted

      My system like rice, its my food, other than fruit and veges.
  • martin31040
    martin31040 ann95057

    Posted

    Hi, I was given methotrexate only on it a week and ended up in A and E terrible gut problems but I have IBS as well so maybe related to that, but for the last 6 months I've been on Benepali works brilliant for me and no side affects

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